FEELING HEARTBEAT IN MY EAR!!!

Hello MBrenton,

would it be possible fot you to provide the name of the specialist(s) that you consulted at the hospital and surgeon. I have had PT for 2 months now. txs, aj

The neuroradiologist that performed my procedure was Dr Willinsky. I don't know if we are allowed to post websites on this forum, so I won't do that. If you google Toronto Brain Vascular Malformation Study Group, you will find the website with the appropriate information.

Oh my gosh, so glad to find this thread! My problems are similar to yours! I am 47 with this loud heartbeat sound in my ears that's driving me crazy, and pain in my upper left arm....I too, could stand to lose a few pounds....and I don't have insurance either.....I'm so afraid I might croak in my sleep that I am afraid to go to sleep!....I hope you return and post more on how you're doing, Lynda

Hmm. I searched yahoo in hopes to find some help. I have a swishing/drumroll sound in my left ear several times a year. i'm 24 yrs old and have been diagnosed with a-fib, and i didn't know if it had something to do with that or what? I'm glad to know i'm not alone though!

Hi again mbrenton,

Thanks for your most recent reply. By the way, I'm a Canadian (Toronto) citizen too but I'm currently living and working in California. So, I guess I also have a choice of going back home to get treated. What a coincidence.

Anyway, an update to my condition, my ENT recommended me to a specialist in San Francisco - UCSF. Had an appointment with him last month and after seeing my MRI/MRA images, he quickly told me that I do not have an AVM. He's quite sure that it's a DAVF. I've got a diagnostic angiogram scheduled middle of next week to confirm his findings. If he knows he can fix it, then he will do it the same day. Seems I was lucky to get recommended to UCSF as well. It's a very well known teaching hospital and the doctor is one of the pioneers of endovascular embolization. I guess that's a good thing. Wish me luck next week. I'll be sure to report back once I have more information.

Thanks again for your reply.

--RH

mbrenton wrote:

Thank you for your reply to my post. In answer, my embolization went very well. I was fortunate to be in a world class teaching hospital (Univeristy Health Network - Toronto Western) and also being Canadian I did not have to worry about any cost. I had general anaesthesia and the procedure it self took over 5 hours. I had to stay overnight for observation and I was able to go home the next morning. My follow up MRI and consultation visit will take place in March with follow up angiography scheduled for May. I wish you all the best with your condition. Please let us know how things turn out for you.

Hi mbrenton,

Thanks for your info. I've had PT in my right ear for almost a year now. MRA last week revealed an AVM. Will be discussing treatment options with my ENT tomorrow. How was your embolization? Were you in and out of the hospital in a day? How are things going now?

I am so glad to come upon this site. I have had this swooshing in my left ear for a year now. After seeing two doctors and an ear, nose and throat specialist all I have heard is that it is something I am going to have to live with. It is so glad knowing there is other people out there that have the same issue. I was so scared that it was something serious and they were missing it. Don't get me wrong I am sorry that anyone else has to go through this. It is funny to see how many other people have come up with placing their fingers on their neck veins to stop the noise. If anyone out there knows any other tricks to get a rest from the constant swooshing please let me know, or if any doctor out there nows a way to cure this, PLEASE.

I'm almost 16 and I've always thought I was off my rocker for hearing an ultrasound-like noise in my ear. I was maybe... 4 when it first happened. I used to think that there was a little man in my ear marching XD Could this noise actually be that serious? I probably should tell my doctor about it when I go in today.

Hi RH. Thanks for your post and I hope that all is well with you. Please let me know how things went with your procedure. My follow up MRI was good, so barring any return of symtoms I won't need any more tests.

M.

Guest wrote:

Hi again mbrenton,

Thanks for your most recent reply. By the way, I'm a Canadian (Toronto) citizen too but I'm currently living and working in California. So, I guess I also have a choice of going back home to get treated. What a coincidence.

Anyway, an update to my condition, my ENT recommended me to a specialist in San Francisco - UCSF. Had an appointment with him last month and after seeing my MRI/MRA images, he quickly told me that I do not have an AVM. He's quite sure that it's a DAVF. I've got a diagnostic angiogram scheduled middle of next week to confirm his findings. If he knows he can fix it, then he will do it the same day. Seems I was lucky to get recommended to UCSF as well. It's a very well known teaching hospital and the doctor is one of the pioneers of endovascular embolization. I guess that's a good thing. Wish me luck next week. I'll be sure to report back once I have more information.

