blaberwabe wrote:
Oh, I feel for you. I had my GB out Jan 5th 10. It was an easy surgery, keyhole and for the most part I was uncomfortable but not in severe pain or anything afterward, no pain meds needed for it what so ever. But...the nausea and abdominal pain and acidy feeling is constant. I have had days where I felt pretty good, usually after fasting on water and broth for a week to 10 days. I have lost 30 pounds but gained 10 back so far. I recently, last Thursday, got a bladder/kidney infection and I can no longer tolerate any antibiotics. I never had major issues prior to surgery. The side effects hit me with Macrobid, Bactrim and Cipro. So bad that they have upset my whole body and with toppled on with the pain and nausea that I have already has me contemplating suicide. I am not kidding. My husband is heading into the Navy in 4 months and I will be alone with this. I don't know if I can function on my own. There are days, a few times a week had passed before I was able to take a shower. Gross, I know. But seriously I have been so debilated by this "abdominal migraine". I was told I have this too. It's frustrating to feel like this. I can't hold a job. My marriage is suffering. I'm terrified and suicidal. I hate this. I needed the to have the GB removed, I had 108 stones. All of my tests come back normal as well. I am supposed to have an endoscopy done next week. Was gonna do it last week but was so sick I couldn't get to the appt. We live 20 minutes from our hospital, but a 20 minute ride is excrutiating most times. The latest malady with the bladder infection is killing me too. So I am just getting sicker and sicker. I know your pain and frustration. My doc said that if the Endo shows nothing wrong, than she will approve me for disability. I have no option of going back to work if I am going to be sick like this. I'm 32 and should be in the prime of my life. Oh, I was diagnosed with Poly Cystic Ovarian Syndrome and fatty Liver disease as well. So...really if I got hit by a truck and kicked the bucket, I would be ok with it. I can't have kids, I can't eat, sleep, sit, lay down, walk or do anything. My back hurts where the GB was all of the time. But there is something in me that tells me I am not done yet and that I have to get through this, if not for me, for my husband. I cant bare making him a widow at 28 yrs old. This is a nightmare and I hope you find some relief soon. There has to be something we can do. My prayers are with you.
Bella
ddmac wrote:
I am 10 days post gall bladder surgery. I was doing great until the 4th day when I awoke with severe nausea and heartburn. This has not gotten any better, and now I have bouts of lightheadedness. This could be due to not eating but is a bit scary. I am taking Prilosec and Carafate which is barely managing the problem. Tomorrow I am scheduled for an EGD. I have been searching the internet to see if this is a more common problem than reported. I was told by my friends, surgeon, and GI that this surgery was a "piece of cake" and that I would be great in a week. I am worse now than ever. Anyone else suffering? Anyone have this in the beginning? Anyone have this eventually resolve? I keep hoping that my digestive system is just adjusting but I have my doubts after reading posts from others.
I had mine out jan 25th, 2010 and its been months since ive been able to go home. i stay in a hotel across from duke, as i end up at the er there or at chapel hill almost every other day...sometimes evey day or even twice a day. its flared up my crohns disease a couple times too. i get nausea constantly and am always dizzy or feeling like im going to pass out or just die. ive had an ultrasound via an endoscope, catscan, 2 colonoscopies and another regular endoscope, to check for ulcers, gerd, anything...
all my labs are always good they say, although i have had many lipase levels around 300-500. my pancreas was checked out with that endoscopic ultrasound and found to be fine. im tag-teaming hospitals, getting a second opinion, but mostly, i wait for these far off appts with these specialist gi docs, only to be temporarily maintained at the er with zofran for nausea and or dilaudid for pain...sometimes morephine.
my husband comes up often, but we'll lose our insurance if he loses his job, so i have to take care of myself solo and its been scary. when the dizziness comes or the pressure/twisting pain, straight through to my back come, its impossible to sleep lying down and i find it scary to sleep as sometimes (a lot) i wonder if i will wake up...its that bad. some docs blow me off now as i have seen all the er docs in both facilites so much, that i know them all and the nurses and the valets...its just unbelievable that in this country we're being dealt with this way.
Ive even had a couple er docs tell me theres nothing they can do for me, in a mean way, and that i "cant be helped", as i come there so often.
ive been given a halter monitor for my heart/chest pain. i truly think it could be an adhesion, maybe kinking up my intestine as when i get the crohns flares, the pain in the middle area lightens or disappears...maybe because nothing is going through there as its blocked down further in the intestine.
but the middle area of pain and nausea, right between the ribs and slightly under the ribs is the cause of my crohns flares. i can tell it is. the bile-diarrhea makes me so incredibly sick and ive had it everyday for the most part. basically, i wake up, struggle to the hotel restaurant for food down the hall from my room, eat, get sick, lay there in bed for hours and repeat that senerio all day long. walking to my docs office is a huge struggle. i drive, feeling like im passing out, to her ofc across the street where i make it walking about 50yards or so, usually ending up getting someone from another clinic to call for me a wheelchair. i try to walk a little everyday to keep from getting bloodclots, but its a major feat and i hurry back to my room feeling like i should be calling an ambulance.
no one is taking this seriously and im astonished, as is everyone i know. there is something horrific going on in my stomach and no one cares.
ive been told its ABDOMINAL MIGRANE, a term they say is very real and i get scolded for not trying "CYMBALTA" AN ANTIDEPRESSANT. i even have been made to talk to a psychiatrist in the er to make sure im not suffering from depression to which they found i was behaving normaly for someone in pain who was recieving no answers.
the catscan i had was a while ago and ive been told they dont want me subjected to radiation as i could get cancer in ten yrs but i dont care about ten yrs...ive lost 30lbs and i wonder if i would make it ten yrs like this.
