hey, read all this, glad im not alone! thought i was dyeing
I have had the same problem for the last three years after my back injury. I have a herniated disc at T9/T10 in the center of my back. I felt the testicular pain when this first happen but it wasnt near as bad as it is now. I have had MRI, ultrasounds, blood word, urine analysis done, and taken alot of antibiotics and nothing helps. I have done some research and found that there is a nerve at the bottom of your tail-bone that controls everything in the lower half of your body. Its called the Pudendal Nuralgia Nerve and it can be easily hurt. It is tough to get this diagnosed and there is nothing anyone can do to help. I feel the pain go through my pelvis and have thought about having my testicales removed if I knew that it would eliminate the pain. I know how all of you feel and completely understand your pain. I dont think that our Doctor's dont understand the amount pain involved and the lack of sleep we get due to the chronic pain. I hope this helps.
thanks for that information. can i ask how old is your bf, coz i have the same symptoms and am 21, i went to the urologist and the other doctor for the spine, they said that my spine on the lower abdominal had a bit dislocated and i was told to buy a certain belt and also some tablets.for the urologist he found nothing and told me that am OK.can you please update me on his progress and whether the physical therapy is working
I have similar problems. My GPs thought it was epidiymitis. Nope, a urologist today told me what it is...lower back pain. Get yourself a new mattress and a back support for when you are working on your computer etc.
The Pudendal Neuralgia nerve may be your problem. Sitting, riding a bike for any length of time can cause damage to the nerve. There is no treatment for this problem, It was suggested to me by my Dr. I understand your pain, I have to sit on accassion in my recliner with a hot pack on my testicales. I have used ice packs also and nothing helps. I have a herniated disc at T9/T10 in the center on my back and it hasnt gotten any better. I hope this helps some and I hope you feel bettter soon.
Have you looked up Pudendal Neuralgia???
While waiting for my new mattress to arrive, I am sleeping in the centre of my mattress as I never sleep there and so the springs are likely to be better than the springs on the edge of my bed. I no longer have any back pain, testicular pain or abdomen pain.
I have bought a good quality mattress with lumbar support springs.
Also, I have either IBS or diverticulitis so I have eliminated milk from my diet. I tested my allergy by drinking a litre or milk last week. I was in agony an hour later with gas and abdominal pain.
I have bought a good quality mattress with lumbar support springs.
Also, I have either IBS or diverticulitis so I have eliminated milk from my diet. I tested my allergy by drinking a litre or milk last week. I was in agony an hour later with gas and abdominal pain.
Dude, This has been my life story for the past 10 years. I am 33 y/o male and am suffering debilitating pain but every doctor except one has blown me off as some kind of pill seeker because they can't figure out what is causing my pain. The only thing setting me apart is I have a bulge in my groin that is either a swollen lymph node or inguinal hernia. I also experience the general inguinal neuropathy on the right side of my body.
I too feel that desperation as none of the doctors or specialist seem to give a squat about the miserable constant nagging intense pain I am in. I have some more diagnostics coming up this week so hopefully someone will finally see something that can get to the root of the pain but I am hopeless at this point.
I too feel that desperation as none of the doctors or specialist seem to give a squat about the miserable constant nagging intense pain I am in. I have some more diagnostics coming up this week so hopefully someone will finally see something that can get to the root of the pain but I am hopeless at this point.
cee jay wrote:
I’ve had similar symptoms of R groin and R scrotal (epididymum and vas def) pain wax and wane for over 2 years. Sore to walk/sit, burning scrotum and groin, occasions of knifing groin (or in the vas def as it exits the scrotum and refers knifing sensations in the groin). Some sensations of possible partial torsion needing to adjust. Pain also in lower back, sometimes upper thigh and lower leg (shin and ankle). No UTI’s. No lumps.
I’ve read some of the posts about epididymitis and recently found some information that could be of use to anyone who may be able to correlate. There seems to be a link between caffeine and alcohol and epididymitis. So, if anyone who drinks or has a lot of tea, coffee or caffeine-containing drinks, they could experiment by stopping these for a while and seeing what happens.
