It is my understanding that thyroid cancer remains thyroid cancer regardless of where it spreads to in your body. If it originates in your thyroid and spreads to you lungs, you don't have lung cancer, you have thyroid cancer cells in your lungs.
Therefore the radioactive iodine treatment should bring the hammer down on the cancer no matter where it resides.
I am going to be doing my treatment within the next couple of months and I can hardly wait.
Keep your spirit up people.
Therefore the radioactive iodine treatment should bring the hammer down on the cancer no matter where it resides.
I am going to be doing my treatment within the next couple of months and I can hardly wait.
Keep your spirit up people.
Hello to all of you who had thryroid cancer spread to the lungs, how are you doing? What were your symptoms and what tests and treatments have the doctors performed? Thank you.
Dear Sam and TasmanBayButterfly,
My husband is 29 and we also have 2 very small children ( 20 months and 3 years) and a few weeks ago we were given the horrible news of Papillary Cancer and also that is spread to the right side lymph nodes. (So far that we know of) He is about to have a total thyroid removal, all the lymph nodes on both sides of neck removed and at least 2 calcium ducts removed. I thought all of this was a drastic measure for one operation, but if it's going to save his live or at least prolong it for a long time, then I'm all for it. I have so many other questions I would like to ask, and share feelings and thoughts with both of you. I was wondering if we could be in contact via email or facebook so we don't go through this time alone and with unanswered questions. (God love his specialist but he's a rather cut and dry and get to the point kind of man, and only answers things that are important to the step we're on :s) Thank all of you in these posts for information and concerns. For all of our cases, it has to get better! :-(
My husband is 29 and we also have 2 very small children ( 20 months and 3 years) and a few weeks ago we were given the horrible news of Papillary Cancer and also that is spread to the right side lymph nodes. (So far that we know of) He is about to have a total thyroid removal, all the lymph nodes on both sides of neck removed and at least 2 calcium ducts removed. I thought all of this was a drastic measure for one operation, but if it's going to save his live or at least prolong it for a long time, then I'm all for it. I have so many other questions I would like to ask, and share feelings and thoughts with both of you. I was wondering if we could be in contact via email or facebook so we don't go through this time alone and with unanswered questions. (God love his specialist but he's a rather cut and dry and get to the point kind of man, and only answers things that are important to the step we're on :s) Thank all of you in these posts for information and concerns. For all of our cases, it has to get better! :-(
Hello.
I am a 23 year old woman. I have been diagnosed with medullary thyroid cancer that has spread to my lungs, liver and kidneys. I have two years at most to live. For all you that have posted something on this website, I encourage you to please, get checked out 5-8 times per year. Follow up on every detail your doctor provides. And for the love of all things holy or sacred, please, never take life for granted, for when you are shown your end is when you see clearest. If something makes you happy then do it, without fear of judgement by others, and know that you will always have the support of those dealing with the same disease, or similar disease of cancer. We are all behind you. Do not feel scared or intimidated, life is too short and you are blessed with the time you have left. Never fear.
Keep your spirits high and your smiles bright.
With love and support,
Your friend.
I am a 23 year old woman. I have been diagnosed with medullary thyroid cancer that has spread to my lungs, liver and kidneys. I have two years at most to live. For all you that have posted something on this website, I encourage you to please, get checked out 5-8 times per year. Follow up on every detail your doctor provides. And for the love of all things holy or sacred, please, never take life for granted, for when you are shown your end is when you see clearest. If something makes you happy then do it, without fear of judgement by others, and know that you will always have the support of those dealing with the same disease, or similar disease of cancer. We are all behind you. Do not feel scared or intimidated, life is too short and you are blessed with the time you have left. Never fear.
Keep your spirits high and your smiles bright.
With love and support,
Your friend.
Hello,
So sorry to hear about your cancer. My husband is 67 and also has MTC and has spread to the liver. He is in Stage 1V and less then a year if they can't get it into remission. There is a study for a pill called XL184 that he hopes to be in starting next week. It is a Phase 3 study of this pill, they say that this pill will put his cancer into remission. I hope that you will look into this study. If you do read this, maybe there is a way that we can connect some how and talk.
