life expectancy for graves disease
43 answers - active on Sep 4th 2021
I have a friend who suffers from graves disease, and I have never dared asking her much about her condition but I know that it is progressive and potentially life threatening. My friend is in her 30s, and I want to ask you what the average life expectancy for graves disease patients is?
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you did not even answer her question!!!!!what is the life expectancy.
Yes that is were I am and the medication has been doing damage to my liver. Only on 5 mg daily of metholzone and still out of control gave me predazone and sski drops. Now gained 5 lb in a week. I eat well and go to the gym just light work out to try to get my muscles to work as I have lost them all.
I was just diagnosed with graves, and a bit overwhelmed by the whole thing. Haven't heard anything about diet change...they just put me on two medications atentenol..., and mehizonal...not spelled correctly. I have to see an endocrinologist, but have to wait for my appointment. So I guess I wait, but was told they have never seen numbers like mine. Not sure if that's good or bad. Just felt like sharing. Tazerfly10
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I was diagnosed with Graves at age 62 last October. They put me on a beta blocker to help regulate my heart and on 20mg a day of methimazole. The first month after taking them I was fine, but then I got an itchy red bump rash and my eyes started getting really red and swelling up, filling the top and bottom eyelids with fluid. Got so bad my upper eyelids turned black and blue and really hurt.
ENT said (we don't have endos near here) to take allergy pills for it! I thought, WHAT? Just didn't make sense, why didn't he just change my meds? Lost trust with that guy. That was four months ago and I finally got an appt in late June with an endo out of town. Can't wait because my symptoms are really bad - So weak I can't climb stairs, racing heart, extreme muscle waste and weakness, oversleeping, losing weight, dizziness, feels like I'm on about a bazillion cups of coffee, mind buzzing, ears ringing, but all I can do is sit.
All my friends and all my relatives turned their back on me when diagnosed. But I do have three little dogs and my Dad did move in with me five years ago, which has been the most helpful because without him and my doctors and nurses I'd have no one to talk to. So please talk to your friend, she'll need all the help she can get for the rest of her life. And thank you for caring
Do you have graves? I was just diagnosed. But I know I've had it for a long time I kept trying to get the doctors to figure out what was wrong with me but they always wrote it off to being nothing.
I'm 35 and just got diagnosed with Graves disease I had to go through a pregnancy with this and it was extremely difficult. I know exactly how you feel, my symptoms are pretty much the same. Not sure what's going to happen next. I'm on 5 mg methimazole until they figure out what the next Avenue is.
That's sad, and I care....And so does God. I pray that he send someone special for you.
In the meantime look into going organic ...fruits and vegetables. Do juicing and try detoxing the body.
I was diagnosed 10 years ago! Had most of my thyroid taken out, except just a tiny bit left cause surgeon was afraid to get too close to the vocal cords! Had 26 nodules/ Tumors in there, one lg one interfering with my airway! Put on medication! Just found out last month 2 tumors back on the tiny bit they left behind! Tired all the time. Brittle hair, soft nails, bowel issue, heart palpitations, big women, and never did loose any weight no matter how hard I try! And believe me I have tried most of my life! Issue with depression and anxiety! Now pressure behind my one eye! But I am ok! It’s all about attitude at this point! I have wonderful life,and I try not to think about this shit condition called graves!
I am a mess with graves had 7 attacks,with the heart I weigh 9 stone from 14 stone graves has wrecked my life nearly killed me twice..years of being told rubbish from docs mental health they said..after 2 years 7 attacks nearly put me in a,coma my heart is now wrecked on beta blockers type 1diabets..i nearly carnt walk because of graves disease my last attack stopped me speaking properly..doctors love saying graves disease when in fact its,more than what they know to be honest graves disease is a doctor's way of saying they have no clue as thyroid gland is really your alarm bell for serious issues life threatening or not..its screwed my life up and its only getting worse every year
I was and ended up having to take so much medication to control mine it was going to cause liver damage if I stayed on them very long. Did radioactive iodine, then for years went threw more hell, finally found a doc that realized I could not take the synthetic synthroid and switched me to armour, he also realized that if my Tsh levels were above 1 I had hypo symptoms and if it was much below 1 I had hyperthyroid symptoms, went through many doctors before I found this doc, others told me as long as it was in the range something else was wrong, not true and they nearly killed me. Went to Kellogg eye center in Ann Arbor Michigan and had the eye surgery, absolutely awesome eye doctors there and did an awesome job on my eyes, you can also get help there with the medical bills if you qualify. Took many years and many docs but everything good now. Hope this helps you. Hang in there, don't give up.
I was on levothyroxine, changed doctors, my pharmacist told what doctor prescribed armour. New doc told me I would never get the same dosage every day on the Levo, we tried synthroid and I got to where I couldn't hardly walk, I could not take synthetic, changed to armour, much much better, now we are trying to determine where in the range I feel best at. Found a great doc.
Folks - All of this information is great. However bloodwork that shows EBV active virus is what is the root cause of most autoimmune diseases. I have Graves and at one point went into a Thyroid storm because I was misdiagnosed for AFIB exclusively - Heart doctor did not think to test my thyroid levels. Had an endocrinologist that listened but did not want to treat the virus. Was told that the damage was already done. Went to a functional medicine doctor who listened and we started to treat the virus. I saw the numbers drop. My Graves is severe but hang in there, I have seen improvements. I still see the endocrinologist but a team of doctors that you pull together is the best defense.
Thank you for this Great post!