I was on EVERY kind of birth control from ages 13- 20. Including the vaginal ring, and all the pill combos. I switched around because BC produced a constant struggle with depression for me. I never found a method that helped with that...until I stopped BC completely. I am now 24 and have immediately after clearing my system of BC, the depression was significantly reduced. However, in the last year or so, I had these incredible bowel pains (shooting, stiffling screams bad) - just as you all have. However, I tried to keep a journal and see if it could be related to stress, diet, or if sex was too rough. It didnt. The pain increased, and then became a gamble of which periods it would show up- sometimes, I would get a cycle without the bowel pain- however, i must mention that I have ALWAYS had severe cramps, body ache and depression, total exhaustion since my first cycle at 13, so I was always researching just how bad pain can be when it passes "normal" for most women.
migraines have always been a problem- but i have been Caffiene and Low-starch (my triggers) since i figured that out.
So i went to my gyno. I said "look, i have a good friend with Endometriosis who is telling me I really need to consult with you about it. My periods have become debilitating and it takes a whole week out of my life, if not more- sex is SO painful b4 and after periods, etc."
I think it was a profesional pride thing that this Gyno thought - OH the audacity of me, to come in with a suggestion of diagnosis for myself. So she gave me this quiz about my BLADDER health....and i asked, Why are you giving me this quiz? I have not mentioned bladder problems. I have no painful urination or frequency. The results (which I provided I sometimes - rarely- needed to get up from sleeping to urinate at night, RARELY)- she concluded I did not have Endo, but had IC/PBS http://www.kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis_ez/.
Turns out she had just had one of her staff members trained specifically in the treatment of this, and was DISGUSTINGLY recruiting her patients with GUSTO to this woman, and I endured a humiliating and totally unnecessary test involving a flush of medicine by way of CATHETAR to "test" if i had this condition. After the test the woman said "oh you must have it, because you felt any discomfort at all with the cathetar". ARE YOU KIDDING ME? you cant send off for results? theres no REAL lab test? and you honestly think i have a CONDITION because i was UNCOMFORTABLE with a cathetarr????-
I was instructed that my "bladder problems" (i kept insisting, I HAVE NO BLADDER PAIN- its only when I have a bowel movement on period!)
- was instructed to not eat MANY things (tomatoes, avacados, chocolate, etc- things i ate plently of, and stillllll do!) and to come in frequently as needed for this cathetar treatment for a condition that is impossible to definately diagnose but conveniently makes alot of money for their clinic.
Desipcable. Horrible experience.
Needless to say, I feel violated and undiagnosed. The problems have subsided to a much more manageablel level, so I did not pursue it any further. I think this is due to my upping excersize, reducing stress and avoiding soy and hormone added dairy products.
Please dont let this happen to you.- get sucked into a medical whirlpool of hypochondria to feed the money machine.
I am relieved what I saw as symptoms or Endo have lessened (and without any treatment, just my lifestyle adjustments)- I do however live in fear that they will return.
It is ridiculous to think we need to live with this - we don't. Take the steps to cure yourself - don't wait for the medical establishment to do it for you - there is so much we can do for ourselves. You are in control of your own health. Best of luck ladies.
I've had the terrible (like you said, an '11' on a scale of 1 to 10 where 10 is the worst) lower back/bowel pain during menstruation nearly since the beginning of my menstruation at the age of 13.
Hi Ladies,
Like so many of you, I am so relieved that I am not in this boat all by myself. Misery does like company. I am 44 years old, and over the past couple of years my period -or rather- the pain that comes with it gets worse and worse each month. At my last OBGYN appointment I asked my doctor if "God was saving the best for last", and she just laughed.
Some months the veins in my legs hurt so much I cannot move (the hamstrings --- left or right, doesnt matter). For years, my bowels seem to really empty when I have my period -- like 5 BMs per day! They used to be painless ... but recently (especially today) they are so incredibly painfull! I thought I would faint. And yes, it was right up there with the pain of childbirth. The only good thing is it takes much less time to have a BM than to push a baby through your birth canal ... and at least stool is soft with no bones. Ha! Oh. And gas feels like it is riping through your body with splinters of glass.
I think it was last summer (about 6 months ago) that I noticed I had a hemorrhoid that was really pronounced when I had my period. And it calms down during the rest of the month. I assumed the pain when having a BM during my period was just from this hemorrhoid. But the pain today was so bad, I finally had to Google it, and was so amazed to find this blog!!!
Its a bit like information-overload. But at the same time, comforting to know that I am not crazy ... and other women experience the same thing. (Though I am sorry that you are also going through this).
Could it be endometriosis?
Could it be this PCS? (think vein problems in the legs!)
Could it be my toxified liver? (from sugar, coffee, alcohol - though always in moderation).
Could it be poor diet or the fact that I am 20 lbs over weight? (am trying to fix that).
Could it be hormones? (this first started after childbirth.) Oh yeah, I have 2 kids, they are 9 and 6.
Could it be from the phytoestrogens in soy products? (I developed a milk protein allergy after pregnancy, so I started soy THEN had these symptoms).
Could it be my tilted uterus? (seems to be a comon factor).
Oh yeah, and like most of you, the pain is only during day 1 or day 2 of your period.
I never ever used tampons. And it just HURST down there. I cannot imagine inserting anything inside of me during these heavy heavy cycles.
My sisters had endomitriosis. My mom and another sister had to have hysterectomies. (must ask again "why"?)
I also have keloid really really bad. (Scar tissue build up -- especially after incisions!) My knee had to be operated on twice, once after the ski accident, once to remove all the scar tissue that built up while my body attacked the pin they put in my leg. So any kind of surgery worries me.
I never had menstral pain or symptoms before pregnancy -- but I never had my period either! I was on BC pills that you took every day ... so no menstration cycle. Since having kids, I havent been on BC pills ... because I developed migraines.
What sucks is this "self diagnosis".
We are all in the same boat, and no one seemed to have brought a paddle.
And are some of you like me? You "forget" about the pain. Each month I am surprised! I can be immobilized for hours or days. But presto, as soon as its gone, I forget about it, until it happens again! (Maybe the human brain blocks it out. Like bad childhood memories!) Ha.
So, if I dont forget by Monday, I will call my doctor and see what she thinks now. I, too, will come armed with a printout of this blog! She will have to believe me.
I do have an appointment (in 4 months) at a vein specialist. (Was a 6 mnth waiting list). Maybe they will find something.
I also happen to be going to see my homeopath/accupuncturist next week! Maybe she has a wonderful cure (Chinese teas) that will help.
Oh. And I will seriously start detoxing. The book I am reading now, "Eating Alive - part II" also recommends getting your liver in good working order. If giving up coffee and sugar means no more PAIN like today, then its worth it!
Good luck to everyone out there. I hope we ALL get cured. Let's keep in touch.
xoxoxo