Trigger points. These can and do occour in the neck.
Most doctors are clueless about them. I have to pay privately
To so a physiotherapist who specialises
In trigger points and myofascial release. Give it a try!
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x-ray with thought maybe Fosamax I recently re-started might be doing something...but that was also normal findings. He is suggesting an MRI should be next. There are no palpable lymph nodes. I can pinpoint the pain....deep in left throat....NOT a "sore throat" as with tonsillitis. Has me scared...... the dentist also suggested TMJ, ... I have some of the symptoms, but do not grind my teeth, altho possibly guilty of "clenching" jaw..... do not fit the "age profile" for TMJ however....it started suddenly and have had it about 5 weeks now.
:D
Okay... Hello All...If you have what I have you will save yourself 5 years of aggravation, countless emergency room visits, doctors misdiagnosing you, people telling you that your crazy, your pain is psychosomatic ITS ALL IN YOUR HEAD....GOD THAT DRIVES ME CRAZY!
Anyway, I read everyone's posts.... Basically, I have had severe throat and neck pain on my left side for 4-5 years. I am a male and I was 24 when all this bs started. I would wake up in the morning in such pain and it felt like i had strep throat everyday.. I was given antibiotics for laryngitis, sinusitis, pharyngitis all in the first six months...All to no avail....Than I saw an ENT. I was scoped, and everything...He told me that my Vocal Cords were Swollen and Red, and that I had REFLUX, larynpharyngeal reflux..I was prescribed nexium and told to beat it....This pain was so bad that I would have to seek pain killers out illegally because no doctors would prescribe me anything. It ruined my life, i lost all relationships, i stopped excercising, stopped going out, got laid off, everything. I turned into a recluse...So anyway, the reflux medicine didn't really work too well.. So I got a barium swallow..They said I had mild reflux...I went to the emergency room about 12 months after the start of it because i was deficating blood...They did an MRI of my brain and it was negative and they let me go...But before i left the doctor stuck his finger in my butt (yes a male doctor) and they treated me for an ulcer...Anyway, after that I scheduled an Endoscopy at the hospital and the doctors knocked me out and looked down my esophagus.. All they said was that I had slow digestion and gave me some BS med's that i really didn't take to long because i knew that wasn't really the issue...Anyway another year or so went by and 5 ENT doctors later, the doctor prescribed me some steroids, methylprednisolone for the inflammation, since he said it was very inflamed and red...That really didn't do anything either...SO FOUR YEARS AND I HAD BEEN THROUGH SO MANY TESTS AND OVER 15 DOCTORS WITH NO ANSWERS. I now had no insurance, and no job and could barely get out of bed due to the pain and depression that no one really believed me or knew what was wrong.... Anyway, I couldn't sing, argue, yell, talk for long periods of time, laugh too hard, eat anything spicy or greasy...I couldn't drink any alcohol, smoke any weed or cigarettes....anything fun i couldn't do...excercise nothing....It sucks so bad...So finally I had saw a doctor about 2 months ago....This guy was an ENT who was the director of Medicine at TEMPLE college. He was 75 and had been practicing for 50 years... I told him my history and he did all the tests that he had to do....AND FINALLY after over 4 years I was lead to what my diagnosis is....For anyone that has neck pain/throat pain, TMJ even that doesn't go away for years..... THE PROBLEM IS MUSCULOSKELETAL IN NATURE....he said this could be one of 5 things....first we checked - eagle's syndrome / that wasn't the culprit after an catscan (make sure you get a 3d axial catscan if you can afford it or you have insurance)... I than got an ultrasound on my thyroid due to a cyst on the left side....nothing normal...ruled out thyroid problems...THAN I got an MRI of my neck on the left side in the front....Along with the Catscan and MRI my doctor concluded that I had Superior Cornua syndrome...It's when the thryroid cartilage elongates and grows due to calcification or atrophy and messes with your transverse process... This causes pain and inflammation and is degenerative...( it can also be called hyoid bone syndrome) (its like bursitis in your thyroid bone cartilage)....Tell your ENT that you want a 3d catscan on your neck with particular reference to your stylohyoid ligament on whatever side is bothering you or both....
THE REASON WHY DOCTORS MISS THIS IS BECAUSE IT IS VERY RARE AND IT IS A DIAGNOSIS OF EXCLUSION!
HAVE YOUR DOCTOR PRESS ON YOUR HYOID BONE AND WHERE YOUR STYLOHYOID LIGAMENT IS AND IF IT IS VERY SORE AND GETS WORSE YOU PROBABLY HAVE THIS...ESPECIALLY IF IT DOESN'T GO AWAY FOR MONTHS NO MATTER WHAT YOU DO~
After this if you have insurance: You would like to get a DL (direct laryngoscopy to confirm your diagnosis)
NOW HERE IS THE KICKER: unfortunately for me I have medicaid and I live in NJ...The only treatment for to permanently fix this is really surgery to excise the excess cartilage.... Now the best way to deal with the symptoms is to get the superior horn of the thyroid cartilage injected with a steroid concoction directly....The problem with this is it costs 5-10K....I don't have this!
