Kidney Stone Info/Tricks from a guy who's passed more than 200!
269 answers - active on Feb 19th 2022
I looked through some of these posts and I see that a lot of people have kidney stone issues and have been, or are going through many of the situatios that I have. I have become a sefl-taught expert on kidney stones since I have passed over 200 in my lifetime. I have a congenital kidney disease called Medullary Sponge Kidney Disease and it causes me to make stones like most people grow fingernails.
When you pass that many stones, you get to know your body and tricks to make things less painful so I thought I'd come and tell of some experiences that might help others. In addition to passing more than 200, I've also been through 7 Lythotrypsies so I know all that as well.
I passed my first stone when I was 20. Typical severe pain in my left flank area, like a knife pushed deep and twisting. That lasted several hours and landed me in the E.R. It took me 3 weeks to pass that stone but I finally did. The pain is typically the most instense pain a man will ever go through. The way I know it's a stone is that no amount of re-positioning makes that pain better. It stays the same incredible intensity throughout the experience. For those who are not familiar with stones, the pain is caused when the stone is pushed down the ureters on the way to the bladded. Generally, you will pass a lot of blood the first few times this happens. Not usually bright red blood but very dark rust colored. I actually passed blood the day before the pain. Didn't know, at that time, what was going on but learned quick.
Over the years, I have so much scar tissue built up inside my ureters that I no longer pass any visible blood and seldom feel the stone passing down the ureters. I have even passed 8mm stones and never knew which side it came down because it didn't hurt. But that was after the first 50 or so.
I also know WHERE in the ureter the stone is by the type and location of pain. I know a stone is right near the opening to the bladder because I get this very regular spasm, about every second or so, but the pain is felt in the tip of the penis, as if the stone is actually stuck about 1/2 inch inside the urethra. But higher up the ureter the stone is, the deeper I feel the pain in my penis, ie: If the stone is 1" from the bladder, that spasming is about 1 & 1/2 inches from the tip of my penis. This is when I know I have to push a ton of water.
I generally know when the stone passes into the bladder as I get one more very intense sharp spasm... the kind that make you scream "OUCH"! Then I get ready for the next step... passing it through my penis. This is less painful than it sounds but always shocks the sh!t out of me, excuse my french. It almost always goes like this... I start peeing, and right near the end I feel the stone hit the exit of the bladder. I generally don't get the stone out then. Often it literally gets stuck in my urethra which is really painful and is noted by a sharp pain in that area when bending forward. Then I do this trick... I drink lots of water, wait until my bladder is really full and hit the bathroom. I then hold the very tip of my penis tightly so that no pee can come out. I release the stream, causing my urethra to expand (like in the cartoons when someone plugs a fire hose and a big bubble grows near the end), then I release my grip. This cause a huge, fast stream and generally pushes the trapped stone out. Often, I have to keep squeezing off the penis, over and over again while trying to keep urinating, eventually, I pass the stone. In cases where the stone is particularily large or difficult, I will fill the tub with very warm water, get in and get down on all fours, reaching back to perform the same squeezing technique. This allows you to pee underwater and point the penis straight down, an aid to getting it out of the lowest point in the bladder. Yes, I end up sitting in a bathtub full of water (and my own pee) but it works. I find a huge stone in the bottom of the tub. Then I simply shower.
Because I form stones so fast, they are generally very jagged, like quartz crystals with spikes on the ends. Stones that spend years froming are generally more round and easier to pass. But often, my stones don't show up on xray because they from so fast, they are not dense and therefore, not radio-opaque. This oftens causes me issues as new doctors think I'm faking a stone.
Another trick I use is when I have a stone stuck in my ureter for weeks or months. I go to the E.R. and have them hook me up to a normal sailine I.V. and push it wide open. This moves so much fluid through my kidneys that the stone often moves to the bladder with 2 hours. But this is not recommended for men over 50 as having that much fluid in your boday can cause a heart attack. Basically, you are simulating Congestive Heart Failure by having so much fluid going through your bloodstream. I haven't done the IV thing since I turned 50.
