That is exactly what I'm feeling for two days now and it's all day long!!! I had my phone in my pocket on silence and kept checking it because I thought it was vibrating,,but then realized it wasn't my phone because it wasn't in my pocket anymore... It's very odd...
It's called "Restless Genital Syndrome"! I have been googling the symptoms for YEARS and am finally seeing information about it coming up! I KNEW I wasn't crazy!! Read http://www.restlessgenitalsyndrome.com/en/
Some links are better than others --- some doctors are calling it 'sexual' and going off on that tangent, but many understand what it feels like and that while it can FEEL sexual because of where it is, it is NOT sexy. It can be hell....like 'ants in your pants!, right?
Okay, ladies, it is now up to us to not be embarrassed and to start bringing it up to our doctors as a real medical concern. Once it's out there, hopefully they'll figure out how to stop it!
Hi all. I just came across this. I had the same problem and questions as you all several years ago and finally found out what it was. I have Chronic Lyme Disease. I was able to trace it back to a ring-like rash 12 years before... and I never saw a tick on me...they told me at that time that it was ring worm.... then a few months later I had a bout of vertigo.. I got really dizzy...took meds from dr and it went away in two weeks... they don't know the cause of vertigo. Then throughout the years I would have numbness and tingling in my hands and feet/legs...not often enough to think it was concerning and it would come and go...for a few months I would have nothing. I also would get headaches and my upper shoulders and neck were always tight.. I chalked it up to getting older and not sleeping in the right position (I was in my mid-20s). I also had other symptoms that came and went and were not at any strong degree but just enough that i would notice them. In addition to what I mentioned I had:
cramping in my hand (not painful) but when I would type or grip something it was almost like my fingers got stuck in place
my vision was sometimes not as good.... and I noticed more floaters in my eyes
twitching on and off in various places... especially near my eyes.. always just one eye
numbness/tingling in various places--eventually I noticed that after sitting for a long period of time that my butt and vaginal area would go numb and tingle.... I chalked it up to sitting too long but it started to happen more often and from less time sitting.
forgetfullness... I would often not remember what I was saying or why I went into a room of the house, etc. I chalked that up to getting older too.
more headaches
slight irregular heart palpulation--not very noticeable and dr said it was normal
anxiety--heart would race and I would feel like I was having trouble breathing.
later (late 20s), I had 4 cavities and 2 root canals in one year---after never having one
shortly before diagnosing me (about a year before), I had a small pain in my clitoris which then led to numbness and tingling in my vagina. I went to gyno after gyno and urologists... no one knew.. on gyno diagnosed me with pudendal neuropathy and gave me a shot in each side--your pudendal nerve runs from inside vagina up the back of your butt. It helped but the pain in my clitoris (which then turned into sometimes pain but more of a weird sensation--numbness tingling-ish) so he gave me a shot there... it basically numbed me...and the pain went away but the weird sensation in my clitoris and vagina remained... to a less degree... and sort of diminished after a year.
Then when I was 31 I moved out of state and took a new job.... the stress triggered my Lyme that I didn't know I had... I had bouts of anxiety and dizziness.. more numbness and tingling and some minor twitching in various places.
For all those years I was tested for MS and doctors also dismissed my symptoms as anxiety from stress. I also didn't think they were all related (my teeth and my vagina? come on!) So I went to a doctor in my new state... He also wanted to dismiss it as anxiety--I was so mad and frustrated ... he probably thought I was a hypocondriat since I came in saying I thought I had an issues with my thryoid (was tested for that and in the normal range but my mom has issues and I learned that everyone is different in terms of their normal number and if you're off slightly it can cause a lot of issues) or I thought it was pheocromocytoma--which is caused by a typically benign tumor on your adrenal gland. He was certain I had anxiety he wanted to prove it to me so he tested me for those and a host of other things... celiac, HIV, etc, etc.. It came back with Lyme.
he said the antibodies showed that I had just contracted it and that a few weeks of antibiotics and I was good. But inside I thought, I've had these symptoms for years--how could that be? He assured me. But I left there confused and a little worried. And then I remembered that rash--the ring worm.... I did my own research online and found out that Lyme antibodies are sometimes opposite of the normal... meaning.. the lyme parasites can hide in your body and be undetected... which is why symptoms can come and go.. and then your body builds new antibodies (that appear young) when the lyme reappears. And, only 40% of people get a rash when they contract Lyme.
