i have the same issue... and GOD blessed me with a child but now i'm usually always in so much pain if i ever have sex...
i donno what the problem is... but i can't continue living with either not doing such a deed or doing it and being in pain...
I am so happy to have found this thread. I just found out this week that I also have an UU (everything on the right is good, but no left side of the uterus or tube. I do have a left ovary). I'm 38 years old and my husband and I have been TTC for 26 months. Iin that time I've had three pregnancies that have all ended in miscarriages. The first was a blighted ovium, the second went to 10wks and the third was a complete surprise and the miscarriage happend within 24 hours of finding the pregnancy at 5wks. At this point I don't know if my UU was the cause of the miscarriages becuase I also have abnormal Natural Killer cells. With the last pregnancy my progesterone was only at 2.4, which was way to low to hold.
I meet with my RE this Thursday and he will explain my options. I'm praying that with his care I will be able to try one last time before settling on either surrogacy or adoption. I also go for an IVP the following week to see about my kidneys.
It is thrilling to see all of the sucesses and I pray that I will be one of them. Thank you all!
I was diagnosed with a UU with a blocked good fallopian tube in October of 2010 via laparoscopy and after a very painful HSG. My doctor told me that I would most likely never get pregnant and should consider surrogacy and/or adoption. I was heartbroken. After reading this message board I think I might go elsewhere for a second opinion. Thanks for giving me hope!
HI. I am 29 and am currently 19 weeks pregnant. I was diagnosed with UU at age 16 due to painful menses. Dx lap was done to find source of pain and found that left half of uterus was non-communicating, causing painful periods. I do not have a left ovary or fallopian tube either. They did an IVP at the time because high percent of people with mullerian anomalies have kidney anomalies as well. IVP showed Left kidney deformity that was corrected with surgery and kidney now functions at 28% :-)
I am currently seeing a regular Ob/Gyn who is not concerned with my condition at all. However, he has never seen anyone with it either. I am having TERRIBLE pain on right side at times (and I am no wussy, I can take pain!!). It wakes me out of sleep it is so bad! Also, I have the ability to doppler the heartrate at work daily. It's been running in the high 130's-150's. Since this pain has started, it's in the 120's. I have miscarried in the past and am very worried! Has anyone had severe pain during pregnancy with UU? I have not had any bleeding or other issues.
It's nice to see so many people with positive outcomes :-) Gives me hope!!
Hi fellow UUs,
I became pregnant 6 months after my hubby and I got married, and miscarried at 1 1/2 months (it was devastating). Six months later, my husband and I conceived again, and I was put on Prometrium (a progesterone hormone to help with implantation), and monitored frequently during the second trimester especially. I had a full baby album (of sonogram pics) before my daughter was even born! I was on bedrest for the first trimester, basically. Most of my second trimester I felt "normal" for being in a second trimester. Before my daughter was born, I remember thinking, how on earth will I stretch any more? My "regular uterus friends" told me I had a lot more to go, as though telling me I had no idea and my belly was going to stretch so much more. I wish they were right. I had a c-section, and that is when the doctors found out I have a U.U. That explained why my baby girl would sometimes protrude more toward the right side. That also probably explained why it felt so tight and the stretching seemed impossible toward the end of the pregnancy. I was very uncomfortable, even just sitting down, the night before Giorgiana was born. Unfortunately, my daughter only made it for 3 1/2 days because she was born at 23 weeks and 6 days, and the likihood of survival outside the womb that early-on is not good. Here's the rest of the story though and where my hubby and I are now with TTC with a U.U.:
So, My husband and I were buying our first home to accomodate our new little bundle, and I was packing boxes and trying to take it easy, but admittantly, still picking up and moving some boxes. My hubby and I signed the papers and got the key to our new home. I was so anxious to get settled in and get things ready for the arrival of our baby. However, plans got derailed. The very next day, the day we were going to start moving everything into our new home, and at 23 weeks, and 6 days pregnant, I woke up at 4:30-4:45AM with back pain, contractions, and my mucus plug was coming undone. I thought I was just having to "go to the bathroom," but fortunately, my husband knew what was going on and rushed me to the hospital 5 minutes from our house. They confirmed I was in labor, and dialating a cm or two, and sent me in an ambulance to another hospital who could accomodate everything. Unfortunately, the paramedics drove to the WRONG hospital, as I lay in the back of the ambulance having contractions and dialating further, and had to drive me clear back across town to the right hospital (which would have been only about 10 minutes tops from the first hospital orginally).