As to what causes my stones, they are almost always calcium-oxylate, the typical type. Drinking colas is the number one way people get these stones. But eating nuts is also not a good idea. Many people say coffee is bad (tea is very high in oxylates) but I actually drink only coffee for the past 5 years and have greatly reduced my stone issues. I do drink lots of coffee and some water too so I think the hydration alone is what's working. I spent 2 years drinking 2 bears a day... never created a stone in 2 years. But I couldn't keep my beer gut from forming. Beer is a great diuretic.
I also try to take a Flomax when I know I'm about to pass a stone. Makes it easier to release the prostate and get flow going.
These are just some of the things I've learned over the years. I hope they help someone. I came here today because I feel like I passed a stone into my bladder but have not been able to flush it out. And at least half the times I go to pee, there is nothing, no pain, no stone trying to exit the bladder near the end. This is very unusual for me. And it happened the same last month... felt I passed a stone but never did. So either I have one stuck in the bladder (which BTW happens often... the bladder is not smooth on the inside, it has lots of folds and crevices that like to hold onto stones) or I am experiencing prostate stones for the first time. I came here looking for symptoms of those as they are new to me.
Good luck to all. Drink lots of water!
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Thank you so much for this, all the medical stuff I was reading was beginning to freak me out, talking about "depending on size passing can last 22 days." With no other assistance on how to make passing easier. I literally just started feeling the pain AFTER urinating, that felt like it was migrating slightly, tonight. So thanks again for the tips, let's see if I can pass this thing.
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I have found that Newman's Own Virgin Lemonade in the refrigerator section helps with stopping the production of Kidney Stones. Since this Lemonade is all natural and no Corn Syrup, is a great thing to drink. I drink 1 gallon every 3 days and lots of water. 5 12 ounces a day.
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I have read several of your post and thought I would briefly make a suggestion based on my experiences. Like Mr. 200 I also have had many stones which typically seem to release from the kidneys after exertion or heavy lifting. Don't really get that but it has happened more than once.
I went to many urologist to find out what the cause of my calcium oriented stones might be and never got a straight answer. Found a website 20 years ago that suggested having my PTH level checked. This is the parathyroid level test that determines how your parathyroid glands are performing. Parathyroid are 4 small glands behind the the thyroid that control your calcium levels in blood. If the PTH is elevated there may be a potential problem. In my case I had a tumor on one which caused over production of calcium and thus kidney stones on a regular basis.
Please get multiple opinions before having surgery. I went in to have what appeared to be a simple surgery to remove one removed and a short 45 minute procedure. Turned out to be a 5 hour surgery and loss of all PTH activity. Now I have to take heavy doses of medication and calcium supplements to prevent serious cardiac problems. Bottom line is the cure didn't solve problem. Still get a stone or two every year or so. Calcium gets out of range occasionally when I do things I tried to do in my 20's and I where a med alert bracket to inform others I have hypoparathyroidism. Look it up. It sucks when your calcium drops to below 6.
Good luck but get informed. FYI, citric acid will help. Drink lemonade and there are gout meds that help as well.
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First of all I'd like to thank you for posting your experiences with kidney stones. I am very sorry you have to go through this on a regular basis. I am a 34 year old male and I was diagnosed with a 5mm kidney stone about a month ago. I have been researching all kinds of info on the subject since this began happening to me. About 3 days ago I found your post and started using the technique you describe. It worked like a charm. In Less than 2 days I managed to get the thing out of me. Thanks so much and I hope you can find some relief from your disease.
Thankss.... for ur help
The most interesting part for me about your post was your stone formations. Mine are the same very jagged, long, and brittle. Though no doctor has ever really told me a diagnoses. I'm going to look in to this fast stone growth by kidneys. VERY APPERCIATIVE JARED P.S. FLOMAX IS AWESOME!!!!
I thought this was very inspiring. I drank 1/2 gallon in 30 minutes. I have been drinking more water. I went to my accupuncturist today. I have been lightheaded for about five days, especially when I get up from being in bed. He mentioned that drinking a lot of water needs to be supplemented with electrolytes. I am wondering if the lightheadedness is the result of drinking a lot of water without paying attention to electrolytes.
