Just starting my lax prep for my conoloscopy tomorrow. Again I've been fine since abstaining from weed about 2 and 1/2 weeks ago. I have a feeling my conolonscopy is going to come out good. I kind of what them to find something though but at the same time I know I rather they didn't. I just want to be able to smoke weed casually. Even if I can't I have high hopes in the future that weed will be legalized and its drug effects properly understood.
@jmc Everytime I recall moments when I was in pain/feeling a bit nauseous that I'd get a song stuck in my head. I was almost afraid that I was conditioning myself to feel ill when ever I thought of a song. Its just a normal thing I'd say. Just try not to use it to condition your symptoms with a song, then when you get that song you might bring about the symptoms.
good luck tomorrow, hope it all works out
Two things spring to mind that are contradictive (or are they?). I might have an eureka-moment here, so bear with me.
1) The thought loops CVS-sufferer, JMC and Isitweedornot all three talk about... This points into the direction of a psychological cause and also strengthens CVS's suspicion that CVS and CHS may be the same.
2) If this suspicion is right (as I think it is) I think you really have something here, because it opens the possibility to study CVS caused by one single substance (THC), which is not possible now because it is unknown which (or whether there is a) substance (in food) triggers an attack. Maybe it's worth an effort to study the mechanism of THC binding to the cannabinoid receptors. Not only THC does this, Anandamide does it too, which is produced by the brain but also is found in chocolate. It is seen in weed users to inhibit the motility of the intestines and can therefore start a process called SIBO. So I think it is not unlikely that in CVS the production or the intake of anandamide (which is doubtful as levels are very low in for example chocolate) is key. CB1/CB2 receptors are found throughout your nerve system. One thing I found interesting was an article that anandamide levels in schizophrenic people are found to be 8 times higher than in the average person. It is thought that the brain does this as a defence to counter psychotic symptoms.... with other words, the mind is defending itself by producing anandamide, but in the meantime the higher level of anandamice can cause gastro intestinal problems by binding to the CB receptors that are there.... I think mindbody-disorder is not misplaced here....
wow, I am a bit mindblown and still deliberating if I am not jumping to conclusions.... I am not educated enough to go deeper into this matter, but I guess a more educated person could.
Hope this help you CVS-sufferer :)
Well for some reason Reply to this post isn't working for me, strange.
Anyways. I got back from the conlonoscopy and after sleeping a bit have awaken to report all that I know as of yet.
Doc says it looks good in there but he did notice spasms while looking. He gave me some medicine that I presume is suppose to help relax. He suspects that maybe its a bacteria or a parasite (from what my dad who spoke to him said) but I just have to meet with him to see my biopsy results to be certain.
May the relief be with yall.
Good to hear. Hope those spasms will subside soon.
I am taking Metronidazole to kill off any bad bacteria I might have.
wow..... no half measures, because it also kills some good ones.... well, now you started it you must finish it I guess, as it is an anti-biotic.
Don't be spooked, I am just a little more wary about medicine than the average person. :)
wish you much progess and hope to hear from you again
Yeah I'm wary of taking it as well and I called the doctor to make sure if it was wise to start before we even get the biopsy results but he was busy and he hasn't called back.
Regardless he was the one that prescribed it to me so I assume he knows something I don't and so I'm just going to do what he asks.
Hi MegAdam, Sorry, again I think there has been some confusion. I certainly dont think that CHS and CVS are the same thing at all. You said "If our suspicion is right (as I think it is) I think you really have something here because it opens the possibility to study CVS caused by one single sunbsance THC" Please, I really ask you not to repeat this statement. It is false and doing CVS as an illness alot of harm. Our own doctors have studied this possibility due to these false allegations and have made a statement only a couple of weeks ago on the subject -
“Recently, there has been considerable controversy over the role of cannabis in these patients. While “cannabinoid hyperemesis syndrome” has been touted as a new diagnosis, there does not appear to be sufficient data to implicate marijuana as a “cause” of CVS. In a recent review of 31 published cases, the average duration of marijuana use preceding onset of vomiting was just over 10 years; the long delay in presentation of symptoms following chronic marijuana use argues against cannabis being a cause for the vomiting. Also, long-term follow-up is lacking in case series of patients with “cannabinoid hyperemesis.” The acute administration of marijuana has been shown in animal studies to stop vomiting and cannabinoid agents such as dronabinol and nabilone have been used to treat nausea and vomiting due to chemotherapy. The effects of chronic marijuana use are poorly understood and whether marijuana use unmasks CVS is unclear; further prospective studies are warranted to address this issue. We currently recommend abstinence of marijuana while treating patients with CVS as this is a risk factor for nonresponse to conventional medications.”
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There are many sufferers of CVS, children included, that do not and have never used cannabis. To state that cannabis is the sole cause of CVS is just inaccurate im afraid. CVS is not psychological either. Our doctors are pretty certain it is due to Mitochondrial disease which is linked to your genes.
I am only here to learn more about CHS not get help (thx anyway). I am already getting better after suffering 15 years with CVS by following their emperic treatment guidelines so I am not here looking to solve my problems...........theyre sorted. I know my CVS isnt caused by cannabis because I havent vomited for 6 months now and I still smoke cannabis, I just dont like the label we are being given. I appreciate your thoughts though MegAdam. It is all too easy to find correllation between posters but I know of many CVS sufferers who have thought loops too and they dont smoke cannabis.
Thanks and again I do hope you see I am posting with the best of intentions but my ultimate aim is I hope to stop people like yourself making assumptions about CVS which then lead to doctors diagnosing people based on these posts.