Take care,
Diane
quote="Guest"] Hello.
I am a 23 year old woman. I have been diagnosed with medullary thyroid cancer that has spread to my lungs, liver and kidneys. I have two years at most to live. For all you that have posted something on this website, I encourage you to please, get checked out 5-8 times per year. Follow up on every detail your doctor provides. And for the love of all things holy or sacred, please, never take life for granted, for when you are shown your end is when you see clearest. If something makes you happy then do it, without fear of judgement by others, and know that you will always have the support of those dealing with the same disease, or similar disease of cancer. We are all behind you. Do not feel scared or intimidated, life is too short and you are blessed with the time you have left. Never fear.
Keep your spirits high and your smiles bright.
With love and support,
Your friend.
So sorry to hear about your cancer. My husband is 67 and also has MTC and has spread to the liver. He is in Stage 1V and less then a year if they can't get it into remission. There is a study for a pill called XL184 that he hopes to be in starting next week. It is a Phase 3 study of this pill, they say that this pill will put his cancer into remission. I hope that you will look into this study. If you do read this, maybe there is a way that we can connect some how and talk.
Take care,
Diane
quote="Guest"] Hello.
I am a 23 year old woman. I have been diagnosed with medullary thyroid cancer that has spread to my lungs, liver and kidneys. I have two years at most to live. For all you that have posted something on this website, I encourage you to please, get checked out 5-8 times per year. Follow up on every detail your doctor provides. And for the love of all things holy or sacred, please, never take life for granted, for when you are shown your end is when you see clearest. If something makes you happy then do it, without fear of judgement by others, and know that you will always have the support of those dealing with the same disease, or similar disease of cancer. We are all behind you. Do not feel scared or intimidated, life is too short and you are blessed with the time you have left. Never fear.
Keep your spirits high and your smiles bright.
With love and support,
Your friend.
Hello,
If you have medullary thyroid cancer that has spread to another organ there is a study for a pill called XL184 that may help to put this cancer into remission. The study is all over the US this is the link- clinicaltrials.gov there will be a locations to where this study is taking place. My husband is 67 he will know this week if he will be in this study.
Good luck to you all.
If you have medullary thyroid cancer that has spread to another organ there is a study for a pill called XL184 that may help to put this cancer into remission. The study is all over the US this is the link- clinicaltrials.gov there will be a locations to where this study is taking place. My husband is 67 he will know this week if he will be in this study.
Good luck to you all.
Hi,
I'm 26 now but was diagnosed with papillary thyroid cancer when I was 17. I've had 3 surgeries and 4 radioactive iodine treatments and have never been and am still not in remission. I have a 4 and a 1 year old so it's been difficult. It has also spread to my lungs and I have another tumor in my neck. I've been told I've had my max of radiation and that they don't know what to do because I can develop another type of cancer if have another treatment. My doctors always tell me that I'm a very rare case. I'm wondering if there's anyone out there who is going through or has gone through a similar case. I would really like to hear about any information you may have. In January I went to the M.D. Anderson Cancer Center in Houston which is supposed to be one of the best cancer centers in the world and I will be going again in November so we'll see what they tell me there. To everyone out there that has cancer I would just like to say keep your head up and remember to pray and everything will be much easier. Enjoy life and all those around you to the fullest. God Bless!!!
I'm 26 now but was diagnosed with papillary thyroid cancer when I was 17. I've had 3 surgeries and 4 radioactive iodine treatments and have never been and am still not in remission. I have a 4 and a 1 year old so it's been difficult. It has also spread to my lungs and I have another tumor in my neck. I've been told I've had my max of radiation and that they don't know what to do because I can develop another type of cancer if have another treatment. My doctors always tell me that I'm a very rare case. I'm wondering if there's anyone out there who is going through or has gone through a similar case. I would really like to hear about any information you may have. In January I went to the M.D. Anderson Cancer Center in Houston which is supposed to be one of the best cancer centers in the world and I will be going again in November so we'll see what they tell me there. To everyone out there that has cancer I would just like to say keep your head up and remember to pray and everything will be much easier. Enjoy life and all those around you to the fullest. God Bless!!!