So since I had Lyme for so many years it was in my central nervous system. There is a lot of controversy on chronic lyme.. infectious disease doctors use the CDC guidelines which aren't up to date with current research. But there are many doctors out there treating Lyme with the new research.. and they are still trying to understand how to get rid of it after it gets into your central nervous system.. but treatments are working for people and many people go unsymptomatic.
I will tell you that I've been doing treatment for 2 years now and I feel soo much better. Once you start treatment (usually starts with antibiotics and a lot of various antimicrobials) you feel awful and have more symptoms---this is because the antibiotics kill the parasites and they fill up your blood stream and make you worse until you can flush them out...
anyways, I don't know if this is what you have... Many people don't have all these symptoms but mine sound awful but they were really minor enough to just be annoying and not really impact my life... I still worked out and went to work.... But everyone is different with Lyme symptoms.
It's definitely something to consider when you feel like you can't figure it out.
I wish you all the best. If you do find out you have Lyme--read up and go to the Lyme blogs out there. And don't believe family practitioners and infectious disease doctors--not that they don't know things but Lyme is being researched and there is new evidence that those doctors aren't aware of or using until the evidence is more concrete. I had an infectious disease doctor tell me that people with Lyme typically also have something else--rheumatoid arthritis, or MS, or chronic fatigue (also a symptom I didn't mention), chronic pain, etc. Seriously I thought.. most Lyme patients have something else? I don't have to be a doctor to know that wasn't right. And remember, you can test negative for Lyme and still have it... so if you are still struggling to know after a negative test... just periodically get tested or see a Lyme specialist.
You just have to be your own advocate---you know your body better than anyone else so listen to your gut and don't just believe the doctor when something is telling you that you don't think that's what it is...
Anyways, I hope you all find out what you have. I was on the internet so many years ago searching for answers so I know your frustration....and I've been meaning to get on here to share my story hoping it just might help someone else. It's been too long but I'm finally doing it.
take care,
SM
Hi i just found this site after all the years of this sensation , i do hope it can be sorted ive suffered for years and the only respite has been long walks and painkillers but this cant go on ,it started in my vigina and often goes down my leg or legs .i also get fidgetty and cant sit comfortable ,i cant go to the cinema in case i get it there ,its very embarrasing ,i tried telling my sisters but they couldnt understand as it sounded a bit mental even to me so for that reason im glad im not alone ,ive decided to give up coffee and see if that helps ill let u know if ive got results cheers .
Yes im also 62 and had my hysterectomy 20 yrs ago nearly ,ive been getting these sensations for years ,i never realy enjoyed sex but on night i demanded sex from my husband and he got a big shock because he knows i dont find it interesting but i felt if i didnt have it id go mad ,it helped me and i didnt get it for years after that but when it came back it came to stay ,it goes all the way down my leg and ive got to grip my toes if i want to sit down and try to stay in one place for a while ,ive had to go for walks in all kinds of weather just to get through it and when it happens at bed time i end up taking painkillers but i dont want to ,ive tried explaining it to my sisters but i must admit it sounds a bit crazy even to me so hard to explain to anyone ,now ive decided to come off the coffee just to see , i used to blame sugar but do hope its not that as i dont drink or smoke so need something for gods sake lol! cheers.
I recently starting feeling a sensation just as you are speaking of. The only thing that has changed in my life is my diet. I am now a raw vegan (High Carb Low Fat) and I am wondering if diet change could be a cause? I am eating healthier.
Hello.....Are you still having these sensations? I have been searching for someone with the same problem for years.
I have had the same feeling for a few days now. I'm in medicine and can't figure it out! Very weird feeling but am comforted to know I'm not the only one!
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