ive also been asked why im staying here in town (Im from a rural area and it takes 3 hrs to get here) and what hotel im staying in and the most bizarre insulting questions about my home life. its so degrading and it infuriates me.
when i started getting sick in mid december...major diarrhea (more than with my usual crohns diarrhea) and so sick i could move out of bed hardly, i came to a surgeon at chapel hill who had done a great job on my crohns, and i asked him to help me as my little hospital told me i had pancreatitus and needed my gallbladder out, he said he'd take it out in a few days. i asked him if he was sure it was the gallbladder and he said he would take it out either way and i didnt need it anyway and that if the problem still presented itself late, that we would tackle that issue then...well, its then and its been then for months and im going broke trying to survive this and still no one is offering a solution other than telling me im hypersensative to pain and i need cymbalta to shut down the pain my nerves are sending out...
i want a diagnosis that has evidence.
i dont believe that is causing nausea and dizziness and pain and twisting wrenching in my gut. ive read so much stuff online and there are probably thousands of us, and to just blow us off as THE UNLUCKY ONES...leaving our livesin ruins, is cruel and inhumane.
i pray for us and ask for all to pray for us and to pray for our doctors that they find compassion and wisdom in treating or healing us. but mostly i pray for immediate responses to our plea.
everyday is groundhog day for me, as im sure it is for you.
im surrounded by, supposedly, the best and brightest and told if there were something wrong, theyd know what it was....
Oh, I feel for you. I had my GB out Jan 5th 10. It was an easy surgery, keyhole and for the most part I was uncomfortable but not in severe pain or anything afterward, no pain meds needed for it what so ever. But...the nausea and abdominal pain and acidy feeling is constant. I have had days where I felt pretty good, usually after fasting on water and broth for a week to 10 days. I have lost 30 pounds but gained 10 back so far. I recently, last Thursday, got a bladder/kidney infection and I can no longer tolerate any antibiotics. I never had major issues prior to surgery. The side effects hit me with Macrobid, Bactrim and Cipro. So bad that they have upset my whole body and with toppled on with the pain and nausea that I have already has me contemplating suicide. I am not kidding. My husband is heading into the Navy in 4 months and I will be alone with this. I don't know if I can function on my own. There are days, a few times a week had passed before I was able to take a shower. Gross, I know. But seriously I have been so debilated by this "abdominal migraine". I was told I have this too. It's frustrating to feel like this. I can't hold a job. My marriage is suffering. I'm terrified and suicidal. I hate this. I needed the to have the GB removed, I had 108 stones. All of my tests come back normal as well. I am supposed to have an endoscopy done next week. Was gonna do it last week but was so sick I couldn't get to the appt. We live 20 minutes from our hospital, but a 20 minute ride is excrutiating most times. The latest malady with the bladder infection is killing me too. So I am just getting sicker and sicker. I know your pain and frustration. My doc said that if the Endo shows nothing wrong, than she will approve me for disability. I have no option of going back to work if I am going to be sick like this. I'm 32 and should be in the prime of my life. Oh, I was diagnosed with Poly Cystic Ovarian Syndrome and fatty Liver disease as well. So...really if I got hit by a truck and kicked the bucket, I would be ok with it. I can't have kids, I can't eat, sleep, sit, lay down, walk or do anything. My back hurts where the GB was all of the time. But there is something in me that tells me I am not done yet and that I have to get through this, if not for me, for my husband. I cant bare making him a widow at 28 yrs old. This is a nightmare and I hope you find some relief soon. There has to be something we can do. My prayers are with you.
Bella
well, kiddo, first let's realize that the docs haven't done all that can be done and we need to be our own best advocate. we need to go in fighting mad and demand, without leaving uuntil they help us...real help though...not just slapping a bandaid on us to get us "comfortable" for a few hours.
second, and most importantly, suicide is NEVER EVER the answer to anything. Pain makes us feel desperate, i know, but we have to get them to find the cause instead of allowing them to just disguise the symptoms.
i pray a lot and i do know there is a possibility of my not pulling through this too, but ive seen miracles in my life before and GOD is a lving and helpful GOD.
there is always a reason for everything that happens to us in this short life in these very fragile bodies. i am a firm christian and know that this life here that we know is just a blip when compared to what HE has for us. i also know it wont be long before he comes to stop all the misery in this world.
our food is genetically modified, our planet is contaminated...all the big greedy corporations have thrown us to the wolves, and they will answer to HIM soon, but GOD says to not disease ourselves with anxiety. stress kills. we have to give it to HIM...give HIM everything and HE will handle it. HE is in control and we only fool ourselves into thinking that we are.
i personally think that attitude slaps HIM in the face, as if to say HE doesn't have the ability or desire to take care of us. so give it to HIM. HE asks us to.
as far as your health and being alone through this...do anything you can to prep for living with someone until they get you squared away. do not do what im doing. its terrifying.
its also not advisable because i dont think its safe. lots of times i will be discharged from the hospital er all loaded up on pain meds and i cant even hardly drive let alone get out of the car to crawl to my hotel room. then im lying there, freaking all night long.
if its not the pain keeping me up, its the pressure under the ribs and the nausea or the racing heart (dont know if its from my worrying or from my body throwing a fit) but ...well, being alone is a big NO NO.
you also need support mentally from anyone who can aid you. this is a horrific catastrophe (as if theres another kind) and im so in shock that a frontline or cbs special hasnt been done on this problem because NO ONE EVER WARNS YOU ABOUT IT....NO ONE EVER SAID A DARN WORD ABOUT THE POSSIBILITY OF THIS HAPPENING AND ITS A WIDESPREAD THING FROM ALL THE POSTS ON ALL THE MEDICAL WEBSITES IVE READ.
