Kidney Stone Info/Tricks from a guy who's passed more than 200!

269 answers - active on Feb 19th 2022
I looked through some of these posts and I see that a lot of people have kidney stone issues and have been, or are going through many of the situatios that I have. I have become a sefl-taught expert on kidney stones since I have passed over 200 in my lifetime. I have a congenital kidney disease called Medullary Sponge Kidney Disease and it causes me to make stones like most people grow fingernails. When you pass that many stones, you get to know your body and tricks to make things less painful so I thought I'd come and tell of some experiences that might help others. In addition to passing more than 200, I've also been through 7 Lythotrypsies so I know all that as well. I passed my first stone when I was 20. Typical severe pain in my left flank area, like a knife pushed deep and twisting. That lasted several hours and landed me in the E.R. It took me 3 weeks to pass that stone but I finally did. The pain is typically the most instense pain a man will ever go through. The way I know it's a stone is that no amount of re-positioning makes that pain better. It stays the same incredible intensity throughout the experience. For those who are not familiar with stones, the pain is caused when the stone is pushed down the ureters on the way to the bladded. Generally, you will pass a lot of blood the first few times this happens. Not usually bright red blood but very dark rust colored. I actually passed blood the day before the pain. Didn't know, at that time, what was going on but learned quick. Over the years, I have so much scar tissue built up inside my ureters that I no longer pass any visible blood and seldom feel the stone passing down the ureters. I have even passed 8mm stones and never knew which side it came down because it didn't hurt. But that was after the first 50 or so. I also know WHERE in the ureter the stone is by the type and location of pain. I know a stone is right near the opening to the bladder because I get this very regular spasm, about every second or so, but the pain is felt in the tip of the penis, as if the stone is actually stuck about 1/2 inch inside the urethra. But higher up the ureter the stone is, the deeper I feel the pain in my penis, ie: If the stone is 1" from the bladder, that spasming is about 1 & 1/2 inches from the tip of my penis. This is when I know I have to push a ton of water. I generally know when the stone passes into the bladder as I get one more very intense sharp spasm... the kind that make you scream "OUCH"! Then I get ready for the next step... passing it through my penis. This is less painful than it sounds but always shocks the sh!t out of me, excuse my french. It almost always goes like this... I start peeing, and right near the end I feel the stone hit the exit of the bladder. I generally don't get the stone out then. Often it literally gets stuck in my urethra which is really painful and is noted by a sharp pain in that area when bending forward. Then I do this trick... I drink lots of water, wait until my bladder is really full and hit the bathroom. I then hold the very tip of my penis tightly so that no pee can come out. I release the stream, causing my urethra to expand (like in the cartoons when someone plugs a fire hose and a big bubble grows near the end), then I release my grip. This cause a huge, fast stream and generally pushes the trapped stone out. Often, I have to keep squeezing off the penis, over and over again while trying to keep urinating, eventually, I pass the stone. In cases where the stone is particularily large or difficult, I will fill the tub with very warm water, get in and get down on all fours, reaching back to perform the same squeezing technique. This allows you to pee underwater and point the penis straight down, an aid to getting it out of the lowest point in the bladder. Yes, I end up sitting in a bathtub full of water (and my own pee) but it works. I find a huge stone in the bottom of the tub. Then I simply shower. Because I form stones so fast, they are generally very jagged, like quartz crystals with spikes on the ends. Stones that spend years froming are generally more round and easier to pass. But often, my stones don't show up on xray because they from so fast, they are not dense and therefore, not radio-opaque. This oftens causes me issues as new doctors think I'm faking a stone. Another trick I use is when I have a stone stuck in my ureter for weeks or months. I go to the E.R. and have them hook me up to a normal sailine I.V. and push it wide open. This moves so much fluid through my kidneys that the stone often moves to the bladder with 2 hours. But this is not recommended for men over 50 as having that much fluid in your boday can cause a heart attack. Basically, you are simulating Congestive Heart Failure by having so much fluid going through your bloodstream. I haven't done the IV thing since I turned 50. As to what causes my stones, they are almost always calcium-oxylate, the typical type. Drinking colas is the number one way people get these stones. But eating nuts is also not a good idea. Many people say coffee is bad (tea is very high in oxylates) but I actually drink only coffee for the past 5 years and have greatly reduced my stone issues. I do drink lots of coffee and some water too so I think the hydration alone is what's working. I spent 2 years drinking 2 bears a day... never created a stone in 2 years. But I couldn't keep my beer gut from forming. Beer is a great diuretic. I also try to take a Flomax when I know I'm about to pass a stone. Makes it easier to release the prostate and get flow going. These are just some of the things I've learned over the years. I hope they help someone. I came here today because I feel like I passed a stone into my bladder but have not been able to flush it out. And at least half the times I go to pee, there is nothing, no pain, no stone trying to exit the bladder near the end. This is very unusual for me. And it happened the same last month... felt I passed a stone but never did. So either I have one stuck in the bladder (which BTW happens often... the bladder is not smooth on the inside, it has lots of folds and crevices that like to hold onto stones) or I am experiencing prostate stones for the first time. I came here looking for symptoms of those as they are new to me. Good luck to all. Drink lots of water!
