Hello December 16th 2019 I had a colonoscopy done. stage 2 colon cancer. The next day the operated. took one foot of my colon and part of my rectum. Turned out to be stage 3 cancer. Shorty after the surgery I felt my stomach pop. Muscle tore and I got a hernia. After going through 9 months of chemo the Doctor operated and put mesh over the hernia. I felt a lot of pain on my right side, Now you can see the mesh at the bottom of my stomach. Sticking out. I have a lot of problem like constipation. I have a d one CT scan and colonoscopy done and all clear from cancer. I have been to the Doctor twice about the mesh and hernia looking like it was back. I have been told I can live with this. And that I don't want another surgery. hell didn't want the first two . But I would like to feel and have things work normal.. or close. If I could use the bathroom without constipation and worrying.
So I had a bowel resection (ileostomy & reversal) done in 2018 because of perforated bowels and I figured the pain I had would disappear with the affected bowel. It did not. When I told my GI about the pain he offered no testing but said it was muscle spasms. Muscle Spasms??!!!! That seems way too far fetched. Years later I am still having that pain at the site where bowels used to be. Every once in awhile I panicked thinking there were new perforations BUT I massaged the area last night and it did NOT activate my bowels like if I would have massaged my middle or left side abdomen. This let me know that the pain is not intestinal! And after reading so many comments here, I'm CONVINCED it's Phantom "Limb" Pain. Only when does it stop? Will it stop? What can be done?
I periodically have had sessions of pain following three intestinal resection/repair after my uterus and small bowel were perforated during an outpatient procedure to remove a uterine polyp in 2020. I looked the pain issue up on the internet and there was an article that suggested it could be surgically induced neuropathic pain due to possible damage to the ilioinguinal, iliohypogastric or genitofemoral nerves. Going to contact my doctor about it.
How did it all go? I’m going through the same thing now.
I realize this forum is a decade old, but it’s worth it to reach out. In 2009, I was taken to ER w/ moderate abdominal pain and feeling “flu like”. When results from my blood work returned, I was prepped for gallbladder removal. Instead, I was woken to sign consent that I had a “possibly” volulus. (Possible?) and 13” of intestines were removed. I entered the ER fairly healthy, but have never felt well or worked since. During that admission, nothing ran smooth. I had 2 infusions, which is normal following surgery of that type, but I developed infection, hernia, uncontrollable hypertension, hypokalemia, uncontrollable pain, (I was on morphine pump, switched to Dilaudid pump, w/ 75 mc Fentynal patch 48hrs (not 72hrs) 20 mg of OxyContin 3x’s daily, and 20 mg of Oxycodone everything 4 hrs prn.
Yes, all that pain medication was administered scheduled and daily. I STILL had pain, though I didn’t know my name. There were other mishaps,
But I was released after 35 days later: (unbelievably the liteny of pain medication was prescribed upon discharge; I was referred to pain management within two weeks. Instead of tapering me, she increased the meds.
I’ve had intense pain, daily, ever since. I’ve been to a few GI doctors who do not appear concerned. I’m concerned! I often have breath taking cramps to the point I pass out on the bathroom floor. I’ve been passing bright blood in my stool ever since the surgery. The original surgeon, who thought I was a joke, wrote my pain off, prescribed Metamucil, though I tried to explain that wasn’t the issue. Two years later, I had my gallbladder removed and gained 75 lbs. though I watched every calorie post-op. I’ve been scheduled for several colonoscopies, but the prep never works completely regardless how early I begin, the different type of prep, or days/weeks I set aside. My original scar area from the resection has enlarged, opened, and weeps. I suffering daily. I’m hoping anyone else can share or offer advice. I finally found a doc to take me off the pain medication, years ago. Unfortunately, I cannot find the help I need. I fear a true medical emergency. Additionally, I’ve tried to obtain my surgery report and records from my admission from the day I was release. It has disappeared from medical records.
Yes, all that pain medication was administered scheduled and daily. I STILL had pain, though I didn’t know my name. There were other mishaps,
But I was released after 35 days later: (unbelievably the liteny of pain medication was prescribed upon discharge; I was referred to pain management within two weeks. Instead of tapering me, she increased the meds.
I’ve had intense pain, daily, ever since. I’ve been to a few GI doctors who do not appear concerned. I’m concerned! I often have breath taking cramps to the point I pass out on the bathroom floor. I’ve been passing bright blood in my stool ever since the surgery. The original surgeon, who thought I was a joke, wrote my pain off, prescribed Metamucil, though I tried to explain that wasn’t the issue. Two years later, I had my gallbladder removed and gained 75 lbs. though I watched every calorie post-op. I’ve been scheduled for several colonoscopies, but the prep never works completely regardless how early I begin, the different type of prep, or days/weeks I set aside. My original scar area from the resection has enlarged, opened, and weeps. I suffering daily. I’m hoping anyone else can share or offer advice. I finally found a doc to take me off the pain medication, years ago. Unfortunately, I cannot find the help I need. I fear a true medical emergency. Additionally, I’ve tried to obtain my surgery report and records from my admission from the day I was release. It has disappeared from medical records.
i had 36 inches of my small intestines removed oct2020 because of a hernia did not knew my abdomin still hurts,now i got crohns desease.what luck hahaha
I have had a small bowel resection over a year ago. I have had nausea every morning. Once a week my body will all of a sudden in less than a minute cause massive pain to the point I have passed out from the pain before passing out my body feels like it’s going to spontaneously combust. When I do pass out I can hear what’s going on I just can’t respond. As I am passed out I deficate everything out of my system. Once everything is forced out by my body it’s over. This can last from 30 min up to 3 hours. My belly also swells up. I have been to doctors but as with most they can’t find an issue. I have done several research’s in this and found several things I want to throw out there. Some issues I am looking into visceral hypersensitivity, acidosis, and short bowel syndrome. Some things for others with bowel issues to look into.