I also found a newspaper Daily Mail article by a Dr Martin Scurr on chronic pelvic pain syndrome/chronic prostatitis. He refers to Cernilton, a rye pollen extract that has given some sufferers benefit. Cernilton has some anti-inflammatory properties. Although the article detailed symptoms such as burning on urination and increased frequency – which are prostatitis symptoms, chronic pelvic pain doesn’t necessarily have those symptoms. In some literature, CP/CPPS is described as a catch all of convenience for doctors when a highly specific diagnosis can’t be made, but that the symptoms the sufferer is experiencing fall into the definition of CP/CPPS – symptoms happening within the pelvis and within a certain distance of the prostate gland – even if the prostate gland isn’t involved. The doctor suggested a 3-6 month trial of Cernilton. I found it is available from Amazon (under name Prostabrit).
Cee Jay. You say you have a bulge but you've seen doctors. Have they seen the bulge but don't think it is anything? Is the bulge itself painful? Or is the pain thro'out scrotum and groin and sometimes difficult to exactly pinpoint the pain location? Does it hurt when you sneeze/cough (they say hernias can hurt when sneezing/coughing).
Have you tried warm baths (but some say hot baths for epididymitis isn't good in case it causes damage to the tubules in the epididymum and might cause infertility). Ice pack (care not to get frost bite - use a towel between the skin and the ice pack - and only apply for a very short time, like a few seconds and give it a rest, don't let the skin freeze, and don't do this if you are desperate to go to sleep just in case you fall asleep and leave the ice applied).
Does the pain reduce by elevating the scrotum whilst standing, or when lying down and putting knees up, lifting/cupping scrotum off the thigh?
Have you tried amitriptyline at lose dose such as 10m/day - it's an antidepressant (not at that low dose) but has unexplained analgesic properties and can desensitise the nerve endings. One doctor prescribed this with paracetamol together.
Gabapentin is another medicine that has been suggested to help in calming the nerve endings.
Note, before you take any medicine mentioned, always check with a doctor who knows your medical history and any medications you might be taking (which might intere with other meds causing adverse reaction or stop being as effective).
Quote:
I can definitely relate to this thread. My life over the last year has been a nightmare of testucular, hip, lower back and upper buttock pain with the testicular pain being the worst by far. I have been to over 30 Doctors. Started just like yours - In the middle of the night, no warning, all at once. Diagnosed epititimitous twice, two different doctors, antibiotics. No change. Had full testing for STD's twice- all negative, full xray of hip- ok, testicular ultra sound- ok, mri of back- slight bulge in disk. Now I went to get an MRI of the hips and they think it is all being caused by hip retroversion. I am in physical therapy and it was better until I began doing my normal job again. This includes sitting in what shoud be a nice, comfortable office chair, but instead, it wrecks me. The sitting position is the only thing that changes as well as if I stand more. I do not know what to do now!!! I cannot work in my normal field anymore, the pain comes and goes, but seems that when I sit "wrong" , it wrecks me for days. I was hoping that therapy would fix it.
The pain usually starts in the upper buttock, you can feel when it is going to be bad. Occassionally you get a sharp "electrical" type pain in the testical that is not as bad as the regular pain, but can scare you. I also get a weird sensation feeling in the penis as well, like a pulling feeling or burning (remember I have been to multiple urologists and no problem found) that comes and goes and seems to get better when lying down. Then my hips and groin seem to tighten. I do sporadically feel a pain in the back part of my hip that comes and seems to feel like testicular/sickening pain. Sorry to ramble, but its desperation now. I am 37 years old and have had to leave my regular job for one where I just answer the phone (not move), had to move in with my parents because I cant afford my own place anymore, and cannot go out and do anything because I am too afraid of the pain. Thanks everyone.
Dude, This has been my life story for the past 10 years. I am 33 y/o male and am suffering debilitating pain but every doctor except one has blown me off as some kind of pill seeker because they can't figure out what is causing my pain. The only thing setting me apart is I have a bulge in my groin that is either a swollen lymph node or inguinal hernia. I also experience the general inguinal neuropathy on the right side of my body.
I too feel that desperation as none of the doctors or specialist seem to give a squat about the miserable constant nagging intense pain I am in. I have some more diagnostics coming up this week so hopefully someone will finally see something that can get to the root of the pain but I am hopeless at this point.
I’ve had similar symptoms of R groin and R scrotal (epididymum and vas def) pain wax and wane for over 2 years. Sore to walk/sit, burning scrotum and groin, occasions of knifing groin (or in the vas def as it exits the scrotum and refers knifing sensations in the groin). Some sensations of possible partial torsion needing to adjust. Pain also in lower back, sometimes upper thigh and lower leg (shin and ankle). No UTI’s. No lumps.