Thanks again for your reply.

--RH

mbrenton wrote:

Thank you for your reply to my post. In answer, my embolization went very well. I was fortunate to be in a world class teaching hospital (Univeristy Health Network - Toronto Western) and also being Canadian I did not have to worry about any cost. I had general anaesthesia and the procedure it self took over 5 hours. I had to stay overnight for observation and I was able to go home the next morning. My follow up MRI and consultation visit will take place in March with follow up angiography scheduled for May. I wish you all the best with your condition. Please let us know how things turn out for you.

Hi mbrenton,

Thanks for your info. I've had PT in my right ear for almost a year now. MRA last week revealed an AVM. Will be discussing treatment options with my ENT tomorrow. How was your embolization? Were you in and out of the hospital in a day? How are things going now?

Hi mbrenton,

Thanks for your reply. I'm glad to hear that you're on your way to good health.

The doctors found my fistula to be quite large and were only able to occlude about 80% of it. I was under general anesthesia for over 8 hours so they decided to do it in stages. They want to see me again after 4 months to see how I'm doing and perhaps close off the last 20% if needed. One question I had for you was, I still have the pulsatile tinnitus going on one week after the procedure, did your PT go away instantaneously or did it take some time? I'm not expecting mine to go away since the work is not complete.

Thanks,

RH


mbrenton wrote:

Hi RH. Thanks for your post and I hope that all is well with you. Please let me know how things went with your procedure. My follow up MRI was good, so barring any return of symtoms I won't need any more tests.

M.

Guest wrote:

Hi again mbrenton,

Thanks for your most recent reply. By the way, I'm a Canadian (Toronto) citizen too but I'm currently living and working in California. So, I guess I also have a choice of going back home to get treated. What a coincidence.

Anyway, an update to my condition, my ENT recommended me to a specialist in San Francisco - UCSF. Had an appointment with him last month and after seeing my MRI/MRA images, he quickly told me that I do not have an AVM. He's quite sure that it's a DAVF. I've got a diagnostic angiogram scheduled middle of next week to confirm his findings. If he knows he can fix it, then he will do it the same day. Seems I was lucky to get recommended to UCSF as well. It's a very well known teaching hospital and the doctor is one of the pioneers of endovascular embolization. I guess that's a good thing. Wish me luck next week. I'll be sure to report back once I have more information.

Thanks again for your reply.

--RH

mbrenton wrote:

Thank you for your reply to my post. In answer, my embolization went very well. I was fortunate to be in a world class teaching hospital (Univeristy Health Network - Toronto Western) and also being Canadian I did not have to worry about any cost. I had general anaesthesia and the procedure it self took over 5 hours. I had to stay overnight for observation and I was able to go home the next morning. My follow up MRI and consultation visit will take place in March with follow up angiography scheduled for May. I wish you all the best with your condition. Please let us know how things turn out for you.

Hi mbrenton,

Thanks for your info. I've had PT in my right ear for almost a year now. MRA last week revealed an AVM. Will be discussing treatment options with my ENT tomorrow. How was your embolization? Were you in and out of the hospital in a day? How are things going now?

To RH. Hi again and thanks for your latest message and good wishes. I'm happy that your procedure went well for the most part and I hope that it is able to be cleared up eventually. In answer to your question, my pulsatile tinnitus disappeared after my procedure, hopefully never to return. They were able to occlude all but one tiny vessel that seems to have closed off itself due to the lack of blood supply. I wish you all the best.


Guest wrote:

Hi mbrenton,

Thanks for your reply. I'm glad to hear that you're on your way to good health.

The doctors found my fistula to be quite large and were only able to occlude about 80% of it. I was under general anesthesia for over 8 hours so they decided to do it in stages. They want to see me again after 4 months to see how I'm doing and perhaps close off the last 20% if needed. One question I had for you was, I still have the pulsatile tinnitus going on one week after the procedure, did your PT go away instantaneously or did it take some time? I'm not expecting mine to go away since the work is not complete.

Thanks,

RH


mbrenton wrote:

Hi RH. Thanks for your post and I hope that all is well with you. Please let me know how things went with your procedure. My follow up MRI was good, so barring any return of symtoms I won't need any more tests.

M.