Hi,
I keep reading the term "rare case" but they sound all so familiar! I was 25 when diagnosed with papillary/follicular thyroid cancer. It quickly spread to my lymph nodes and all over my lungs. I had surgery to remove the thyroid, 3 rounds of I-131. 9 months after my 3rd round of radiation did the nodules in my lungs disappear. I keep getting told that my type is the "easiest" to treat, yet only now has the radiation begun to work. And even though my tg level keeps dropping, my doctor says "a good ten years."
I'm 27, 10 years is not enough. I don't understand how she can say that without knowing how much it hurts to hear it. And I hate the fact that I struggle every single day to fight this sickness mentally and physically and she can't acknowledge that I'm doing better...can't she give me an extra year for every .1 I lower on my tg? Seriously! When did "bedside manners 101" get removed from the medical school curriculum.
I dread the day I stop making progress. I find myself getting a high from being able to see results that it makes me fight harder.
To be honest, after the first round of radiation I just kept getting bad news and more bad news, that after the 3rd round and the MRI not being able to detect the nodules, i didn't react. It was like I didn't believe it.
Can I really live 20, 30 years with "controlled" or "dormant" thyroid cancer? Is there such a thing?
I keep reading the term "rare case" but they sound all so familiar! I was 25 when diagnosed with papillary/follicular thyroid cancer. It quickly spread to my lymph nodes and all over my lungs. I had surgery to remove the thyroid, 3 rounds of I-131. 9 months after my 3rd round of radiation did the nodules in my lungs disappear. I keep getting told that my type is the "easiest" to treat, yet only now has the radiation begun to work. And even though my tg level keeps dropping, my doctor says "a good ten years."
I'm 27, 10 years is not enough. I don't understand how she can say that without knowing how much it hurts to hear it. And I hate the fact that I struggle every single day to fight this sickness mentally and physically and she can't acknowledge that I'm doing better...can't she give me an extra year for every .1 I lower on my tg? Seriously! When did "bedside manners 101" get removed from the medical school curriculum.
I dread the day I stop making progress. I find myself getting a high from being able to see results that it makes me fight harder.
To be honest, after the first round of radiation I just kept getting bad news and more bad news, that after the 3rd round and the MRI not being able to detect the nodules, i didn't react. It was like I didn't believe it.
Can I really live 20, 30 years with "controlled" or "dormant" thyroid cancer? Is there such a thing?
I am reading some of these post and am in shock. My doctor told me I had an aggressive type of papillary thyroid cancer and my bodies have built antibodies against the thyroglobin. I had a thyroidectomy in July 2006 followed by radiation tx. In March this year 2009 I found out that the cancer returned in 18 out of 19 lymph nodes. (The dr. said that is not good) After the neck dissection I had another RAI tx and learned it would be the max dose for life. Dr found couple other suspicious nodes at the beginning of November but says there is no cancer present at this time but should expect in the next 1-3 years. I search endlessly online for answers wondering where did I get this from. I have a large family with only heart problems. I have developed A-fib since all this occured. I have a 3 and 4 year old and it's hard focusing day to day. I cry because I don't want to leave my two babies behind and feel they have been robbed since birth from the full potental of what kind of mother I could have been. I don't know if there are other better doctors out there or if I should totally trust the one I have. Reading some post on here have really touched me because I've never after 3 years have found a similar story or met anyone that was going through what I am. I really felt alone. Thanks to all that post their stories and experiences, helps me get through another day although I do hate to hear that others are suffering as I am.
I had a neighbor that has died from cancer two years ago. He didn't had any family or many friends. was visiting him from time to time. He was alone. And this is the worst thing that can happen. I really wish that they find something that will treat everybody with cancer. This is awful disease. This site id great for sharing knowledge and talking to others with smiling problems. It makes thing easier.
I wish you all the best and God bless you all.
I wish you all the best and God bless you all.