Sometime after 6:00AM, I made it to the correct hospital and onto the table at labor and delivery, and the doctors were trying to turn on the sonogram/monitor to see what position the baby was in, I was having strong contractions, and then suddenly my water broke. Within 1 1/2 to 2 hours of waking up and beginning labor, I was already about 2-3 cm, my water broke, and the baby was starting to come out breech. The doctors then rushed me into an emergency c-section (I was completely knocked out for that). Giorgiana Elizabeth Gordillo was born at 6:20AM, June 16, 2012, 1 lb 6 oz, 12.5 inches long, waving her arms and legs, arching her back, and very active; my husband said she was so active they had to restrain her little arms and legs so they could have her still as they intubated her, etc... It was then, during the c-section, that the doctors discovered I have a unicornuate uterus. Giorgiana lived to be 3 1/2 days old. It has been a painful process trying to heal and move on with our lives while remembering her. She was just so beautiful (gorgeous little face, hands, feet, just the perfect little baby on the outside) and I miss her every single day. I wonder what if she was here, every single day. She was barely 24 weeks and that is just very very early (too early) for most babies because their veins are so tiny and fragile. It was then I learned personally that doctors are not gods, and the hospital cannot fix everything; there is no substitute for the womb, unfortunately, for many babies born that early. If she would have survived, she would have likely had multiple physical and mental impediments due to brain bleeds, and wouldn't have been able to walk, talk, or much else... not much of a life. Makes me get choked up because it's something I think about when considering if my hubby and I should try again in the future to get pregnant.
Anyway, during the pregnancy, I thought it was odd she was sticking out more toward the right side. I had the kidney test done, and my kidneys are normal in number and function. I had the HSG test and there are multiple filling defects and I have no clue what that really means. My UU is to the right, functioning pretty normal so far as I know, besides the filling defects, but those may be partly from delivering prematurely...? My hubby and I are going to see a reproductive specialist in a week and a half to review results from the HSG, and likely schedule the test where a camera is put in the uterus (through the cervix--O JOY), and possibly a minor surgery to correct anything that needs to be fixed so we can try again in the future.
I hold out hope that in the future we will be able to conceive and carry closer to term, though we are weighing our risks and trying to gather as much info as possible before we proceed. It is really encouraging to hear so many UUs have healthy little ones, despite this condition. One thing my hubby and I constantly question is how a woman with a regular uterus can carry 2, 3, 4, or more kids, and the uterus expands, and why some women with unicornuate uteruses have difficulty carrying closer to term with just one baby in there. Why won't the uterus just expand??? Looking at medicines and whatever else will help the uterus muscles relax to prevent preterm labor... not looking forward to bedrest, cerclage (spelling?), prometrium again, or anything else, but after holding my own little one, I think I will wonder "what if?," if we do not try. Thanks for sharing your stories ladies! It's good to know we're not alone.
Although the UU term has not been used formally, it appears to be what I have... I am happy to first add to the successful posts as we have a very healthy and active nearly 3 year old boy. He was born just shy of 31 weeks, but was a good 4 lbs. and after a number of weeks in the NICU, has had no complications since.
I guess on the other end, trying for a second has become much more complicated. If it were just the UU, we were told we would likely have another preemie, but it would probably make it even further along than our first because my uterus had already been stretched with the first pregnancy. The problem is I've also had Ashermans (scarring of the uterus) because of an infection and retained placenta following my first delivery. The scarring is no longer noticeable after surgeries, but we have had 2 miscarriages, and have been told the combination of the already small uterus, plus the prior scarring which has likely tightened it considerably, another pregnancy may not make it very far along... So like so many others on this forum, we are now questioning whether it is worth the risk. First trimester miscarriages are difficult enough, I can only imagine ones into the second and third... Surrogacy has been recommended to us, but that seems to bring a whole other level of emotional, psychological, and financial issues?
I'm quite shocked by a lot of the responses here. At age 27 after 5 pregnancies (both ended as a result of abnormal genetic makeup) and 3 births; with perfect pregnancies, I just recently found out I have a UU. The only reason we found out is because I am attempting surrogacy and the RE wanted to make sure I have no blockage in my tubes. I have had absolutely no problems what so ever because of my UU, and we are all hoping that the RE will move forward with me because of it.
Even my OB told me there is not reason to believe this will cause any future problems for me.
Reading about all of these problems some of you ladies have had just kinda broke my heart.
I also have a UU, living in norway... At my first pregnancy that ended in c-section because of the breech position they discovered UU, i went to sceduled c-section at 38+4 weeks.. second time, I saw a high risk doc, but he had never heard of this, and he dint do much just looked at the baby had a sceduled c-section at 38+5 weeks..
This time im 12 weeks, had a US in week 5 and thats it... i called the hospital hoping to get in touch with the doc that did my c-section and see if she has any advice, i feel so lost and alone in the world:(