Hi. I'm 36 1/2 years old, with UU on my left side. I have both ovaries, but the right side is pretty much useless as I don't have a fallopian tube. My DH and I have been TTC for two years, at first on our own with monitored ovulation, and the past full year has been all about pills, shots, ultrasounds, IUI and disappointment...no, devastation. I have gotten my period right on schedule every month. We have our first appointment with an IVF clinic in two weeks, but I'm not feeling confident that it will work out. I've been told to expect to miscarry several times, and I was really hoping that if that were the case, it would have happened while insurance still covered the expense. I am angry, sad, jealous, confused and flattened by this. I'm angry at my parents for not telling me what was wrong with me when I was 13 and had surgery to deal with my debilitating cramps; I'm angry at myself for "waiting too long" to start trying (why did I even use birth control in college? Why did I go to grad school first? Why didn't I just do this on my own without waiting for Mr. Right??); I'm angry at everyone who tells me to "just stop trying" or asks "why don't you just go adopt a child?"; I'm incredibly sad every single time I see that red stain; I'm jealous of every friend who has no problem whatsoever getting pregnant and as much as I love seeing their bumps and baby albums, I really can't handle it anymore; I'm confused as to why all these pills and shots, ultrasounds and calendars result in nothing at all--aren't the doctor's supposed to know the "perfect" time to knock me up?; and I'm flattened...I can't stop crying, I can't stop asking, no yelling at, God why this is happening. It seems so unfair that my DH and I, who are educated, kind, responsible, and loving people are not allowed by the universe to have a family. It's inspiring to see all these success stories, but I am desperately scared I will never be one. I'm not ready to give up; I haven't lost hope entirely, but I just don't know how much more I have in me to continue this process.
Hi, I also have a unicornuate and have done one IUI, one IVF and one FET with no sucess. Then I switched clinics where my RE explored immume testing and discovered that I had elevated killer cells. I will be trying again next month and am very hopeful as I will be undergoing IVIG and a natural FET. I will keep you posted but maybe you should consider getting immune testing done. Message me if you want more info or check out ivf.ca there is tons of info.
I am 45 years old and have a healthy 16 year old daughter and a healthy 11 year old boy (with metopic craniosynostosis). I just found out yesterday during an endometrial ablation to end my painful periods that I have a unicornuate uterus. What a surprise! No wonder my pregnancies were difficult. Both kids sat under my ribs the whole time. My daughter was born at 39 weeks and my son at 37 weeks. I have always been told I had a small uterus or a tilted uterus up until this point, but this was a shocker. My periods have been miserable since I started. We had no trouble getting pregnant with my daughter, but had trouble with my son. My DH went to a RE and his count was very low. Considering all of these obstacles, we still had two healthy kids. Simply amazing. Never give up.
Hello All,
I am 31 years old and have been TTC for a year since March 2012. DH and I met with a Fertility Specialist this month (March 2013) and had all the testing done, SA, CD 3 blood work and ultrasound, and I had an HSG yesterday. After wiggling around on the Radiology table it was determined that I have a Unicornuate Uterus on my left side. I do have two ovaries, but only a Fallopian tube and uterus on the left. I have been looking online since I got home trying to find out my chances of conception. Have any of you had luck with Fertility Medications??? I was on Clomid early on in ttc for four months but never achieved pregnancy. I am wondering if this whole year I have just been ovulating from my right side, in which case there was no chance of conception. DH has perfect sperm, more than double the minimum for Volume/Count/Motility, and I have no other fertility related issues other than the UU. Do any of you that have conceived have any advice on what has worked for you during the ttc process and maybe what I should discuss with my RE. She was pretty shocked yesterday, she said UU is so rare that she has never actually seen one in person (luckily my RE is the one that did my HSG so I was able to discuss the results right then). Any advice or success stories or websites you've found are appreciated. Thank you so much.
I am 34 and just delivered my 2nd healthy little girl. I was born with one kidney and a unicornuate uterus. Both girls were delivered at 38 weeks and 1 day. The first was a c-section because her head was too big. My second was a repeat c-section but only because she was breech and they will not attempt a v-back when the baby is breech, after a c-section is already completed.