i wanna give you a cyber hug and tell you its all going to be alright, but no one knows anything about this, from what ive read. im in unchartered territory...we all are. heck, maybe the doctors are so proud that they cant admit that they are too.
i just want prompt care, honesty and compassionate care.
you do worry me as i know i probably could have slipped the other way mentally on this too, but im the only one who can fight this fight...just like you are. no one will be able to demonstrate to the docs how crucial and critical you are except YOU.
so call an ambulance, get to the hospital and demand!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
youre much too young to be contemplating ending your life, especially when there are so many options they havent even looked into. you need to refuse to leave, like im gonna do tomorrow, until they find out what is causing the problem. antidepressants cause more problems...just like that cipro/levaquin does.
i was even thinking about catching a plane to johns hopkins should i hit a brick wall here tomorrow.
id have to be sedated for the trip because i dont have any energy and the trama of traveling is a huge issue. i know im not familiar with your financial situation, but getting to a great hospital seems to be a common thread in the internet postings ive seen.
its a last ditch effort im holding on to.
if your spouse is already in the military, you should call your senator and tell them of the urgency!!!!!!!!!
youd be surprised at how quickly things move when the heat is on.
keep in touch with me. ill post back as often as i can too. we could be like penpals. its helpful bouncing ideas and experiences off of each other because we know first hand what its like and talking to you tonight has been so helpful to me, i cant tell you how much. maybe GOD sent us to each other. lets both buck-up and toughen-up and give 'em all we've got. dont take it laying down anymore. this is insanity on such a grand scale... i keep saying it, but its so true...im in shock that we're all abandoned. im a fighter and ive found that im the only one who can change this situation.
hey, dont drive. you could end up oin the side of a road in your car, calling 911 while you wait and have a panic attack. just call 911. its ok. people do it for the dumbest reasons but youre legitimately sick and youre entitled to aid in getting to proper medical attention.
id go tomorrow, if i were you. id just go, even if youre having a lighter pain day. because you know its gonna flare up probably by the time the doc offices close. heck, everytime i eat, i feel like i have to go to the doc... so i know that while im waiting 8 hrs in the er, itll get bad again...it always does.
tell em about your thoughts too. if anything, let them keep you for that alone. at least youll be being observed and you can stress how horribly sick you are and theyll know why youre so upset.
ive learned that trying to just be nice to them, makes them think im not so bad. i dont want to grab them and shake them, but when they just discharge me and pretty much blow me off, and im leaving and facing the doors, i wish i would have been more strict. im not there to make friends...im there to get them to fix a very seriously urgent issue. to heck with being nice. no more mr (mrs) nice guy. ill let cha know what happens. if you dont hear from me tomorrow night, im in the hospital FINALLY GETTING SOMEONE TO PAY ATTENTION. i think there is a computer up there on the patient floor, so maybe i can check in w you. wish me luck and i want you to hang in there. big mega hug, girl!!!
dont forget...lots and lots of praying. i think its Matthew 21:22 about asking GOD for help and then Matthew 18:20 where he says where 2 or 3 are gathered in HIS name, there HE is in the midst of them. In other words, if we come together, asking or talking to HIM, he is with us and hears us.
second, and most importantly, suicide is NEVER EVER the answer to anything. Pain makes us feel desperate, i know, but we have to get them to find the cause instead of allowing them to just disguise the symptoms.
i pray a lot and i do know there is a possibility of my not pulling through this too, but ive seen miracles in my life before and GOD is a lving and helpful GOD.
there is always a reason for everything that happens to us in this short life in these very fragile bodies. i am a firm christian and know that this life here that we know is just a blip when compared to what HE has for us. i also know it wont be long before he comes to stop all the misery in this world.
our food is genetically modified, our planet is contaminated...all the big greedy corporations have thrown us to the wolves, and they will answer to HIM soon, but GOD says to not disease ourselves with anxiety. stress kills. we have to give it to HIM...give HIM everything and HE will handle it. HE is in control and we only fool ourselves into thinking that we are.
i personally think that attitude slaps HIM in the face, as if to say HE doesn't have the ability or desire to take care of us. so give it to HIM. HE asks us to.
as far as your health and being alone through this...do anything you can to prep for living with someone until they get you squared away. do not do what im doing. its terrifying.
its also not advisable because i dont think its safe. lots of times i will be discharged from the hospital er all loaded up on pain meds and i cant even hardly drive let alone get out of the car to crawl to my hotel room. then im lying there, freaking all night long.
if its not the pain keeping me up, its the pressure under the ribs and the nausea or the racing heart (dont know if its from my worrying or from my body throwing a fit) but ...well, being alone is a big NO NO.
you also need support mentally from anyone who can aid you. this is a horrific catastrophe (as if theres another kind) and im so in shock that a frontline or cbs special hasnt been done on this problem because NO ONE EVER WARNS YOU ABOUT IT....NO ONE EVER SAID A DARN WORD ABOUT THE POSSIBILITY OF THIS HAPPENING AND ITS A WIDESPREAD THING FROM ALL THE POSTS ON ALL THE MEDICAL WEBSITES IVE READ.
i wanna give you a cyber hug and tell you its all going to be alright, but no one knows anything about this, from what ive read. im in unchartered territory...we all are. heck, maybe the doctors are so proud that they cant admit that they are too.
i just want prompt care, honesty and compassionate care.
you do worry me as i know i probably could have slipped the other way mentally on this too, but im the only one who can fight this fight...just like you are. no one will be able to demonstrate to the docs how crucial and critical you are except YOU.
so call an ambulance, get to the hospital and demand!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
youre much too young to be contemplating ending your life, especially when there are so many options they havent even looked into. you need to refuse to leave, like im gonna do tomorrow, until they find out what is causing the problem. antidepressants cause more problems...just like that cipro/levaquin does.
