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For Spanner - Don't give up - my husband has gone through the works and we are finally seeing some progress in the last 2 months - he had an occipital nerve block and it has improved his headaches - they are still there but better - we bit the bullet and went to the Mayo clinic and it seems they have us going in the right direction now - don't know where you are located but find another doctor - it is a process but hopefully you will have a successful outcome.....
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Google the name Blair Rowand or Dr. Ducic.  Blair had a 2-year long headache that started suddenly at the back of her head and Dr. Ducic from Georgetown University Hospital in Washington DC saw that there were nerves being compressed at the back of her head and preformed a peripheral nerve surgery and Blair has no more pain.  I wish you the best of luck with your daughter lifeofpain4.

I just got back from DC and had the procedure myself last week for me continuous temple headache and I'm waiting to see if it worked since I'm still experiencing pain from the surgery itself.

All the best.
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Quote:just an update i am now headache free thank goodness, due to taking a tranquilizer just a 10mg oxazapam never would have thought it at the time but i now know it was all stress and the tranquilizer must have relaxed a muscle or something but it has gone, i also got a back, neck and shoulder massage, my headache was always the left side and my left shoulder blade was filled with knots and all crunchy  so i think that also helped : D hope your all feling better x
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Tashawna76 wrote:


Please keep me posted Tashawna76 - keeping you in my thoughts....
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I have been suffering with a non stop headache for 2 months and 1 week, finally went to the er today, they think it is tension or migraines, they gave me maxalt 10 mg, for the migraines, and flexerol, for tension headache, i took both and it finally semms to be dissapaiting.  This is the worst thing that could happen to a healthy person, you can barely live life like this, and i pray you all find relief. hope this helps

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I'm 23, never had headaches, until 3 months ago, and it hasn't gone away. I've since gone to two doctors. One thought it was a new allergy to ragweed (Wrong). 3 days after that I was in the hospital because it got really bad. I got a CT scan and it came back normal.

 ***this post is edited by moderator *** *** web addresses not allowed***

 Some/most of it is spot on, like that most patients can identify the exact date it started-I sure can. The part I didn't like about this is that there is no known sure-fire cure.

Doctor first put me on Voltaren (an anti-inflammatory), that did nothing. Then I went back and he gave me Metoprolol Tartrate (suppose to help blood pressure, and migraines on the side), I've been on it for 2 weeks, hasn't done a thing...

...In fact, right now, if I can describe how my head feels, being as descriptive as possible, using key words that may trigger a feeling you haven't been able to describe: it feels cloudy, heavy, a strange cold feeling like brain freeze in a way, aching, under pressure, feels like it wants to expand. The sight of pain changes all the time, sometimes its left, then right, then into my forehead, then the entire thing, then my temples. My ears are ringing also. Its a disaster. Its always there, the variant is the intensity. Seems to be worse at night, but lately during the day at work its been pretty bad.

Getting to sleep is interesting, it feels like my head is all over the place, its like an ocean with waves of pain, and that if I fall asleep, I won't wake up. Its like a light show inside my head, and I'm not enjoying it. Sometimes I'm short of breath trying to get to sleep. its very strange and unsettling.

I am scheduled for an MRI in 3 months (great), and after calling my doctor today and basically saying "What the F&$%, figure it out, it hurts, the pills do nothing." he's going to look into it on his own time and I may be passed on to a specialist.

Hope this helps to maybe start thinking more about what it can be. If anyone else has been told they may have this, or think they fall into this category, please shed some light. This is no way to go through every day...I know you know that.

Joe.

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Would love to know if any of the previous posters have managed to find a solution to this. 

Like many others, my pain started suddenly, and has been more or less non-stop for the last four months. I was given amiltriptyline after being bed-ridden for the first month and had a few days respite from the pain, but had such bad side effects I had to stop taking it. Any kind of activity makes them worse. with even a slow walk for a couple of minutes guaranteeing me a couple of hours of pain. I've even had to write this email in stages! 

Reading other people's comments, I'm wondering if I should change doctor, because I haven't had almost any of the tests others are talking about. I'm not really being taken seriously and keep being told to come back in a month if it hasn't got any better. Only had blood tests so far.

If you've found a way to make them stop, please let us know - it would give me and I'm sure others hope that there can be an end to the misery!
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I've had the same issues for three months; a dull aching pain on my left temple and the top of my skull. Honestly, I now have reached the point of committing suicide- a can't concentrate, recall anything, I constantly feel dizzy, light headed and am now having issues with my spelling! I am typically a high achieving A+ grade student and the reality that this is my HSC year and I can't perform to my potential is devestating. The following could be possibilities;

-Chronic stress

-Chronic fatigue (Praying that it is not this!)