I would really like to get rid of what feels like kidney stones. I will get more diagosis tomorrow from a kidney stone specialist via ultrasound. I would love to get rid of these stones by a more natural approach, such as recommended here.
Def a decrease in pain over the years, I have so much scar tissue at 36 I have had to have x3 urethral dilation procedures. Mine are never seen on X-ray so at first my urologist thought I was seeking pain meds, but I brought him a ziplock bag of them to a visit a couple years later he was shocked and never doubts me anymore, I usually never have too much pain until it is near the urethra and I have my 3rd one this year stuck in my bladder and trying to avoid a cysto to remove it. I am glad there are others who have so many stones I thought I was super rare until I read this post!
thankyou for the message and hope I am on my 8th stone... :) but yesterday i had a horrible pain that too in the midnight 12:40 to 4 am in the morning, with rusty urine... i had the worst time of my life...that too leaving in a foreign country and no one to care or help around, with little coverage of insurance, no pain killers around....I think yesterday night was too difficult for me...
Thanks for this helpful trick. You've really helped me. I had a large kidney stone in my bladder for two weeks and it's been really uncomfortable, as I'm sure you know. The first time I tried your cartoon garden hose trick it worked for me. Thanks for taking time to post this.
Great article, I suffer in the same way,
Exact same story here, I am a 39 year old female and passed my first one at 16. I always say I would be super rich if they were worth something. Like you said, finally.....kindred spirits!
I am a woman and I am pregnant. I recently was told I had 3 stones. A 9mm in my left kidney, a 6mm in my left ureter and a 5mm in my right ureter. I never even felt the 5 mm and I didn't feel the 6mm until the very end...thanks to my ureter being stretchy or large I guess. Although I did just start passing the 9mm and that was a doozy. She's now stuck at the bottom of the ureter and turns out she is 12 mm on one side. They are pretty much only willing to help me by putting a tube in my side and having my kidney drain for pain. For 18 weeks I'll have a tube draining pee to a bag tapped to my leg. I'm trying anything to avoid this. The stone made itself all the way to the very bottom and the pain isn't even a 7 or 8 on a scale of 10. I cannot drink acidic stuff due to intestinal problems I have and no stents or laser treatment because of the baby. Does anyone have tips and tricks to release pain/ pressure in this situation? I have t3s when it gets too bad and am watching for sign of infection. I really wanna be able to pass it without surgery, even though I probably won't but any tips at all would be lovely. Right now. I'm laying on the left side with a heating pad and the pains only up to a 3. I drink enough water to drown a whale and I drink a glass of flat ginger ale every so often or a cup of cool aid to give me sugar. I find when I eat my pain gets worse so I'm avoiding it... I know someone must understand. My first three kidney stones all formed within a month and passed. And they say that there may be more. After pregnancy it will be easier but right now options are limited. Please and thank you everyone!!
Thanks everyone for the accumulated experiences and the great tips.
I'm only going through my second stone passing, 43yo, male. The doctors have realised I have like 5 other stones in the kidneys waiting their turn, but hey, none larger than 5mm!
I just wanted to report two things for the common good:
1-I find that the culprit in dislodging the stone this time was a remedy I was prescribed for back pain, Naproxen. It also gave me a bad constipation which made me stop it. It works on the smooth muscle you see.
2-very good experience with a herbal preparation, Cystone (by Himalaya), which combines stone dissolving (litholytic) properties, with ureter relaxing and opening (sort of Flomax). For the second time this remedy has come to the rescue for me. They say it helps smooth the edges of sharper stones. Anyone here tried it?
I have passed over 250 stones myself. I started when I was 18 and I am 60 now. I went to some of the best doctors and have never found anything to prevent them. I have paid doctors thousands of dollars to tell me to drink more water. I drink tons but still get the stones. I have done many of the tricks you have used but have a stone as write this stuck in my bladder. I think this the largest one I have had. I have had many operations too. Had a harvest done 2 years ago where they removed 30 stones. Had two stints put in for a week that were almost as bad as the stones. Hope someone finds something to prevent getting these things. Have you heard anything about vitamin B6 to help prevent stones? Have you tried it yourself? No sure if it would work. Good luck.