Guest wrote:

Hi again mbrenton,

Thanks for your most recent reply. By the way, I'm a Canadian (Toronto) citizen too but I'm currently living and working in California. So, I guess I also have a choice of going back home to get treated. What a coincidence.

Anyway, an update to my condition, my ENT recommended me to a specialist in San Francisco - UCSF. Had an appointment with him last month and after seeing my MRI/MRA images, he quickly told me that I do not have an AVM. He's quite sure that it's a DAVF. I've got a diagnostic angiogram scheduled middle of next week to confirm his findings. If he knows he can fix it, then he will do it the same day. Seems I was lucky to get recommended to UCSF as well. It's a very well known teaching hospital and the doctor is one of the pioneers of endovascular embolization. I guess that's a good thing. Wish me luck next week. I'll be sure to report back once I have more information.

Thanks again for your reply.

--RH

mbrenton wrote:

Thank you for your reply to my post. In answer, my embolization went very well. I was fortunate to be in a world class teaching hospital (Univeristy Health Network - Toronto Western) and also being Canadian I did not have to worry about any cost. I had general anaesthesia and the procedure it self took over 5 hours. I had to stay overnight for observation and I was able to go home the next morning. My follow up MRI and consultation visit will take place in March with follow up angiography scheduled for May. I wish you all the best with your condition. Please let us know how things turn out for you.

Hi mbrenton,

Thanks for your info. I've had PT in my right ear for almost a year now. MRA last week revealed an AVM. Will be discussing treatment options with my ENT tomorrow. How was your embolization? Were you in and out of the hospital in a day? How are things going now?

have you heard about AVM(arteriovenous malformation),in this artery in brain directly end in a vein,so lots of pressure leads to lots of turbulence and noise...read about it,it can be operated if its trouble to a level that your daily life is compromised
!!! good luck

Hey there

I don't think this is anything to worry about, you have superficial arteries located right next to and around your ear, these include the deep auricular, posterior auricular etc... There is some insulation from sound provided from deeper arteries by bone, yours may be a little thinner, all you are hearing is your blood being pumped to your head! If you exercise of course it will become faster and possibly more audible because your heart is pumping harder! If you want more reassurance you should pay a visit to not your doctor but your dentist (they learn more about the head and neck than doctors) If your dentist thinks its something to worry about they will refer you to an ENT (ear nose and throat) specialist. Hope this has been helpful! Aslo might help for you to know I'm a dental student and I get this "wooshing" noise occasionally too - I'm not worried :-)

o.O i have the same thing too, i'm only 26 yrs old, i can hear a heartbeat in my left ear first time when i had this i was so worrry i thought something was wrong with me..because i'm always on my ipod with volume high..that maybe i'm beginning to be deaf..anyway it sucks and annoying hearing this c**p every mins or so..but i think if you worry about it..it won't go away.I won't let this get the better of me.

I feel like i have much of the same problems as people have listed here. The whooshing sound is SO familiar to me. I have what i call " fainting spells" there very quick but frequent, about 2 seconds long but occurs every minute or so. I have had this for a long time and too have had hundreds of dollars spent on testing and i have gotten NO diagnosis. They are the most annoying thing and i cannot figure out what causes them or how to get them to go away... Moving my head very fast to one side will trigger these fainting spells and when they start, there is no stopping them.. ANY help would be greatly appreciated.

I HAVE EXPERIENCED A HEARTBEAT IN MY RIGHT EAR SINCE APRIL OF 1995. NUMEROUS DOCTORS INCLUDING ENTS HAVE EXAMINED ME AND HAVE NOT DISCOVERED A CAUSE. MY BLOOD PRESSURE IS NORMAL. MY PULSE IS NORMAL. I HAVE NEVER SMOKED; DRANK ALCOHOL OR USED ANY TYPES OF LEGAL OR ILLEGAL DRUGS. I AM A VEGETARIAN; FAIRLY ACTIVE ; DO NOT REQUIRE ANY TYPE OF MEDICATIONS EVER. I AM ALSO A REGISTERED NURSE WHO HAS RESEARCHED THIS PROBLEM FOR YEARS AND STILL AM BAFFLED. I AGREE IT IS INCREDIBLY ANNOYING. I WOULD LOVE TO KNOW NOONE CAN FIND A WAY TO RESOLVE THIS PROBLEM.