Eh... I think you totally misunderstood what I tried to say. You make me feel I am doing CVS-sufferers wrong by posting a theory that nowhere states that cannabis is the sole cause for CVS. I only stated (excuse me for my poor english, which might be to blame for the confusion) that if CHS is a THC-caused form of CVS, it opens the possibility that the CB-receptors (that other THC-like substances that are in food or produced by your brain bind to) have something to do with CVS. I agree though that I should have written "...MY suspicion..". My mistake, I got carried away there. It tends to happen with brilliant people ;) It was my suspicion, not yours.
Let me be totally clear here: I completely agree with you, no doubt in my mind, that 99% of the CVS-sufferers never ever touched cannabis.
I never realised though that you smoke cannabis yourself!!! Now that I know that, I can only conclude that my theory about CVS and the CB-receptors is probably false, because you probably would not have gotten better then...
I still don't rule out the possibility of a psychological cause (mindbody-symptom, MBS or TMS). Again, that is MY POORLY SUBSTANTIATED OPINION. I hope it is, as it is much easier then to get it under control, compared to the empiric treatment guidelines that I have read and that quite frankly shocked me. I read and heard numerous stories of people (some are close relatives) complaining of gastro intestinal problems that the physicians could only dampen the symptoms of and all had different opinions about. In the end it could be directly linked to (hidden) emotional pressure that the person suffered from. Once that pressure had subsided the symptoms completely dissappeared too. Mabye the g.i. problems that I suffered from when smoking cannabis were too, as it really messes up your emotions, so maybe the whole motility inhibition causing them is boloney as well... I am still in two minds about that one. You have every right though to believe what the doctors suspect to be causing CVS. I don't blame you, I just hope you understand that everyone has the right to form his own opinion and post it on a forum like this one. I agree that some people post assumptions as hard facts and convince people who do not read critically about something that is not certainty, that's why I try to use the words may, might, could etc. as often as I can.
I might not have helped you, but you are helping me in trying to understand the physical effects THC can cause with certain people. I will butt out of this CVS topic from now on (not out of this thread though). We are both convinced that the other acts with the best of intentions. I sincerely wish you good luck with your own queste.
If any doctor happens to read this, I am not medically trained on this matter, so please don't diagnose people based on the contents of my posts. ;)
@#$% stupid... that post above was mine....
lol @ the last bit :)
Thanks for your post again Meg. I think we are both on the same lines again. Yeah I think I misunderstood what you were trying to say before, thanks again for clarifying it in a sensible manner, it proves your intentions are sound anyway by not getting into an arguement, and that is really refreshing :) I really dont mind people having their own opinions at all, I certainly dont think I am right about everything, I can only go on what has worked for me as such. Like I said before what frustrates and angers me is people who appear to just copy and paste so called symptoms of CHS and when I question them they either get defensive or attack me so I get defensive lol It makes me look bad when really i am here to help and learn....certainly not to troll.
Can I just ask you what shocked you with the emperic guidelines? The actual illness itself or what we have to take to help us? (just interested really)
With regards to emotional pressure, one of the triggers for a vomiting attacks in CVS patients (young and old) is high levels of stress, anxiety (be it good or bad) and also when we are run down etc So yeah I think you are totally right in that stomach issues can be directly linked to emotional stress/pressure. Why it manifests itself so badly and at the extreme end of the scale in CVS patients causing the awful vomiting, like I said, the doctors "think" it is linked to Mitochondrial disease.
One day I am sure we will find our answers but for now yeah I think you are again right, we are talking to much about my illness and it isnt about CVS at all. As you said, I am feeling better taking the correct combination of meds (for mito incidentally) so i think we have dwelled on it long enough now ;)
Thanks again
I will also say sorry about my post if it made you feel bad. I didnt mean to but after posting on these types of threads for 6 months now I am constantly on the defensive these days. Like you said, I need to ditch some items from my ruck sack. I am trying hard, starting today lol
So yeah sorry. I dont think you intentionally meant to do or say anything. I am just very touchy about CVS. It is hard enough to get people to listen but when their are contradicting stories from people who dont want to talk, it gets oh so annoying ;)
Cheers
:) just ditch the d@mned thing for a couple of days and see how you feel then...
I was shocked to see all the different medications that you need to take. The actual condition is gruesome too ofcourse. It feels like killing a fly with a shotgun, but without further knowledge on the exact cause and how to deal with it effectively, I guess there is no other way for now.
D@mnit, my unconscious again distracted me from doing my TMS homework... :( I think I'll (try to) take a break too :)
take care!
"If there would exist such an event as an annual outdated book burning, half of the shelfs in the medical library would be empty afterwards..."
Well got back from the doctors and he said he found nothing from the conoloscopy aside from the spasms he had already told me about. So he has diagnosed me with IBS and says that it is either anxiety or viral induced. He advised me to finish taking the meds and to east small portions frequently. He prescribed to me some mild anti anxiety pills and gave me some pro-biotics and mint oil pills to take. With this combo I should get rid of any bad bacteria while supplementing for the good. Whether can ever smoke weed again is still up in the air. I've pretty much been ok since my last pain/fainting episode what 4-5 weeks ago? and have abstained from weed since then. There was an odd incident when I was eating with my family I had a slice of mushroom pizza, a bowl of pasta and a glass of sweet sweet lemonade. I began to get really hot and swept with huge sensation of discomfort. We left and I laid down at home, still don't know what caused that. Maybe the really super sweet lemonade that I downed? Or just the large portion of meal I had? I've alway had so much faith in modern medical treatment but it seems like its still severely lacking when even after seeing a doctor I can't find out what exactly is my problem. IBS seems like BS diagnoses to give to people when you don't know whats wrong with them. Sigh...