This is my first time on the forum. It was interesting to read Blueru's post about disregarding Vitamin C cures. I completely disagree. My mother was riddled with cancer and I put her on a massive dose of oral Vitamin C powder along with Sellenium and cured her. I was recently diagnosed with terminal leukemia - no treatment or cures available, only pallitive care. Research Idiopathic myelofibrosis. It is as nasty as it can get. After massive doses of vitamin C (ester C) and sodium selenite, both orally, I have reversed the cancer in six week, much to the amazement of my oncologist. Yes, I have all the tests to confirm my statements, and no, I am not selling anything. Cancer doesn't have to be a death sentance. I can be contacted for the exact details of what I took, the amounts, etc. I am starting Vitamin C intravenous injections (sodium ascorbate) in the next week for three months to make sure I completely eradicate the cancer. My oncologist supports the injections, but is not allowed to administer them. Crazy as it sounds, oncologists are only allowed to Burn, Poison, or Cut (radiotherapy, chemo and surgery) or the will be deregistered. The FDA will confirm this. My wife and young child are breathing a lot easier now and so am I. My heart goes out to anyone who has to experience cancer and the treatment in a search for a cure.
Hi Sam,
I am sorry about the news you got, but just wanted you to know that as scary as it is.... you are stronger and you can beat this. Just look at your kids and you can channel the curage you need just by looking at them. That is what I did...never allowed myself to think about what if....just have to make those appointment,s follow up with the doctor and trust that they are doing the best they can.
Good luck and God bless you:)
I am sorry about the news you got, but just wanted you to know that as scary as it is.... you are stronger and you can beat this. Just look at your kids and you can channel the curage you need just by looking at them. That is what I did...never allowed myself to think about what if....just have to make those appointment,s follow up with the doctor and trust that they are doing the best they can.
Good luck and God bless you:)
strange old dear told me once the best apricot jam is made (home made of course ) by leaving the seeds in with the jame when you make it and it lt looks odd as theres white bits floating in it but hey there must have been sense there as did not question the lady so there must have been a reason and i think we now eat too much processed food and need to source our food better and keep those old recipes and start eating our ancesters food i find also that nettle tea and rooibos with lemon balm ,, yes alltogether in a cup is a great anti viral cleans the blood also have a glass of water everyday with bicarbiate of soda in carbonated water with a little orange cordial to taste its refreshing and has some good write ups for cancer treatment ,,, might be worth a look , 8-| 8-| 8-| 8-|
Hi, I have recently been diagnosed with papillary/follicular thyroid cancer. I know I have had it for atleast three years. I had complained about swollen neck and what appeared to be swollen glands to my GP during that period. She didn't take it seriously. Early last spring, I noticed a much larger mass on the right side of my neck which finally got some attention. Ultrasound showed up 7 nodules. Just had thyroid removed and am waiting to begin treatment. The pathology stated 2 nodules were cancer and the other 5 benign. The nodules were only partially encapsulated...so I am waiting for staging report to be updated after first treatment. Has anyone experienced metastasized thyroid cancer and if so, how is that treated? A little concerned because of length of time, left untreated, and I have an unexplained cough. I also would like to mention that I received six fine needle biopsies prior to surgery and they all returned beneign. So, glad I didn't trust them and went through with the surgery.
Also, would appreciate knowing how some of you handled the radioactive treatment. Were you sick? Did you completely isolate yourself from your family? Just wandering if I would feel like making a 2 hour drive afterwards to stay away from my family and others.
Also, would appreciate knowing how some of you handled the radioactive treatment. Were you sick? Did you completely isolate yourself from your family? Just wandering if I would feel like making a 2 hour drive afterwards to stay away from my family and others.
hi i am lauren and 20 years old. i was diagnosed with papillary thyroid cancer a little over a year ago. i had my whole thyroid removed and 17 lymph nodes. i have had quite a few scares with a new tumors that look "weird" as my doctor said.they all came back as nothing just muscle tissue build up on a lymph nodes. i went for my yearly scan to check to see if it has spread. so i did the low iodine diet and some form of radioactive iodine. but not the strong. it showed up in my stomach. i was wondering if anyone new the treatment for papillary thyroid cancer in the stomach. im scared and need some advice and information.
thanks so much :-)
thanks so much :-)