Great! Thanks for the recipes! My husband is telling me he is fed up of stews 8-| And I find them so easy plus the kids eat them so that's always handy. I told him we should cook a few dinners in advance next time he is off so we can freeze them, he said ok, let's see if he keeps to it!
How old are your kids? My little boy is 4 and my little girl is 6. She goes to school from 9am to 1.40 pm but he doesn't yet. He goes to a playgroup in the afternoon from 1 until 4.
On he pain side of things, what kind of painrelief are you on? I am trying to come of as many tablets as I can, I was on so many! The last one I am taking now is Tramadol. I am coping with pain and am addapting my day to suit fatigue and stuff but I don't look sick, and while it is a great thing to keep me going, it is also a downfall as my familly and friends often forget I am sick and can get odd with me if I say I m too tired to do something... I didn't loose my hair either so I look normal :-) well I m not going to complain about that! I just wish people would give me a break sometimes, if I can't do something I don't want to have to explain why yesterday I took my kid swimiming and today I need to sleep to recover... People!!!!!! Do you have that problem? Are people more understanding with you? And your husband and kids, how do they react?
Talk to you soon :-D
ps: nice to see I m not the only one making those yummy stews!! got to try the chilly as well!
How old are your kids? My little boy is 4 and my little girl is 6. She goes to school from 9am to 1.40 pm but he doesn't yet. He goes to a playgroup in the afternoon from 1 until 4.
On he pain side of things, what kind of painrelief are you on? I am trying to come of as many tablets as I can, I was on so many! The last one I am taking now is Tramadol. I am coping with pain and am addapting my day to suit fatigue and stuff but I don't look sick, and while it is a great thing to keep me going, it is also a downfall as my familly and friends often forget I am sick and can get odd with me if I say I m too tired to do something... I didn't loose my hair either so I look normal :-) well I m not going to complain about that! I just wish people would give me a break sometimes, if I can't do something I don't want to have to explain why yesterday I took my kid swimiming and today I need to sleep to recover... People!!!!!! Do you have that problem? Are people more understanding with you? And your husband and kids, how do they react?
Talk to you soon :-D
ps: nice to see I m not the only one making those yummy stews!! got to try the chilly as well!
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Hi Lilly! I too have that problem of not looking sick, until I have surgery or biopsies on my face and head! Also I use a cane, so when I am walking around then people notice and are more helpful! I don't know if it is others that put the pressure on us, or us trying to be super women! I really did EVERYTHING and now nothing! I have 2 boys 17 - almost 18 and 14 - almost 15! My youngest is disabled so he can't do much, my eldest is REALLY good - getting groceries etc. He can't cook though! I take about 23 pills a day! Presently on Tramacet and Hydromorph Contin - for pain and a bunch of other for a bunch of other things! 8-| Tramadol is good - I suppose very similar to Tramacet! I've been in pain for so long I think people just accept it as part of my life! How long have you been batteling this?
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I know this may be personal, and you don't have to answer, but what exactly do you and your son suffer with?
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Ask away honey! If you read most of my posts - you will KNOW EVERYTHING about me!!! LOL
My son was born with Club Feet and was severely Jaundice and almost died! While he was in the hospital he contracted a contagious bug and it was touch and go! Since then he has had 7 surgeries, has a low immune system, and arthritis, he has been diagnosed with Ehlers Danlos Syndrom Type 1 or 2, As have I and my eldest! What they didn't understand was that all 3 of us had TOTALLY different symptoms! And within the last 3 years I have had about 15 surgeries on my face head and back, I have been diagnsoed with Gorlins Syndrome and have boney growths on my spine and tail bone, and my hips, shoulders, fingers dislocate ALL the time! So now I am on a list for my province to send me out of country for a specialized genetic testing - due to the strangeness of having 2 syndromes which are NOT even close! They actually think that ALL 3 of us might just have our own Syndrome!!! We have been researched by doctors from Russia, US, Australia, Poland, India, China England, and France! They find us FASCINATING! We have about 7 specialists looking at us on a bi weekly basis! So look for us on CNN 8-| ;-) XD
My son was born with Club Feet and was severely Jaundice and almost died! While he was in the hospital he contracted a contagious bug and it was touch and go! Since then he has had 7 surgeries, has a low immune system, and arthritis, he has been diagnosed with Ehlers Danlos Syndrom Type 1 or 2, As have I and my eldest! What they didn't understand was that all 3 of us had TOTALLY different symptoms! And within the last 3 years I have had about 15 surgeries on my face head and back, I have been diagnsoed with Gorlins Syndrome and have boney growths on my spine and tail bone, and my hips, shoulders, fingers dislocate ALL the time! So now I am on a list for my province to send me out of country for a specialized genetic testing - due to the strangeness of having 2 syndromes which are NOT even close! They actually think that ALL 3 of us might just have our own Syndrome!!! We have been researched by doctors from Russia, US, Australia, Poland, India, China England, and France! They find us FASCINATING! We have about 7 specialists looking at us on a bi weekly basis! So look for us on CNN 8-| ;-) XD
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Wow! Thats a lot to go through! Would be neat if a syndrome was named after you though! Hopefully they are able to get the testing done and discover whats going on....
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Well like my boys pediatrician said "WOW you're own syndrome?! NOW try and get a date!!!" 8-| o.O XD XD My eldest said :I think I will be keeping that one quiet!!! LOL
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I just don't think it would be a good idea for my sons future romances AND for my old boyfriends to see how I look now! 8-| ;-) XD I doubt I will be on CNN - but local definitely! I am a public healthcare advocate here, so I'm ALWAYS in the news! That said I WONT be looking for media attention to our plight
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Include as much turmeric/ cayenne in your diet as you can. (Turmeric is a main seasoning in Indian food). These herbs both work as anti-inflammatories and pain relievers.
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thankyou MMG! Thus the reason why I need to use White Strips!!!! ;-) XD Seriously I even put it in stews and my chili! I LOVE curry ALL of them! I am English - so it's almost a given! Heck we even have curry sauce for our Fish and Chips! And even Curry HP sauce! LOVE IT!
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My youngest son just went through major surgery, so we are ALL home right now! I have been growing upside down peppers and tomatoes and then having salads! Also I found this other great grocery store - IGA or Sobey's they have a lot of premade fresh meals etc, and they are VERY reasonable - so I'v ebeen doing that too! I don't think I can have another made pizza to save my life! Also my father is very ill, and we have been putting our heads together to see if we can make tonnes of stuff and put it in his and my freezer! Because we are in the same boat! In my family, my father has heart failure, my sister has heart failure and 2 hip replacements and AS, it's like a circle that we can't seem to help each other! And here in Alberta they have cut SO much there is very little if no services for people who are disabled! So I am thinking of asking some friends - a dear freind of mine was a caterer and he is a wonderful chef! We have something similar to the auction place - actually a couple of places! I didn't get one due to the change in weather! But thankyou for the site!
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Wow!! well if you ever need anything I can always ship stuff. I live in Ontario so just let me know. But God bless your family! I think the Government is crazy sometimes! the things they do and the things they cut is insane! and then they add useless stuff to the community, I can never understand it! Do you guys have that new tax, or is that just in Ontario? its suppose to 'help' everyone...i'll believe it when I see it.
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