i was even thinking about catching a plane to johns hopkins should i hit a brick wall here tomorrow.
id have to be sedated for the trip because i dont have any energy and the trama of traveling is a huge issue. i know im not familiar with your financial situation, but getting to a great hospital seems to be a common thread in the internet postings ive seen.
its a last ditch effort im holding on to.
if your spouse is already in the military, you should call your senator and tell them of the urgency!!!!!!!!!
youd be surprised at how quickly things move when the heat is on.
keep in touch with me. ill post back as often as i can too. we could be like penpals. its helpful bouncing ideas and experiences off of each other because we know first hand what its like and talking to you tonight has been so helpful to me, i cant tell you how much. maybe GOD sent us to each other. lets both buck-up and toughen-up and give 'em all we've got. dont take it laying down anymore. this is insanity on such a grand scale... i keep saying it, but its so true...im in shock that we're all abandoned. im a fighter and ive found that im the only one who can change this situation.
hey, dont drive. you could end up oin the side of a road in your car, calling 911 while you wait and have a panic attack. just call 911. its ok. people do it for the dumbest reasons but youre legitimately sick and youre entitled to aid in getting to proper medical attention.
id go tomorrow, if i were you. id just go, even if youre having a lighter pain day. because you know its gonna flare up probably by the time the doc offices close. heck, everytime i eat, i feel like i have to go to the doc... so i know that while im waiting 8 hrs in the er, itll get bad again...it always does.
tell em about your thoughts too. if anything, let them keep you for that alone. at least youll be being observed and you can stress how horribly sick you are and theyll know why youre so upset.
ive learned that trying to just be nice to them, makes them think im not so bad. i dont want to grab them and shake them, but when they just discharge me and pretty much blow me off, and im leaving and facing the doors, i wish i would have been more strict. im not there to make friends...im there to get them to fix a very seriously urgent issue. to heck with being nice. no more mr (mrs) nice guy. ill let cha know what happens. if you dont hear from me tomorrow night, im in the hospital FINALLY GETTING SOMEONE TO PAY ATTENTION. i think there is a computer up there on the patient floor, so maybe i can check in w you. wish me luck and i want you to hang in there. big mega hug, girl!!!
dont forget...lots and lots of praying. i think its Matthew 21:22 about asking GOD for help and then Matthew 18:20 where he says where 2 or 3 are gathered in HIS name, there HE is in the midst of them. In other words, if we come together, asking or talking to HIM, he is with us and hears us.
Hi again!
I'm still here. Still frustrated, but at least the UTI is gone. I am feeling better regarding that at least. I still abodominal discomfort and nausea. I still eat, I don't throw up, not yet anyway. I have been having numerous conversations with God about this, myself, my husband, my life in general. I break down at least 2 or 3 times a day in a total emotional meltdown. HE and I chat daily. I am doing my best to put my trust in Him. It's just so hard when I am faced with so much. The last 3 years have been rough. I lost my best friend who was my dad in April 07. I lost my career with the financial meltdown in October 07. Those two things were my life. I started feeling ill around that time, but the attacks were milder. I met my husband in October 07. We married in June 09. He cheated on me, 4 times that I know of. All because of me being ill all of the time, I was distant and he needed affection that I couldn't give. I was put into a total tailspin of depression and have been residing there for over a year now. I felt better after having the GB removed in the beginning but the nausea and general ill feeling started a few weeks after. I have a few good days where I will feel like I did in high school, tons of energy and feeling great, no pain no nausea...and than WHAM! It starts and I feel miserable for a week or two. It's enough to drive a person daffy. My husband is frustrated and doesn't know what to do with me. He's worried about me as he is being stationed in another state in August. We are moving to the west coast as my family and mom will be there and I can at least have someone around if needed. But the move is going to be miserable. It's a 3 day drive from Minnesota. FYI: I live 20 minutes from Mayo Clinic, best in the world yet they find no issues thus far. Having an Endoscopy next Friday morning. I feel like I might have ulcers or something. Would be great if that is what the problem was, at least we would know and it can be treated. But...I have had abdominal issues since I was a small child and no one has ever found anything wrong with me and always tell me its mental. I feel like I am crazy. Everyone else thinks I am. I don't know how you do it, being away from home for so long. You are a much stronger woman than I. Kudos to you for your fight.
Feel free to email me if you like, I am here to listen, God and I. ((hugs))
Bella Porter
I'm still here. Still frustrated, but at least the UTI is gone. I am feeling better regarding that at least. I still abodominal discomfort and nausea. I still eat, I don't throw up, not yet anyway. I have been having numerous conversations with God about this, myself, my husband, my life in general. I break down at least 2 or 3 times a day in a total emotional meltdown. HE and I chat daily. I am doing my best to put my trust in Him. It's just so hard when I am faced with so much. The last 3 years have been rough. I lost my best friend who was my dad in April 07. I lost my career with the financial meltdown in October 07. Those two things were my life. I started feeling ill around that time, but the attacks were milder. I met my husband in October 07. We married in June 09. He cheated on me, 4 times that I know of. All because of me being ill all of the time, I was distant and he needed affection that I couldn't give. I was put into a total tailspin of depression and have been residing there for over a year now. I felt better after having the GB removed in the beginning but the nausea and general ill feeling started a few weeks after. I have a few good days where I will feel like I did in high school, tons of energy and feeling great, no pain no nausea...and than WHAM! It starts and I feel miserable for a week or two. It's enough to drive a person daffy. My husband is frustrated and doesn't know what to do with me. He's worried about me as he is being stationed in another state in August. We are moving to the west coast as my family and mom will be there and I can at least have someone around if needed. But the move is going to be miserable. It's a 3 day drive from Minnesota. FYI: I live 20 minutes from Mayo Clinic, best in the world yet they find no issues thus far. Having an Endoscopy next Friday morning. I feel like I might have ulcers or something. Would be great if that is what the problem was, at least we would know and it can be treated. But...I have had abdominal issues since I was a small child and no one has ever found anything wrong with me and always tell me its mental. I feel like I am crazy. Everyone else thinks I am. I don't know how you do it, being away from home for so long. You are a much stronger woman than I. Kudos to you for your fight.
