Hi. I hate to say "me too" but, yes, I am in Ontario and going nowhere with parathryoid diagnosis/surgery. How did you get OHIP to cover this? thanks
hi I was just wondering if you had your surgery done in Montreal. I'm also going through the same condition and i'm still awaiting to hear from a qualified surgeon...Can you please let me know how your surgery went.
Thank you and i'm anxious to hear from you
Have you been successful with getting OHIP to pay?
Had parathyroid surgery in Montreal in October 2013. Surgeon was Dr Roger Tabah at Montreal General. I had the open procedure. Went in on Thurs, was out Friday afternoon. One adenoma removed - changed my quality of life for the better 1000%! I am from Halifax, the only surgeon I could find was not interested in my case and was going to make me wait another year or two. The bone pain from the hypercalcimia was relieved INSTANTLY from the surgery. I was on 400 mg of CLELBREX per day before, and haven't had a single prescription med since. Dr Tabah is 'The Man'!.. See him soon, stop suffering. NS Healthcare paid the bill. I had to pay for my travel and hotels.
I also live in NS and I am curious if our provincial plan picked up any of the cost of your sugery in Montreal?
Hi there. I am wondering how your durgery went with dr tabah. I have been searching for a surgeon in canada/ ontario who does mirp and their far and few between. Any info would be greatly appreciated. Thank you
Where is Dr.LArian in Canada, and how can I contact him?
hi my name is susan and i am in need of parathyroid surgery...in Edmonton waiting list is over a year. mysticnght
hi my name is susan i have just been diagnosed with this disease here in Edmonton the wait is over a year. any go to private clinic in Vancouver?
I live in Ottawa and am having a hard time getting a surgeon to do the surgery to remove a parathyroid with a tumour. I have been feeling sick for 6 months -fatigue, leg weakness and pain, as well as high blood pressure.
How did you get referred to Dr Tabah and how did you get OHIP to pay?
Lynne Markell
Hi walkerd, my wife and have decided to go to Tampa. How did you make out with OHIP in terms of getting reimbursed?
Wow, awesome testimony, mass! Thank you SO much for the GREAT detail! I was wondering if you might know if Dr Larian takes (traditional part A&B) Medicare insurance? I noticed on his website that they have "opted out" of accepting insurance, but was thinking that thyroidectomy & mini-parathyroidectomy surgeries would be covered? Not sure how or where to proceed with this type questioning. You mentioned that he does the surgery at Mt Cedars Sinai, and that is why I was thinking since it is a hospital setting, they would accept the Medicare insurance. I think I have a situation similar to yours. I'm also having TMJ so bad, it's unreal! My tailbone started all the 'bone' pain first, then proceeded on upward into my upper-back (spine) and into back of neck (spine), and sometimes feels like a penetration of my chest straight back to the upper to middle part of my back. It's absolutely HORRIBLE pain I cannot even describe! My blood calcium has been elevated a few times (probably more, but I couldn't run to the doctor or ER every time to get it checked), and now the times that it is being checked, it is in the "normal" range. WTH?? My PTH has been in "normal" range too, but all over the place like 15 then 35 then 58 then back down to 45, etc. Don't know if that's any kind of a positive marker/indicator for primary hyperparathyroidism, but I also have had 3 documented Lithotripsy (kidney stone) surgeries as well. I know I've passed some stones here & there, because I know how bad that feels, trust me! My problems (that of when I started feeling painful 'symptoms') mostly started around 2009, but my first documented Lithotripsy was in 2003 (with surgeries for the same following in 2008 then again in 2010). I live in the Dallas, TX area and I've seen 2 supposedly top endos but they are truly uninformed when it comes to primary hyperparathyroidism. They do NOT think outside the box around here, so I'll have to send my records to Dr Larian. The local university medical school here is not willing to work with me on anything with this (i.e., refer me on to their expert thyroid & parathyroid surgeons), due to the fact that my serum calcium is now "normal" and PTH is "normal". I've seen 2 endos there as well, for a total of 4 incompetent endocrinologists in the area. It was also confirmed through 3 ultrasounds that I DO have thyroid nodules, and from my last sonogram in January (2015), I now have even MORE of those suckers!! Plus, I am now having trouble swallowing, throat feels real sore now, it's been hard to breathe good since Dec 2012, my belly is looking like I'm about to deliver a fat baby. I can no longer sleep on my side - either side of my body for that matter. My lumbar area hurts so bad, and burning pain in my neck & shoulders now. I've not requested a sestamibi scan as I feel the university medical school would not comply, since they think everything is all normal. They refuse to pay any lip service to the fact that I HAVE had elevated blood calcium levels, over the years, even when I tried showing them my records. Very unprofessional they are! Anyway, thanks for any and all help here. I just need positive encouragement by others such as yourself who know exactly what I am feeling right now. Thanks again for your awesome testimony and details, mass! Kind regards, ~ LilyB.
Hi Lynne, I am also from Ottawa and I had a minimally invasive parathyroidectomy in May performed by Dr. Tabah in Montreal. The surgery was successful and very quick. I had local anaesthesia with an incision of less than 1 inch. I feel much better since the operation. Your family doctor or a specialist can refer you. OHIP pays directly as per agreements with Quebec. Good luck!
Oh, I also forgot to mention that a 24-hr urine analysis was completed, and it showed my urinary calcium to be 303, out-of-range. The doctor at the medical university Rx'd me HCTZ (triamterene), a known "water pill", which I decided AGAINST taking! I feel that the hypercalciuria DOES indicate positively that I indeed have primary hyperparathyroidism. I cannot find a lot online in regards to research, but what I have found is a positive reading as indication thereof. If anyone is reading my posts, I would sure appreciate any and all feedback ASAP! Thanks! ~ LilyB
does anyone know what the average price of parathyroid surgery is in canada or mexico?