After my first child, we moved and I switched OBGYNs. It was not until my second delivery that I was even told about the unicornuate uterus. I still don't know why my first OB didn't tell me after delivery, but I'm sort of gad she didn't because I don't know that we would have tried again. But, I have 2 healthy (with 2 kidneys each) little girls so I have a 100% success rate with a unicornuate uterus and I wish you the best of luck! It can happen :)
Hi i just want to know has anyone has had there one working tube removed and still went through IVF and it worked????
I havd an ectopic pregnance in janurary it erupted and they had no choose but to remove the tube. Now we have just found out that i also have an unicornuate uterus witch leaves me woundering our chancers of ivf actually working. Before the ectopic pregnance we had 4 misscarrages. ?????????????????????????????????????
I know of a few different women that have a Unicornuate Uterus and have had their one good tube removed and had successful IVF. You don't need a tube for IVF, they bypass the tubes completely. Good luck!!!!
Hi I am from New Zealand. Its been interesting in hearing about your problems about having a unicornuate uterus. I was digamosed with this over 12 years ago once I had suffered 8 miscarridges and they also found out that I only had 1 tube. I found that I would get pregnant easy enough but, it would not progress past 12-13 weeks once we had heard a heartbeat. I wish that there had been this sort of information out there when we were going through this! I am now 43 so too old to relook at this now. We were told that there was nothing that we could do about it and to give up the idea of ever having a child naturally. It was extremely heartbreaking for us. We were so very lucky to have had met a wonderful lady who became a surrogate mother and gave us our precious daughter who is now 12. I hope that you have all gone on to have successful pregnanices and healthy children.8-| All the Best
My brother and I are the healthy results of a mum with a unicornuate uterus and one kidney- its an extremely rare condition, and only about 1/4000 women have it... my mum was told by doctors that she should terminate her first pregnancy- she delivered my brother pre-term at 1.3 kgs... 2 years later and against drs advice she fell pregnant with me- I was also a pre term baby with slightly better odds- I was 1.8kgs.... My mother is in great shape, and so are we. Goodluck!
Mort here,
So my FET treatment worked and I am now 13 weeks along. Please hang in there will keep you guys posted on my progress. I will be getting a cerclage next week to prevent pre-term labour due to my uu.
I totally know what you mean about waiting, and being "educated, kind, responsible, and loving people"... it is frustrating. Hugs to you!!!
I wanted to follow-up with my post from over a year ago! It turns out I had a few polyps in my uterus which makes implantation difficult. The Dr. who delivered my daughter said the placenta seemed to have been dislocated when they brought her out via c-section (or something) and my husband said the Dr. seemed confused about why; though, nothing to show for it in lab tests. Turns out the polyps in my uterus could have affected things. My fertility specialist said it is incredible we carried as long as we did. I had the polyps removed, and have been given the go ahead to start trying again. Things that make it stressful: knowing I will need to have cerclage, steroid shots, bed rest, and that my family is not anywhere near where I live, should my husband and I conceive. Also, if preterm labor occurs again, I am nervous about the physical, mental, and learning deficits my child may have (severe cerebral palsy, or unable to care for themselves); life is hard enough as it is, and to think complications from premature birth may make it harder is a lot to take on my conscience. I wonder if I am being selfish or if I am "living with no regrets" by trying. It is stressful monitoring my ovulation each month and TTC when I ovulate; it feels less sporadic and less romantic than when my husband and I were newlyweds when we monitor everything (we are taking a break this month for that reason; so we can reconnect intimately and spontaneously as we feel lead, without the stress!) The progesterone medicine they gave me gives me pregnancy symptoms, and other symptoms which is really stressful when at the end of the month there is no pregnancy. There is so much more I could share on the medicine progesterone (spelling?) alone. Anyway, I really want to just relax and enjoy life; though reading all the success stories here does give me hope; I want to be smart about my decisions and the future consequences.
thank you for these words..