Feel free to email me if you like, I am here to listen, God and I. ((hugs))
Bella Porter
i havent got much time, but my daughter came in to drive me to a new hospital, but i couldnt stand the trip on the road. im going to fly out tomorrow and stay with her and her fiance. i'll write more soon. i hope yours is just an ulcer. you've certainly had serioous stressers. try to let it all go and be selfish and think of only yourself right now. you need all the concentration you csn muster to get above all of this. thinking of you lots.
Anonymous wrote:
Bella, are you still hanging in there? I think of you so often. I've been way too sick to even get on a plane...thats bad and scares me that I'm stuck here. I went to Wake Forest Hospital in WInston-Salem and they did a catscan and found no Crohns issues (although Chapel Hill insists it's my issue), and I'm still waiting for them to inform me as to what I can do. I've tried constantly to contact my surgeon but now today find he is on vacation and will be so busy when he returns and if this isn't a surgical issue, I really am not urgently in need of him. I insisted I get to see him nad they gave me a May 11th appt...oh goodie. What...3 1/2 weeks of more torture.
I keep at 'em though as I'm sick of visiting the ER everyday and getting hit with needles as I'm always dehydrated and get stuck like 5-8 times now. Wake kept me a few days but nothing is really new. I'm calling everyone and no one responds. An angel, my old surgeon in KC has stepped up to the plate with a referal out there, but I can't get there...heck, I can't get 5 miles away from here. Too nauseas...too much pain. Worried about getting stuck on the open road. My husband drove me to Wake, like 70 miles away, and it about killed me. Don't know anymore and losing faith in the health system. I've been hearing some incredible stories...or should I say nightmares like mine, where people are begging for help and no one is listening.
Pray Pray Pray for all of us that someone sweet and dear comes to our aid and blasts this all over the tv...
Well, thinking of you and if Mayo gives you any answers, please share them asap. Big hug, C
blaberwabe wrote:
ddmac wrote:
I am 10 days post gall bladder surgery. I was doing great until the 4th day when I awoke with severe nausea and heartburn. This has not gotten any better, and now I have bouts of lightheadedness. This could be due to not eating but is a bit scary. I am taking Prilosec and Carafate which is barely managing the problem. Tomorrow I am scheduled for an EGD. I have been searching the internet to see if this is a more common problem than reported. I was told by my friends, surgeon, and GI that this surgery was a "piece of cake" and that I would be great in a week. I am worse now than ever. Anyone else suffering? Anyone have this in the beginning? Anyone have this eventually resolve? I keep hoping that my digestive system is just adjusting but I have my doubts after reading posts from others.
I had mine out jan 25th, 2010 and its been months since ive been able to go home. i stay in a hotel across from duke, as i end up at the er there or at chapel hill almost every other day...sometimes evey day or even twice a day. its flared up my crohns disease a couple times too. i get nausea constantly and am always dizzy or feeling like im going to pass out or just die. ive had an ultrasound via an endoscope, catscan, 2 colonoscopies and another regular endoscope, to check for ulcers, gerd, anything...
all my labs are always good they say, although i have had many lipase levels around 300-500. my pancreas was checked out with that endoscopic ultrasound and found to be fine. im tag-teaming hospitals, getting a second opinion, but mostly, i wait for these far off appts with these specialist gi docs, only to be temporarily maintained at the er with zofran for nausea and or dilaudid for pain...sometimes morephine.
my husband comes up often, but we'll lose our insurance if he loses his job, so i have to take care of myself solo and its been scary. when the dizziness comes or the pressure/twisting pain, straight through to my back come, its impossible to sleep lying down and i find it scary to sleep as sometimes (a lot) i wonder if i will wake up...its that bad. some docs blow me off now as i have seen all the er docs in both facilites so much, that i know them all and the nurses and the valets...its just unbelievable that in this country we're being dealt with this way.
Ive even had a couple er docs tell me theres nothing they can do for me, in a mean way, and that i "cant be helped", as i come there so often.
ive been given a halter monitor for my heart/chest pain. i truly think it could be an adhesion, maybe kinking up my intestine as when i get the crohns flares, the pain in the middle area lightens or disappears...maybe because nothing is going through there as its blocked down further in the intestine.
but the middle area of pain and nausea, right between the ribs and slightly under the ribs is the cause of my crohns flares. i can tell it is. the bile-diarrhea makes me so incredibly sick and ive had it everyday for the most part. basically, i wake up, struggle to the hotel restaurant for food down the hall from my room, eat, get sick, lay there in bed for hours and repeat that senerio all day long. walking to my docs office is a huge struggle. i drive, feeling like im passing out, to her ofc across the street where i make it walking about 50yards or so, usually ending up getting someone from another clinic to call for me a wheelchair. i try to walk a little everyday to keep from getting bloodclots, but its a major feat and i hurry back to my room feeling like i should be calling an ambulance.
no one is taking this seriously and im astonished, as is everyone i know. there is something horrific going on in my stomach and no one cares.
ive been told its ABDOMINAL MIGRANE, a term they say is very real and i get scolded for not trying "CYMBALTA" AN ANTIDEPRESSANT. i even have been made to talk to a psychiatrist in the er to make sure im not suffering from depression to which they found i was behaving normaly for someone in pain who was recieving no answers.