Iliriana Bisha Tagani, MD answered this in Kidney Stones: What Do You Need To Know? - READ MORE
i am a 53 year old female who has had 24 years of stones. I too have passed hundreds over the years. I am having a not so good day so i thought i would come and look around to see if there are other sufferes out there. I had surgery 3 weeks ago for the i do not know how many times on the left side and my side still hurts, i have like a tooth ache throb, i do not sleep well as the discomfort wakes me up. I do not know what to do anymore I hate my life.
Sorry to hear of your, as guess, chronic condition. I had no idea so many people, of all ages, endure this problem. I'm a 72 year old guy, and now consider myself lucky. I had one big one 40 years ago. Had to be surgically removed. Then I had one five years ago that I passed. Now, oddly....from mid December to just a week or two ago, I passed 19 stones. They varied in size. Two maybe 4 to 5 mm, another five or so in the 2 mm range and the rest, pretty small. Hopefully that's it for this year, but who knows. Funny...you said left side, all my problems are on the right side. Hopefully your pain is just temporary...from the surgery and the pain med's will allow you to sleep. Good luck and try not to let it wear you down.........
Im wondering if I have kidney stones. Im female, 25 years old and about three/four years ago I started getting cramps which left me sweating and in agony. intense exercise seemed to bring it on but it was sporadic and i attributed the cramps to being unfit and IBS. I always instinctively sat on the toilet during these attacks and the longest one has lasted is probably an hour, shortest 5-10 minutes. afterwards i feel exhausted and notice blood in the toilet. The cramps feel intense, lower abdo/groin area I find it impossible to concentrate on anything else and want to cry out with the pain (but never do as am usually in the gym!) after a few minutes I tend to get gaps between the pain of between 1 and 5 seconds. I often feel the need to urinate a lot when in fact i only pass a small amount.  I also often notice blood in my underwear when I go to the toilet as the cramps are starting and thought this was coming from the vagina but after scans and examinations showed no problems I'm beginning to wonder if the blood is from my urethra.  Does this sound like kidney stones? could i have been passing stones and not realising? Has anyone noticed that exercise can dislodge a stone or cause them to pass one/cause the cramps to start? Sorry for the questions!  Ashley
Wow, this worked for me too! I was sooo tired of the pain meds, been on them for 10 days after lithotrypsy and x-ray showed the fragments stuck exiting bladder. 2 trips to the bathroom using your technique and I have been passing fragments all day now and feeling better.
So glad to have found this thread! I have the same disease in both kidneys (MSK) and have been taking hydrochlorathyzide for years for it. Anyone else? Can't tell if it has helped or not. First stone at 16, now at age 30, I've passed over 50. Has anyone had any issues from all the scar tissue that develops? Anyone see a nephrologist or just urologists?
Hi everyone, I am a 27 year old woman, with my first kidney stone (and hopefully my last!!). I was in agony on Monday night, went to the ER, was admitted for ovarian cysts, tested the next day, no cysts, so they discharged me. I still had mild pain, so I went to my GP as I suspected appendicitis. She sent me for a CT, where they picked up a 4mm stone in the juncture between my kidney and ureter. The urologist admitted me to hospital again, insisting it won't move and I need a stent put in. But I have not been in pain since yesterday morning, so I asked him to discharge me so that I can try to pass the stone by myself. I really want to do everything in my power to avoid a stent, so please I need advice, how can I pass this bugger, given that it still has a long way to go? The urologist gave me Flomax and Buscopan, and I have schedule 5 pain meds. Thanks in advance!
Thanks for that info every one, much more helpfull than a doctor or nurse who dont seem to tell of soultions to passing stones, i was in hosbitle then out, they just gave me some meds like pain killers and some to relax my tubes not saying much how to help them pass, its been in my body now for 4 days and realy annoying i know ive caused this myself because i drink pints of coke, sweet teas, and alot of oj, would never consider water as its dull and flavourus but after that unbelivable pain i think water will be my new best friend :). Good luck to every one, theres always light at the end of the tunnel.
There is a medicine that is available only in France and Tunisia. It is called Spasfon-lyoc. It should put an end to your kidney stone pain. If you know someone who is going to France, ask him to bring you some of these tablets. They are sold without prescription in every French pharmacy, and a box of thirty costs about four dollars.
