i had seizures while sleeping and was unconcous for 2 days!! no one can figure out whats causing it :( im so worried :/
I get random seizures at night that last about 10 seconds
each and, on rare occasion, chain together over a period of a minute or so,
lessening in intensity with each successive episode.
Frequency can range from a few occurrences a month to once every 4-6 months. I do not thrash around but
rather become stiff as a board and tremble/shake as though I am being
electrocuted. As such, I have difficulty breathing
during each episode - I can breathe
but it takes considerable concentration and effort. They generally start in
my legs and work up my body quickly to incapacitate my entirety head
to toe. the timing seems to be pretty close to an hour or hour and a half after I go to bed - right around my first REM phase so it's like being ripped into consciousnesses when they occur. because of the timing, I'm most often lying on my back. I do like to sleep on the edge of my bed so, in two cases when I was lying on my
side, the straightening of my body caused me to fall out of the bed and I could
do nothing to brace myself. I simply fell and completed the seizure on the floor
and was fully aware and embarrassed after. In fact, I am often filled with a
feeling of embarrassment afterwards despite me staying put in the bed – it just is. When the
actual seizure passes, I sometimes twitch in my legs and arms for a few seconds.
I am then wiped out. This has been going on for about 4 years now, starting at
a time when I was under severe stress – not sure if that’s the trigger but that
is when these started. Earlier history: I had a comatose concussion from
a head injury when I was 5, electrocuted myself and survived at age 12, and had a severe Kidney infection with high fever when I was
20. I have been told by doctors that all
of these can be a bases for seizures in later life??? Maybe they are right.
This said, I am a researcher and came up with a pattern and possible treatment
that may be helpful to others out there with similar un-diagnosable conditions.
The no-salt craze and push to artificially
mask or counter it in food has introduced a dramatic increase of Potassium
in our diets. Upon careful observation, I discovered a
direct correlation to my eating or drinking high-level- potassium
foods, either natural or artificially supplemented, to night
seizures. As I cannot completely avoid Potassium I have discovered a way to
help minimize the seemingly Potassium triggered seizures and it appears to
be working well so far. Symptoms before a seizure have been: very tired during the
day - more so than normal (Benadryl type feeling), moderate shortness of breath with little exertion (I’m 6’ and weigh 180lbs so weight shouldn't be an issue here),
and a dull muscle pain up my left ribs (I had my heart checked and
all tests came back stellar - of course). TREATMENT: If I take calcium, some sodium bicarbonate,
and drink a cup of Heumann Blasen und Nierentee, I have no seizures and I feel
great the next day. If I do not do this, I have a seizure and
am wiped out. My guess is that I have become hyper
sensitive to Potassium and create a degree of Hyperkalemia in my system when
I eat too much of it. I don't know the root cause yet but I am working on that. Hope this helps.
See my post from today. There may be something helpful for you. Good luck. ~ Guyver
See my new post today in this thread. There may be something that is helpful in there. Interested to know if your husbands symptoms and seizure have similarities. Good luck. ~Guyver
I started seizures at night at the age of 40. After many diagnoses and several hospitals. I was put on thyroid pills b/c I was borderline, and they have stopped completely !! I hot off the low dose thyroid medication and seizures returned....
Hi, did they test your thyroid and according to the results decided to put you on thyroid tablets
2 mths ago my 13 daughter woke up with her tongue bitten, muscle soreness and headache. All she can remember was she woke up and was stiff couldn't move. 3 weeks ago it happened again. We saw a neurologist and had an EEG done last Friday. On Saturday all hell broke loose. She woke up at 7:00am with same symptoms and blood on her pillow, then went back to sleep, and hour later and told me she had another one. At that time she started vomiting, I brought her to her Dr. and he just sent us home. We got home she fell asleep for 5 mins. This time I was with her she went into a full seizure. Followed by vomiting, memory loss. I called 911 and she was admitted into the hospital for 3 days. We get the result of the EEG done in the hospital 7/20/12. She is now on Dilantin. They also gave me clonzepam if the seizure lasts more then 5 mins. What the heck? She is sleeping during all these. Now I am sleeping with her. Am I suppose to sleep with her every night for the rest of her life? I'm scared for her and I have no idea what to do as her mother. I want them to just go away!
I'm 26 years old an just experienced my 1st seizure 4 months ago I had a car accident an the air bag did deploye on my face an head so I'm assuming it's the trauma from the accident been to the hospital they said my dilantin level was very low an RX me Dilantin 4 days into the medication I had an OD/ allergic reaction an was givin predinzone steroid 3 days taking that I had broke out in hives I have the epilepsy foundation helping me through all this I wish I never had to experience this health issues no I'm about to start a new medication called keppra so will see from there how everything goes hope all is well
You are having something different. I believe that is just a form of psycalogical sleep deprivation. Just a big fancy word for night terrors or sleep walking. I am 19, I have still seizures when i sleep, if u are up moving around it is what's explained above. but if u are in ur bed and u just wake up confused and can't seem to get control of your body or limbs you had a still night seizure.. some people don't realize that It's what's going on and they think its normal. I hope my input was helpful.
i have same condition too. first occured in feb 2008. after testing all reports come ok. again in sept 2008 from where i started anti-epileptical medicine for 3 years. After stopping the medicine after six months again it occured in this month. No report can find out the problem & i now i have to continue the medicine for lifetime
i only have seizures while i sleep and the length varies, followed by extreme headaches the next day
no it is not common.these are called noctournal seizures.can be due to epilepsy.consult your neurologist immediately.stop drinking alcohal if you are used to it.aviod remaninng hungry and sleep properly for at least 8to 9hours.
well i have seizures while i'm not sleeping they suck cause you could be doing something and you fall down and when you wake up you don't remember nothing :( but yes it very common to have them in your sleep
you brain is getting to many message at once trust me i have a had seizures since i was 2 months old and i'm 16 now!!! they suck :(
I have a seizure disorder due to head trauma. I developed seizures 2 years after head injury. I have only had grand mal seizures while sleeping. I have had partial seizures while awake and alert. I haven't had any seizures for a few years. However, I have a terrible sleep disorder and I have been having alot of intestinal issues and also Anemia. I'm in search of anyone that may possibly have any information on the effects of medication in regards to stomach issues and Anemia? I have yet to meet anyone or have the ability to talk with anyone like myself...Thank You