the catscan i had was a while ago and ive been told they dont want me subjected to radiation as i could get cancer in ten yrs but i dont care about ten yrs...ive lost 30lbs and i wonder if i would make it ten yrs like this.
ive also been asked why im staying here in town (Im from a rural area and it takes 3 hrs to get here) and what hotel im staying in and the most bizarre insulting questions about my home life. its so degrading and it infuriates me.
when i started getting sick in mid december...major diarrhea (more than with my usual crohns diarrhea) and so sick i could move out of bed hardly, i came to a surgeon at chapel hill who had done a great job on my crohns, and i asked him to help me as my little hospital told me i had pancreatitus and needed my gallbladder out, he said he'd take it out in a few days. i asked him if he was sure it was the gallbladder and he said he would take it out either way and i didnt need it anyway and that if the problem still presented itself late, that we would tackle that issue then...well, its then and its been then for months and im going broke trying to survive this and still no one is offering a solution other than telling me im hypersensative to pain and i need cymbalta to shut down the pain my nerves are sending out...
i want a diagnosis that has evidence.
i dont believe that is causing nausea and dizziness and pain and twisting wrenching in my gut. ive read so much stuff online and there are probably thousands of us, and to just blow us off as THE UNLUCKY ONES...leaving our livesin ruins, is cruel and inhumane.
i pray for us and ask for all to pray for us and to pray for our doctors that they find compassion and wisdom in treating or healing us. but mostly i pray for immediate responses to our plea.
everyday is groundhog day for me, as im sure it is for you.
im surrounded by, supposedly, the best and brightest and told if there were something wrong, theyd know what it was....
Oh, I feel for you. I had my GB out Jan 5th 10. It was an easy surgery, keyhole and for the most part I was uncomfortable but not in severe pain or anything afterward, no pain meds needed for it what so ever. But...the nausea and abdominal pain and acidy feeling is constant. I have had days where I felt pretty good, usually after fasting on water and broth for a week to 10 days. I have lost 30 pounds but gained 10 back so far. I recently, last Thursday, got a bladder/kidney infection and I can no longer tolerate any antibiotics. I never had major issues prior to surgery. The side effects hit me with Macrobid, Bactrim and Cipro. So bad that they have upset my whole body and with toppled on with the pain and nausea that I have already has me contemplating suicide. I am not kidding. My husband is heading into the Navy in 4 months and I will be alone with this. I don't know if I can function on my own. There are days, a few times a week had passed before I was able to take a shower. Gross, I know. But seriously I have been so debilated by this "abdominal migraine". I was told I have this too. It's frustrating to feel like this. I can't hold a job. My marriage is suffering. I'm terrified and suicidal. I hate this. I needed the to have the GB removed, I had 108 stones. All of my tests come back normal as well. I am supposed to have an endoscopy done next week. Was gonna do it last week but was so sick I couldn't get to the appt. We live 20 minutes from our hospital, but a 20 minute ride is excrutiating most times. The latest malady with the bladder infection is killing me too. So I am just getting sicker and sicker. I know your pain and frustration. My doc said that if the Endo shows nothing wrong, than she will approve me for disability. I have no option of going back to work if I am going to be sick like this. I'm 32 and should be in the prime of my life. Oh, I was diagnosed with Poly Cystic Ovarian Syndrome and fatty Liver disease as well. So...really if I got hit by a truck and kicked the bucket, I would be ok with it. I can't have kids, I can't eat, sleep, sit, lay down, walk or do anything. My back hurts where the GB was all of the time. But there is something in me that tells me I am not done yet and that I have to get through this, if not for me, for my husband. I cant bare making him a widow at 28 yrs old. This is a nightmare and I hope you find some relief soon. There has to be something we can do. My prayers are with you.
Bella
Bella, are you still hanging in there? I think of you so often. I've been way too sick to even get on a plane...thats bad and scares me that I'm stuck here. I went to Wake Forest Hospital in WInston-Salem and they did a catscan and found no Crohns issues (although Chapel Hill insists it's my issue), and I'm still waiting for them to inform me as to what I can do. I've tried constantly to contact my surgeon but now today find he is on vacation and will be so busy when he returns and if this isn't a surgical issue, I really am not urgently in need of him. I insisted I get to see him nad they gave me a May 11th appt...oh goodie. What...3 1/2 weeks of more torture.
I keep at 'em though as I'm sick of visiting the ER everyday and getting hit with needles as I'm always dehydrated and get stuck like 5-8 times now. Wake kept me a few days but nothing is really new. I'm calling everyone and no one responds. An angel, my old surgeon in KC has stepped up to the plate with a referal out there, but I can't get there...heck, I can't get 5 miles away from here. Too nauseas...too much pain. Worried about getting stuck on the open road. My husband drove me to Wake, like 70 miles away, and it about killed me. Don't know anymore and losing faith in the health system. I've been hearing some incredible stories...or should I say nightmares like mine, where people are begging for help and no one is listening.
Pray Pray Pray for all of us that someone sweet and dear comes to our aid and blasts this all over the tv...
Well, thinking of you and if Mayo gives you any answers, please share them asap. Big hug, C
I see you posted this a few years ago. Did you ever get better? I had my gallbladder out 2 months ago and have had severe nausea. Nothing is helping, tried several medications. Now, the pain in my right side has returned. I too, had nausea before the surgery. Please write back to let me know if you ever got better ... and how... and how long it took... I feel like I am going backwards.......my doc says I should be feeling great and back to myself and I actually feel WORSE than I did before I had it removed. Thanks.
Are you feeling any better? Did the anti-depressant help? I have my gallbladder out 4 months ago and have had severe nausea since. All the tests done under the sun and all normal. No anti-nausea meds have helped. My two friends had to have their gallbladders out after me and they are lovin' life. No post symptoms. They are vacationing, working and happy as clams, while I am misearable. Can't hardly eat anything. Curious if anti-depressants helped you or did you ever find a cause of the nausea.