- TMJ (grinding of teeth)

- An electrolite issue/dydration/side effect of the antidepressant Pristiq. I have also recently established that taking an excessive amount of iboprofen (I've taken four tablets every day for a month to relieve the headaches) counterbalances with the Pristiq. Therfore, it's as if I've been off pristiq, cold turkey, for a long while.

- Taking magnesium supplements helps (A little) as well as drinking water and poweraid/ hydrating drinks.

Also, can I ask you all, have any of you had a hit to the head/mild concussion recently?

Mine was very mild but now I'm not sure if my symptoms are from this or from the stress! My CT scan was clear, but sites claim that mri's and ct scans due not show cognitive issues/mild concussions.

I'm drawing my family apart with my constant anxiety. I've recently recovered from four years of anorexia and to now be rewarded with this is killing me inside.

Please help! How long until I should expect to recover?! Thankyou all.

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Hi, I am sorry to hear about your situation. I was actually one of the posts here in this specific thread about 9 or something months ago... And well, it was a dull headache that would never go away no matter what I tried, I 'ate' well, three times a day, took all sorts of medication....therapies, chiropractitioners.... everything... and nothing worked (except surgery, didnt want to head there, only last alternative...was about to though).... and everything I came accross was never 100% guarranteed, nor secondary effects... everything seemed that it was not guarranteed and with a risk.... So i started doing more research.... and i say this.....

If you were ever at one point in your life that you felt the way you want to feel now,.... then there is the total complete chance for you to feel that way again... only that your habits and health behaviors started deviating from that moment...

So I used to have this 11 month headache.... yes, 11 months, it was hell (I felt like ending my life out of misery, I felt so unproductive...).. Also, top of my class, and killing myself for the top score... just to end up like i did....

now i learned that its just not worth your health.... cause i was neglecting my health fore mearly letter grades on a transcript... eh....

I had pre-anorexic symptoms right before I had my headache, but didnt really take it too much into account because of my ignorance...

So what i started doing was eating more that was 'normal', I ate around 6 times a day, for a total of around 3000-4000 calories per day. It was a touch challenge, but within four weeks, my headache had faded away day by day. It was to me like a great awakening of truth. It was like that old saying, .... "you are what you eat...." So my recommendation to you.... Decrease your pharmaceutical medication till you take none, and eat a whole food base diet for a total of atleast 3000 calories. Try not to eat refined foods, like instant meals, and chips, stuff like that; home prepared 'good-food'....

If you would like to know more about my experience, you can reply to me... Good luck in your future endevour of healing !
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Thankyou so much truepal20032001, I appreciate you answering so quickly. I'll give your suggestions a try; at this point, in order to relieve the pain, I'm willing to try anything. Could I please ask you a personal question? I know this sounds pathetic but this thought is becoming obsessional- did you ever feel, recovering from this headache, that your intelligence was dropping? I feel that I can't concentrate, recall information...Iam  beginning to comprehend that love, family and God is far more important than striving for a level of perfection which ultimately doesn't exist. It would just put my mind to ease to know.

Also, did you have any other methods when you were recovering? Relaxation, meditation, acupuncture anything?

Did you ever experience a feeling that your eye was drooping at times/ twitching at others?

Thanyou for response,

Mia

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Thankyou so much truepal20032001, I appreciate you answering so quickly. I'll give your suggestions a try; at this point, in order to relieve the pain, I'm willing to try anything. Could I please ask you a personal question? I know this sounds pathetic but this thought is becoming obsessional- did you ever feel, recovering from this headache, that your intelligence was dropping? I feel that I can't concentrate, recall information...Iam beginning to comprehend that love, family and God is far more important than striving for a level of perfection which ultimately doesn't exist. It would just put my mind to ease to know.

Also, did you have any other methods when you were recovering? Relaxation, meditation, acupuncture anything?

Did you ever experience a feeling that your eye was drooping at times/ twitching at others?

Thanyou for response,

Mia
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Hi Mia,

Well I am glad you are going to give it a try. My experience was very miserable, I felt I was being dragged down. Now that I actually remember, my eyes would at most of the time be drooping, because I was so lethargic and lacked energy for most of the day. I didn't feel like talking to anyone, and didn't want to do anything. And sometimes, quite often but not always, my left eye-lid would twitch for no reason. I got concerned, until I got used to the feeling I ignored it. You see.... everything I was feeling were symptoms, telling me that something was not right in my body. This is my view of chronic illness:

When the body is in the state of sickness, and chronic symptoms take place, the body has taken two cases:

1.) The body has be intoxicated with foreign contaminants, and can't tolerate it anymore. For example, taking too many pharmaceutical drugs, refined foods, and genetically modified crops. Since the body has not learned to recognize these 'chemical-compositions' that you are ingesting, it can cause various of secondary effects. There is tons of information about this online, if you want to keep on searching :)

and...