I’ve read some of the posts about epididymitis and recently found some information that could be of use to anyone who may be able to correlate. There seems to be a link between caffeine and alcohol and epididymitis. So, if anyone who drinks or has a lot of tea, coffee or caffeine-containing drinks, they could experiment by stopping these for a while and seeing what happens.
I also found a newspaper Daily Mail article by a Dr Martin Scurr on chronic pelvic pain syndrome/chronic prostatitis. He refers to Cernilton, a rye pollen extract that has given some sufferers benefit. Cernilton has some anti-inflammatory properties. Although the article detailed symptoms such as burning on urination and increased frequency – which are prostatitis symptoms, chronic pelvic pain doesn’t necessarily have those symptoms. In some literature, CP/CPPS is described as a catch all of convenience for doctors when a highly specific diagnosis can’t be made, but that the symptoms the sufferer is experiencing fall into the definition of CP/CPPS – symptoms happening within the pelvis and within a certain distance of the prostate gland – even if the prostate gland isn’t involved. The doctor suggested a 3-6 month trial of Cernilton. I found it is available from Amazon (under name Prostabrit).
Cee Jay. You say you have a bulge but you've seen doctors. Have they seen the bulge but don't think it is anything? Is the bulge itself painful? Or is the pain thro'out scrotum and groin and sometimes difficult to exactly pinpoint the pain location? Does it hurt when you sneeze/cough (they say hernias can hurt when sneezing/coughing).
Have you tried warm baths (but some say hot baths for epididymitis isn't good in case it causes damage to the tubules in the epididymum and might cause infertility). Ice pack (care not to get frost bite - use a towel between the skin and the ice pack - and only apply for a very short time, like a few seconds and give it a rest, don't let the skin freeze, and don't do this if you are desperate to go to sleep just in case you fall asleep and leave the ice applied).
Does the pain reduce by elevating the scrotum whilst standing, or when lying down and putting knees up, lifting/cupping scrotum off the thigh?
Have you tried amitriptyline at lose dose such as 10m/day - it's an antidepressant (not at that low dose) but has unexplained analgesic properties and can desensitise the nerve endings. One doctor prescribed this with paracetamol together.
Gabapentin is another medicine that has been suggested to help in calming the nerve endings.
Note, before you take any medicine mentioned, always check with a doctor who knows your medical history and any medications you might be taking (which might intere with other meds causing adverse reaction or stop being as effective).
Yes I have and there are no surgeries available here in the U.S. It is the nerve at the bottom of your tailbone that is responsible for prettymuch everything within the area of the waist. I have done some research but I am no professional. Once this nerve is damaged or inflamed there is no help anywhere. It is very hard to diagnose but with the process of elimination it can be done.
I'm experiencing those symptoms now and e er since I was 14. Its hard to believe that the doctors don't know what it is. They tell me the same stuff. I am 17 yr and sick of it. When I find out what it is ill be sure to tell you
HI Im 21 yrs old and i have had three hip surgs the last a hip replacement. A month later after the walker and i was supposed to be healed but I started to have all the pain you described. I know you put this post a long time ago but you sound like you have the same problem. I have had to quit three jobs and drop out of school
To whoever is interested, I had the same problem for years, pain in the right testical, hip and ass cheeks, Then one day i had an MRI done and it was revealed that i had 3 herniated discs in my lower back, i had an operation done called a micro disectomy, And no more pain, I had even gone so far as having biopsies done on my nuts, imagine having a chunk cut out of both your balls and finding out nothing is wrong with them, Check your back, dont torture your balls.
I have had right hip and testicle pain for 30 years and doctors kept telling me it was my back. I have had numerous back surgeries to no avail. Finally a doctor at WVU medical center determined it was my right hip all along. I am waiting to have the hip replaced. During diagnostic testing, they did a hip injection and I was 80% pain free in the hip and the TESTICLE for 5 weeks. Hip problems DO CAUSE testicle pain.
I never reply to anything. But I had this as well. look up illiogunial nerve neuropathy. My team of doctors are good but it took a bit to identify it. I can appreciate your pain and frustration. Alos had to have my gallbladder out and I am praying and hioping for less pain..just had surgery so I am not sure how much it helped yet..best of luck to you.