septum pellucidum absence

I'm 31 and was diagnosed with Isolated Absent Septum Pellucidum earlier today. I was having some minor neurological and vision problems (vertigo, brief blindness in left eye, blurred vision, light sensitivity) and they discovered ASP during an MRI. Overall, I am a happy, healthy, and fully functional adult. The doctors never noticed any problems until now. My IQ is 141 and I have a degree in Electrical Engineering. My symptoms are far from debilitating, but they can be somewhat annoying. The ASP may finally explain the current problems I am experiencing as well as a few other mysterious health issues I've had in the past. It's comforting to know there are others like me who have this condition and have lived full, productive, happy lives with minimal disturbance. There is so little information out there about this rare brain abnormality. Thank you for your posts.Also, I found it interesting that someone mentioned ASP might be linked with a high aptitude for music. As it turns out, I also happen to be a skilled musician.

My child was born september 17, 2014 she was born with many health issues like Necrotizing intercolitis (NEC) also she has septum pellucidum absence. She has no control of the direction her eyes goes in. They go in different directions and roll in the back of her head. She was just discharged today January 9,2015. During my pregnancy I had to have ultrasounds every 2 weeks until my 36 week then was every week. They said her stomach was measuring smaller. They never said anything about her septum of her brain missing. I thought I was going to have a healthy baby. I had an induction at 38 weeks 3 days. She was not small at all she was 6lbs 7oz. Can someone please help me with what problems my child could have with her vision. Her optic nerves are 25% of the normal size. The doctors think she can only see shadows or even blindness. Could this be

I am 46 years old and was diagnosed with ASP over 10 years ago. I had to laugh when I read the end of your post about ASP being linked with a high aptitude for music. I have 0 interest in music and NO talent. My husband and kids have always joked that the missing part of my brain was responsible for music. I have lived a normal and healthy life until just recently when I was diagnosed with Symptomatic Tarlov Cyst Disease. This is also a condition that very little is known about.

Hi if you don't mind I would like to chat to u as I have something to share too & would like to ask you few things as I have a baby too with these symptoms & I'm confused sometimes.. Thank you!

Hi, I am 25 and I have an absent septum pellucidum. I have optic dispacia in my right eye, I have had ADHD since childhood. I have depression, anxiety, hypothyroidism, adrenal insuffency, I had growth hormone deficiency as a child and teenager and had to take protropin shots daily.  I have one working kidney.  I have a learning disability in math, although I excel at english, history and science...as long as I can use a calculator. lol.   Please consider that these as well as many other medical problems can present themselves in children with an absence of septum pellucidum.  I have problems with relationships, friendships and even keeping a job due to these issues. Oh, I nearly forgot...I also have sensitivities to hot and cold. I sometimes pass out. Life is usually difficult.  Please, just keep this in mind when considering keeping a fetus with an absent septum pellucidum.

Hi, I am 26 weeks pregnant and my son was diagnosed with ASP in Haifa, Israel. The doctors are indicating a large percentage of severity based on statistical data; however, no other abnormality has been found (besides an EIF which they said is unrelated). So no other diagnosis with 4 ultrasounds (two with high tech hospital equipment and a specialist who has consulted with a specialist in ASP and SOP). Also, prenatal testing and blood work for up to 26 weeks is all perfect. However it is too early to detect optic nerve function- so I go into the ASP specialist in 3 weeks. Tomorrow I start a 24 hour urine sample to detect fetal hormones to test pituitary existence and function. I was going to get an abortion today (I am Christian) so you can image how ill and confused I am, but I am 26 unmarried with an unplanned pregnancy- though I planned to marry my partner before I was pregnant and he is very supportive. We both need more time to develop ourselves financially and intellectually to support a special needs child- we can only handle a child with minimal if any disability. My insurance in America will only cover labor and complications here (not all these tests and dr. Appts. and they won't go toward my my deductable of 6500). I can't go to America because I cant abort if I need to at this stage. please help by posting your stories- especially if you had normal prenatal screening with or without Isolated ASP and had more complications later. Or more stories about people after age 1 or 4 years old- or more notably stories of ages over 20. Please understand that I know my situation very well and I need these facts to make the best decision for all people involved. Shalom

I am from Taiwan. Sorry for my poor English.

2.5 years ago, my daughter was born at the gestational week of 31. She was found complete absence of septum pellucidum(ASP) by routine sonography for a premie.  We were so terrified with this information.

I try to google this congenital defect and found one forum discussing this problem. That was  first time, I realized so many functional normal people living with ASP. That forum really comforts me. 

6 months after my daughter's birth, she had a Brain MRI to search other associated anomaly. Doctor told us her ASP is an isolated finding. She had vision check twice later and all findings were normal.

She is now 2.5 year-old. She has no developmental problem, a good sense of humor. The regular developmental evaluation at the age of 2 reports that her recognition function is even 3 months advance. She likes to hearing stories, playing jigsaw, dancing with "let it go (FROZEN)"

I just found out, i have asp 5 yrs ago, age 32. I can't process quick. And I have been having headache for the last 3 yrs, my right eye is becoming lazy since 3 yrs ago. I have this very stressful relationship for the past 3 yrs, I hope those problems I have coming from the stress. Can you share with me if you have some strange experience like that please? Thank you

My daughter is 19 yrs old and has septo-optic dysplasia and is expecting her first child any day

My son is 4 years old with ASP. He is adopted so we are new to all of this. He also has cerebral palsy and severe speech delay. He is very smart, just has trouble with talking. He uses a lot of sign language to communicate. We are finding other issues as time progresses. Some of these issues are frequent headaches, excessive thirst, anhidrosis(lack of sweating). I am looking for a support group for this disorder.

My son is 4 years old. He complains of frequent headache. Sometimes I think they are triggered by lack of sleep. He is very smart but has a speech delay and cerebral palsy.

Hi, My son in 4yrs old with absent septum pellucidum.  I would love to talk to you more.

Hello,

Me and my girlfriend gave birth to our beautiful baby boy Landon this past Halloween. (Very excited for birthdays to come!) He got his MRI scan a few days ago and the doctors told us he has ASP and his Pituitary Gland is not fully developed. From what I understand, his body is not producing the hormones in the quantity that he needs. He physically looks normal and was born at 38 weeks at 6 lbs 2 oz.

He has been in the NICU from his second week of life till today. He moves around a lot, has a strong grip, and can hold his head up momentarily from time to time.
Since birth, he's had trouble maintaining his blood sugar levels and had an increasing level of jaundice, both direct and indirect. Since his results from the MRI, the doctors have a better understanding on how to give him the treatment and care he needs. This is our first child and hearing about this was devastating. You never expect this to happen and the entire pregnancy is such a happy time. I have no regrets whatsoever, my son and girlfriend mean everything to me. I just think how unfair it is for my son. I truly wish the best for him and will do whatever it takes to help him.
Reading these stories make me feel hopeful for a bright future for my son. I'd like to thank you all for your support and for sharing your stories. I pray for my son and for everyone else.

I am writing this post because today my sister facing similar problem. she is pregnant,19 weeks .Today doctor told to take MRI scan and he reported that cavum septum pellucidum not seeing .so what to do in this case any suggestion .we can move with this pregnancy or abortion .I gone through some net journals ,this can cause mental problem and eye problem.

Please forgive my english. My son was born with ventriculomegaly of 14 mm. His development was slow. He has mental retardation and poor management of language. Even to understand a yes or not is difficult to us. He needs permanent attention of and adult every day. He is 9 years old and was recently diagnosed with asp.