Bellaporter,
Are you feeling any better? Did the anti-depressant help your nausea? Have you had an ERCP? My GI doc may use that as next step, but very nervous, I have had severe nausea since gallbladder removed 4 mths ago. Any news for you?
Are you feeling any better? Did the anti-depressant help your nausea? Have you had an ERCP? My GI doc may use that as next step, but very nervous, I have had severe nausea since gallbladder removed 4 mths ago. Any news for you?
This is BellaPorter!!!!
I am soooo frustrated. No, I have had in the last 7 months since GB removal a total of 4 bad attacks and probably close to a dozen minor attacks. Bad lasting up to 2 weeks at a time with severe nausea and inability to eat. Minor attacks lasting 2 days or less with severe nausea. I get the ache in my back and under my right ribs where the GB was but I can handle the ache and the pain of that. I can't handle the nausea. I am so scared to eat that in the current attack (Yes I am in one now) I have had one can of soup in the last 7 days. I am having an upper endoscopy done next week and am being seen at Mayo in Rochester, but we are moving in 2 weeks to Seattle. My hubbys in the Navy and we have to go. I don't think I am well enough to travel but we will cross our fingers and pray for the best. I have had bad burning and acid reflux too. Doc thinks it might be ulcers or GERD or reflux. I have never experience nausea like this in my life I mean other than when I had gallstones. Not even food poisoning or flu has given me this kind of nausea. It's wicked. I don't know what I am going to do with this move and being so sick but I will have to do my best and try to get through it. The anti depressants did not help as even though I am depressed, it is not causing the pain and nausea. So for now I am in limbo until I get the rest of my tests and labs done.
Let me know how you pan out! I wanna hear all about it. I can't imagine this being part of the healing process. Seems like an awful long time when friends who had same procedure done are fine. They all think theres something really wrong with me. I do too now.
I will pray for all of us to get better and get some answers!
Hugs,
Bella
I am soooo frustrated. No, I have had in the last 7 months since GB removal a total of 4 bad attacks and probably close to a dozen minor attacks. Bad lasting up to 2 weeks at a time with severe nausea and inability to eat. Minor attacks lasting 2 days or less with severe nausea. I get the ache in my back and under my right ribs where the GB was but I can handle the ache and the pain of that. I can't handle the nausea. I am so scared to eat that in the current attack (Yes I am in one now) I have had one can of soup in the last 7 days. I am having an upper endoscopy done next week and am being seen at Mayo in Rochester, but we are moving in 2 weeks to Seattle. My hubbys in the Navy and we have to go. I don't think I am well enough to travel but we will cross our fingers and pray for the best. I have had bad burning and acid reflux too. Doc thinks it might be ulcers or GERD or reflux. I have never experience nausea like this in my life I mean other than when I had gallstones. Not even food poisoning or flu has given me this kind of nausea. It's wicked. I don't know what I am going to do with this move and being so sick but I will have to do my best and try to get through it. The anti depressants did not help as even though I am depressed, it is not causing the pain and nausea. So for now I am in limbo until I get the rest of my tests and labs done.
Let me know how you pan out! I wanna hear all about it. I can't imagine this being part of the healing process. Seems like an awful long time when friends who had same procedure done are fine. They all think theres something really wrong with me. I do too now.
I will pray for all of us to get better and get some answers!
Hugs,
Bella
I had my gallbladder removed on July 20 and I too have been feeling nausea for about the last 2 weeks, which would only be one week after surgery. I too, have some days where I am okay and others, like today, I feel this way again. I told my surgeon about it and he said it doesn't have anything to do with the surgery. Well, I didn't feel this way before he took it out. Hopefully, it will pass soon. I hope everyone also feels better soon.
THANK YOU! I will be holding onto this post! It has given me the hope that I have been looking for! As a matter of fact, I am going to copy it and post it on my desktop so I can refer to it whenever/if I start to feel discouraged about my recovery! THANK YOU! THANK YOU! THANK YOU!
I'm having the exact same problem. I had my gallbladder removed a little over a month ago after suffering from constant nausea for over three months. It started off as me only being nauseas occasionally, and by the third month it had progressed to being constant with no relief from anything and landed me in the hospital. After every test came back fine, including an endoscopy and a colonoscopy, I took a gallbladder function test which showed my gallbladder was working about 10% less than normal, so they removed it the next day. The surgeon said it was incredibly swollen and diseased. It took about two weeks for me to recover from the surgery, and after that I felt fine. Then about 2 and a half weeks ago I started getting sick occasionally. Its the exact same nauseas feeling I had before and its progressing in the same way. Only this time I am absolutely exhausted. I get plenty of sleep but I feel more tired than ever all the time. And occasionally I get a crampy feeling mostly in my lower right abdomen but sometimes in my left too. All I can hope for at this point is that its just my body recovering because I cannot go through the constant nausea again for so long. Has anyone had this and it turned out that the gallbladder wasn't actually the issue in the first place?
Hi everyone,
i stumbled across this site researching if anyone else was having persistent nausea problems after gallbladder surgery removal.
