My periods were awful from the start, when I was 10/11 years old. And I've had rectal bleeding about as long as I've had my period. No rectal pain with it, and it started out as such a small amount that I dismissed it as maybe it was being transferred there by wiping, or something like that. In the last 5 years it has gotten decidedly worse, and I''ve since been diagnosed with endometriosis, have had one massive growth the size of a grapefruit removed along with what was left of my right ovary. Things got better for a while, the rectal bleeding lessened, but didn't stop. I ended up with another large, very aggressive growth on my other ovary within 6 months, and after treatments of bio-identical hormones and lots of acupuncture, the growth seems to have died. I am no longer in pain, and my body is slowly returning to a more normal shape, but I still have cyclical rectal bleeding.
When I had the laproscopy done to remove the first growth, I was told that everything else looked fine, I must just have hemorroids. When the second growth developed I went for a colonoscopy to have things checked out, and they found nothing, not even a haemorrhoid. I still have no answers and am really frustrated.
I had a colonoscopy where they didn't find anything, and they want me to have another during my period so they can figure it out. Everywhere I've read says endometriosis isn't detectable via colonoscopy, though, so I don't know what to do.
They thought I had one, but I don't.
Would you like to post this "other site" so that woman can read it? They ended up here because they didn't find the answers on "another site." And you can clearly tell from the variety of results people have received from tests they had gotten at the time of their post that there are multiple different possibilities and some women may have one issue and others a different one, but many of their Dr's don't know what it is or where to begin. Therefore there probably isn't an "exact explanation" out there as there are many POSSIBLE things that this could be and most Dr's haven't even been able to determine what condition it is on a case by case scenario, so what makes you think all these woman with varying conditions can find the "exact explanation" for their unique situation on "another site." Woman come here to try to find information from other people who have had similar symptom and similar responses from Dr's to find out if there are other options to try and investigate. Sorry, none of us have PhD's in anal/vaginal medicine and most Dr's don't have a degree in both either. Therefore we are stuck with Dr;s who look at the issue one sided or point fingers to another direction and take no responsibility because they don't know what to do. So we branch out to other woman to see what their experiences are and if there have been any Dr's out there who HAVE been able to determine a cause and SOLUTION to this concerning matter. Since most Dr's have up to the point of people's post be unsuccessful in finding the solution woman are reaching out in a format that doesn't cost them money and is still comprehensible as the overwhelming amount of medical information online about conditions this may or may not be are difficult to understand and just leave woman with more questions than when they began. Not to mention, when some people find a forum like this it can be their stepping stone to know what to look for on "another site" where they might find an exact explanation of some of the possible conditions mentioned in this forum.
I am 41 and have had rectal bleeding only with menstruation for about 10 years now, maybe longer. I had a colonoscopy in '08 and they found nothing. I have been to 5 doctors, including to GI doctors. I actually had my 2nd colonoscopy today. I am so exhausted from dealing with this problem and having no one understand and basically discount my symptoms. I have finally found a doctor who believes me and sent me for this second colonoscopy just to double check. I go back to her in a week. She will then give me her recommendation. She said she was going to do a lot of research and consult with specialists about my case. I'm worn down from this decade long experience and I just want answers and relief.