2.) The body has lacked the proper nutrients to sufficiently resource the body for its most important functions... For example, if you only eat meat, sooner or later you are going to feel sick. Not because your stomach will be upset, perhaps you'll digest it just fine by then, but your actually starving your body of essential nutrients and antioxidants needed to keep your body running and feeling well....


On my way to recovery I did not do any other means of therapy, except for taking a multivitamin - Nature's Plus - Source Of Life , the best you can get out there, kind of pricey, but worth every penny. Most vitamins in the market are synthetic and are not best for the body in terms of absorption, such like Centrum <-- c**p. This is because Nature's Plus does their composition as close as the vitamins in the food that you eat, making it easier for your body to use them. Again for this, there is tons of information about this online :)

Hehe..., it feels like forever before I get to your question...

Did I ever feel, that from recovering from this headache, that my intelligence was dropping?

Well, my answer is actually quite ironic and interesting as well. It was in the summer when I started to get serious about recovering, because I was being lazy most of the time, and wanted doctors to do the work for me, and now I know it does not work that way.

So I started with my meal plan of six meals a day for a total of 3000-4000 calories a day. I also didn't want my academics to fall short ( I was still being in the habit of a 'perfectionist', I wanted to get ahead another year in my bachelors in engineering...). I ended up taking 21 credit hours in classes for the summer, a normal full-time schedule at my university for a regular semester was 12 credit hours. People thought I was crazy, and now I think I was....... But you know what?...... It was the best summer I ever had...

Sure I was taking a buttload of classes, but I actually had enough energy to tackle them all, I was eating every two hours (excusing myself from class if I had to...), but every time I ate, I felt re-energized because of the foods (mostly fruits, vegetables, nuts, yogurt, and powdered milk so I could take it to school). I came out from my summer A-cing all of my classes. And I was like... I felt 10x better in that summer, compared to a regular semester of only 12 credit hours. It was counter-intuivitive thinking and ironic, but it worked for me.

So flat conclusion to your question, my intelligence grew as I recovered, and significantly. I saw much clearer, and sometimes I felt I had eyes behind my back because I was so aware of things, it was freaky really, but amazing :).

To me, I had a relevation in the summer, that I even created a powerpoint presentation to show my peers and tell them the truth about medicine in general, cause its all politics now really... I'll post it here later if I am allowed by the posting rules, still have to read them hehe...

So my last words for you is, start informing yourself about what you are going through, and look into the natural route. I recommend reading this book, I am sure there is an ebook somewhere:

Timeless Secrets of Health and Rejuvenation by Andreas Moritz <-- My hero

Best Wishes:

Luis, truepal20032001
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Hi Mia

I'd totally agree with TruePal and have had very similar experiences. Its interesting that so many of us suffering from this appear to be academically successful and perhaps pushing ourselves a little too hard.

Like Truepal, a generally more healthy lifestyle has worked wonders for me. My experiences (detailed in a post three months ago) turned out to be based on a severe Vitamin D deficiency, which along with me avoiding fatty foods like milk and cheese, caused a calcium deficiency. With supplements and a change in diet I've started to see a big improvement. I'm still getting headaches most days, but nowhere near as severe and with much needed respite. Its a slow process, you can't expect to be cured overnight, but you can get there one step at a time.

I completely understand what you say about feeling your intelligence is suffering. For months I felt like me thoughts were tangled. I couldn't remember anything, struggled to process information and didn't trust my ability to make the simplest decisions. But as that feeling gradually lifts, things start making sense again. Its like you can feel your brain kicking back into gear. I'm still in the early stages of my recovery, but those moments of complete clarity do, as Truepal says, feel amazing.

I wish you well in your journey and hope you find your way back to good health soon.
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Thankyou all so much.

I just have one more brief question that would place my mind at ease. (I already mentioned this!) Did any of you suffer a concussion or anything of the sought previously? Or do you believe my syptions could be the result of concussion/post concussion syndrome?

The symptoms generally began following an incident at the pool. My twin managed to push me and, being the typical loving sister, I drew her down with me. Her elbow/ arm (I'm honestly not certain) managed to make impact with my head. I instantly felt disorientated. Does an incident like this pose as an issue of concern?

That incident sappeared to mark the beginning of my syptoms; however, I'm uncertain as to whether or not the stress that accumulated as a result of consistant fretting caused my headaches/memory/concentration issues.

The concussion (or whatever this was) didn't appear to be remarkably threatening, however, the symptoms I am experiencing are making me skeptical.

Please help,

I appreciate your in depth and reassuring responses;

Thankyou,

Mia

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Hi Mia,

There was no head injury in my case, as you say it may be a coincidence. Given that you've been experiencing headaches etc for three months, regardless if the cause, you should see a doctor. They need to have as much information about your lifestyle as possible, so write a list beforehand. The head trauma should be on the list. Maybe nothing, but the more detail they have, the more likely they are to be able to work out what's wrong.
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