I had mine removed august, 2010 [20 gallstones] and ever since then i have had almost non-stop nausea, indigestion, messed up BM's, anxiety in my stomach, just the most uncomfortable feelings all the time and my doctor said i was going to be perfectly fine after the surgery. Before the surgery, every single thing i ate would give me excrutiating stomach pains lasting days at a time. Being that i need to eat every so many days, i was always in pain. This pain did go away and i dont feel that stabbing pain now. But now Im ALWAYS sick to my stomach, &then worrying if im about to throw up in front of everyone! (Before the surgery, i was 5'7, 125lbs. 3 months after, i was 5'7 110lbs, with less appetite every day.) Also i dont know about you guys, but i canthave a single sip of any kind of alcohol, now matter how small amount is in it i instantly throw up now. But anyways, I have found something that has taken away my nausea, anxiety, given me an appetite, taken away my depression, thereby lifting my moods and giving me better quality of life which i NEVER thought possible with this surgery. I hate prescription medicines, i just dont like the thoughts of chemicals, unnatural, manmade things in my body. The commericals are ridiculous for some..."death has occured" like HOW is that legal?! I used to take birth control, but it gave me a headache every single day and my doctor said it wasnt because of my BC so after 5 years of use i went against her advice, went off it, and had no more headaches. So then i didnt need the OTHER medication she gave me for my headaches anymore, either :-) So the natural plant that has saved my life is marijuana. It has such a bad rep from the goverment, and just so you all know- i've researched marijuana for 3 years now, and there has never once been any deaths by marijuana... even aspirn kills over 7,000 people a year in the US, but marijuana none! If you take the time to research it, you'll learn that it used to be the most profitable plant in the US, because hemp is such an extrodinary plant. It can be used for virtually everything; clothes, medicine, lotion, fuel, ...it used to have the monopoly in fact! But yep, weed saved my life... i dont necessarily like the feeling of being in a slightly altered state, because i like to feel 100% me, but i feel about .05% me with the constant sickness so i'll choose this any day. Also, when you're high you dont get crazy urges to jump off a building or kill someone... you just want to sit, relax, eat, and enjoy your surroundings. You get sleepy usually. And if you vaprize it with a vaporizer like the volcano, you dont have to smoke it and do the ONLY bad thing about it-- inhale smoke to your lungs. Vaping is clean and safe, and so is Marijuana. I encourage you to at least try it. BTW, you dont get high the first time you smoke. Your brain has to develop THC receptors. Most get high the second time they try smoking (the next day or week or w/e) but i didnt until my third attempt.
FYI, more THC= more of a high.
*blunts have liek 10% Thc, vapes have like 90%
Good luck, and seriously, keep an open mind... it's saved my life. literally.
i stumbled across this site researching if anyone else was having persistent nausea problems after gallbladder surgery removal.
I had mine removed august, 2010 [20 gallstones] and ever since then i have had almost non-stop nausea, indigestion, messed up BM's, anxiety in my stomach, just the most uncomfortable feelings all the time and my doctor said i was going to be perfectly fine after the surgery. Before the surgery, every single thing i ate would give me excrutiating stomach pains lasting days at a time. Being that i need to eat every so many days, i was always in pain. This pain did go away and i dont feel that stabbing pain now. But now Im ALWAYS sick to my stomach, &then worrying if im about to throw up in front of everyone! (Before the surgery, i was 5'7, 125lbs. 3 months after, i was 5'7 110lbs, with less appetite every day.) Also i dont know about you guys, but i canthave a single sip of any kind of alcohol, now matter how small amount is in it i instantly throw up now. But anyways, I have found something that has taken away my nausea, anxiety, given me an appetite, taken away my depression, thereby lifting my moods and giving me better quality of life which i NEVER thought possible with this surgery. I hate prescription medicines, i just dont like the thoughts of chemicals, unnatural, manmade things in my body. The commericals are ridiculous for some..."death has occured" like HOW is that legal?! I used to take birth control, but it gave me a headache every single day and my doctor said it wasnt because of my BC so after 5 years of use i went against her advice, went off it, and had no more headaches. So then i didnt need the OTHER medication she gave me for my headaches anymore, either :-) So the natural plant that has saved my life is marijuana. It has such a bad rep from the goverment, and just so you all know- i've researched marijuana for 3 years now, and there has never once been any deaths by marijuana... even aspirn kills over 7,000 people a year in the US, but marijuana none! If you take the time to research it, you'll learn that it used to be the most profitable plant in the US, because hemp is such an extrodinary plant. It can be used for virtually everything; clothes, medicine, lotion, fuel, ...it used to have the monopoly in fact! But yep, weed saved my life... i dont necessarily like the feeling of being in a slightly altered state, because i like to feel 100% me, but i feel about .05% me with the constant sickness so i'll choose this any day. Also, when you're high you dont get crazy urges to jump off a building or kill someone... you just want to sit, relax, eat, and enjoy your surroundings. You get sleepy usually. And if you vaprize it with a vaporizer like the volcano, you dont have to smoke it and do the ONLY bad thing about it-- inhale smoke to your lungs. Vaping is clean and safe, and so is Marijuana. I encourage you to at least try it. BTW, you dont get high the first time you smoke. Your brain has to develop THC receptors. Most get high the second time they try smoking (the next day or week or w/e) but i didnt until my third attempt.
FYI, more THC= more of a high.
*blunts have liek 10% Thc, vapes have like 90%
Good luck, and seriously, keep an open mind... it's saved my life. literally.
I had my gallbladder removed November of 2009. It is now 15 months later and I'm still experiencing nausea. My doctor wants me to come in and take tests but it sounds like the tests show nothing helpful. My health insurance is bad and I don't want to pay for a bunch of useless tests. I hope the nausea subsides eventually. I hate feeling this way.
Thanks to the Physician Newbie for his comments. I just had surgery 3/23/11 and until yesterday 4/7/11 thought I was doing great, getting tired of the bland foods, would have issues if I tried foods not recommended, imagine that. Anyway, today there is more pain in the right side, very uncomfortable, could be from lifting my purse, Doctor said 4 more weeks of not lifting beyound 6#. I'm loosing weight too, don't mind that, but the pain and bouts of diahrrea are getting to me, but now trying to remember what Newbie said, it's going to take time.