So pretty much I'm screwed because charity care will only cover the hospital bill and not the surgeon or the anestesiologist or the materials...OF COURSE WHEN I HAD INSURANCE AND A JOB FOR 3 YEARS I WAS MISDIAGNOSED, BUT NOW THAT I DON'T HAVE INSURANCE THE DOCTORS FINALLY FIND THE CULPRIT BUT BECAUSE I DON'T HAVE INSURANCE I CAN'T FIX IT...BS MAKES ME SO MAD!
So i'm trying to find a job with insurance to help me pay for this....
I do believe I had some reflux first that started this problem caused by irritation.
To deal with the symptoms is what I'm doing now.... I eat very healthy... REDUCING YOUR STRESS IS IMPERATIVE - for me the more stress the more pain, the more arguments - the more pain, you get the drift...
MY MAIN FOODS to deal with inflammation: Popsicles, Water Ice, Hot natural Tea Chamomile w/slippery elm, licorice and other herbs that reduce inflammation...definitely honey.... fresh carrot juice, spinach, pineapple, apples.
Medicines: STRONG ibruprofen, Aleve, Naproxen, Torridol, anything for anxiety helps so much...muscle relaxers.. pain killers at times of the worse pain. I hope this helps someone....Because for 5 years my life has been ruined and now its just starting to get better because i see an ending in the near future....my email is ***this post is edited by moderator *** *** private e-mails not allowed **
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if anyone needs support...As for the clickers of the throat search "hyoid bone problems..! There are surgeries they can do to fix it, it's just that most ENT's don't know anything about this c**p because its farely rare stuff... the neck/throat is a complicated place, just look at grey's anatomy and see...Most doctors would rather give you the wrong diagnosis than tell you they don't know what your problem is.....Good luck everyone, I hope this helps someone...! :cool:
Help! Does anyone have any advice - I see lots of people are suffering like me - I put pain patches on my neck at night to try and sleep. I had breast cancer, but my cancer doctors don't seem to worried about it - they said they couldn't see or feel anything wrong with me. I had to demand a referral to an ENT--they didn't suggest a referral, but I won't give up on this.
I was so glad to find others suffering like me - I was beginning to wonder if I was the only one suffering from this pain - the doctors look at me like I'm making this up or something.
I can sympathize with many of the frustrations and complaints posted in this thread. On and off for the last eight months, I have been suffering from a bizarre and worrying array of symptoms affecting my neck and throat. I have an ENT appointment at the end of this month which may help shed more light on the problem, but as of now I have had only basic bloodwork done which came back totally normal. That is a comfort to a degree for now, but I know many cancers cannot be detected except through biopsy. I am a female in my late twenties. I smoked briefly as a university student and drink only socially.
Firstly, I have had a deep throbbing pain in the front left side of my neck that radiates up through the left side of my tongue and seems to refer to the back left side of my throat as well. As mentioned by a few others in this thread, it certainly originates in the tissues of the front of my neck, not in the throat and it is certainly NOT a muscle pain. It is a strong, quivering, nervy pain that, as I said, throbs. I often have the sensation that something is caught in the left side of my throat, but I have no pain when eating or swallowing. I have occasional earache and jaw pain that comes and goes, also all on the left side. Sometimes when I talk for an extended period of time or hold my neck a certain way for too long, I find that the left side of the FRONT of my neck goes numb, as if the entire length of my adam's apple on that side is aleep. Additionally I have a small but peristent need to clear my throat all the time and sometimes feel a little hoarse, though no one else has mentioned any of these things to me about myself so maybe they don't occur to the degree I think. Finally I have palpable and mobile lymph nodes on the left side of my neck: one cervical, one sperclavicular, and two suboccipital way at the back of my neck at the base of my skull in the hairline. I do not necessarily think they are "enlarged" but because I have never felt them at ALL before, I wonder if they are an issue.
All of the above symptoms come and go at what seem to be entirely random times, but I never have a day free of all symptoms and on the worst days--such as the original episode that sent me alarmed to my primary physician--I feel debilitated by all of them at once.
I took one of the posters' advice and ordered Cleavers Tincture and am on day two of using it; if nothing else it is starting to help psychologically :)
I have not found any postings that match ALL of the issues listed here, but this thread matches my problem best. If my problem sounds like yours, post a reply and let me know--especially if you have any answers!
Thanks and good luck to everyone on here.