I am 54 yrs old, and I have had 3 lipsotripies, yet I have a stone stuck in my uretha right now, and I want to know how I can get the stone to go towards my bladder so when I go to the hospital this Friday to have yet another lipotripsie on my OTHER kidney, the Doctor can get close enough to grab the one that is stuck. I am a female. Any suggestions?? I also have a stent in now. Please help
These are grewat tips. Thank god im not the only one who bears this pain. i have two stones stuck in my ureter. and Echoe shwows signs of swelling between both stones. and it hurts like screaming. im on Buscopan musscle relaxing meds. and drink lots of herbs and medicine to let the stone disolve. i hope its not rock solid. but thanks for sharing.:)
I am female just diagnosed after 4 weeks of excruciating pain on left flank through groin with a 5mm stone.  My options seem to be try to let it pass, ureteroscope or lithotripsy.  I saw Mayo studies reveal lithotripsy may result in diabetes or hypertension in later years.  My instinct is to go with the ureteroscope and just get it out.  I appreciate any advice from those who have been through the protocols.  Thanks so much!
None of your options are fun, but you have to choose one. Depending on your level of pain and the frequency of pain you could give it a bit more time...then I would opt for the ureteroscope. They seem to come and go, at least for me. I went five years without one, then in December of 2012, I passed 19 stones of various sizes. Mostly small, but about eight were in the 3mm to 5mm range. Had a big one surgically removed many moons ago. As you can see by this web site, you are not alone. Good luck to you....you just have to "grit" it out.............
I've read every kidney stone blog and post and THIS ONE helped me the most, by far. I am a 59 year-old male who is exceptionally healthy. Six months ago I started experiencing a dull, lower left back pain. One day after golfing I was very dehydrated and urinated blood. I went to the urologist and he diagnosed me with benign prostatic hyperplasia (BPH - prostrate enlargement) and prescribed alfuzosin. This helped to stop the post-urination drip that had become quite embarrassing. Several weeks later I traveled to my other home in Italy and started feeling ill. Although my bowel movements were regular I felt discomfort in my lower abdomen as well as constipated and no amount of evacuation or urination would relieve the feeling of obstruction. One night I started to become nauseous. The pain in my lower left back increased and started radiating into my groin. I felt ill. Very ill. I ran to the bathroom hoping to move my bowels to alleviate the pain. However, the pain intensified and began coming in waves. I have a very high threshold for pain. I have not vomited in over 40 years. But the onslaught of pain attacks increased to the point I was writhing on the bed saying to myself, "pain is like pleasure, it doesn't last forever." I started to vomit uncontrollably for hours. I researched the internet and quickly learned I was most likely experiencing a kidney stone moving through the ureter. I consumed 4 liters of water and couldn't pass one drop of urine. The pain was absolutely excruciating. I chewed up painkillers but vomited them up before I could digest them. Some 5 hours later I was able to produce a couple tablespoons of urine - very dark, cloudy with chunks of what appear to be flesh dispersed throughout. Then the urine started to flow and become clearer with each successive passing. The pain ceased. When I got home I went to the mongoloid posing as a urologist. He performed an ultrasound and they found an 8 mm stone in my distal (lower) ureter. I had two options - surgery or man-up and try to pass it like a natural man. I chose the latter. To be safe he sent me to a medical imaging lab for xrays. The lab xrays came back negative and said the stone was gone. B.S.! Several months later the familiar symptoms started showing up. Abdominal discomfort, the feeling of constipation or blockage, mild pain in the back - then all escalating into a full blow, I WANT TO DIE assault against every sense in my body. But this time I was prepared. When the pain and nausea increased I quickly chewed up 150 mg of codeine phosphate and 400 mg of Flomax and consuming copious amounts (4 liters) of water. The attack lasted for only 2 hours. It stopped when I was able to pass some urine. Assuming the stone had passed into the bladder I stayed on the Flomax/water regimen for several more days where today, of all days, I felt a strange sensation during my piss and low and behold, I gave birth to a jagged stone just shy of 10 mm. I picked it out of the toilet with my bare hands. MOOVYZ, Flowmax and tons of water worked for me! And the doctors? Sorry but unless your urine is foul and cloudy and no sign of infection, they really can't do much for you other than pay meds or Flomax scripts. I was in Italy where I could get Flomax over the counter. Today is a happy day. My stone is in a plastic baggy and I can't wait to get back home and give it to my physician and tell him his medical imaging company should stick to landscaping.
I am presently going through this and went to a urologist for a second opinion, who sent me to get a CT scan. They found a 4 mm stone. If you can get to a urologist, go.
Hi, I have also passed hundreds of stones and had more than one hundred procedures to remove stubborn stones. I have also delivered three sons naturally and currently have RA and fibromyalgia and disc problems in my back and suffer from diverticulitis. I am no longer able to separate "pain" into the correct category. I almost died recently because of a blocked kidney, which after 3 months was infected and perilously near to bursting. The only reason that I went to the ER was because breathing was causing pressure on the kidney and breathing seemed to be of paramount importance. I still feel all of these pains but I can no longer differentiate a little pain (fibromyalgia) from a big pain (my kidney was dying). Please go to your ER for ALL of your pain because sometimes you may be in serious trouble. I have not become "used to pain" but I ignore it far too often. Please do not make the same mistake! Best luck to all who suffer any kind of pain. Sufferer for 34 years!
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